question about stopping and restarting treatment

I've been off of abx for a week. Symptoms are pouring back in. I took a couple month break in the spring and it was so different. I'm guessing because I was transitioning more towards mast cell treatment and that's why I didn't feel much worse. Or I'm just simply having a selective memory and not remembering if it was bad like this.

I'm still struggling with this whole body rash business. My doctor won't let me restart abx until it's all the way gone. Which I disagree with considering I don't think it's from abx. I can't argue with his decision, I'd probably tell someone the same.

Anyway. I'm wondering if when I start abx again if I'm going to have to go through the severe herxing again? And if it will take forever to get back to where I was? Probably questions no one really know the answer to..

I almost want to just hook myself up to a bag of abx anyway. But on the off chance it is them I don't want to hurt myself either. I really want to get better. I need things to be OK, I'm too tired to keep going through stuff like this. I never expected treatment to be easy but I couldn't foresee it being this complicated.

I feel bad that you are getting so few response. I know in my case I don't have an answer that I'm comfortable giving you. We are all rooting for you and wishing that you will finally catch a break and have smooth sailing in your quest to health.

Janet

I hear ya! I just started treatment 3 weeks ago. I've had misdiagnosed lyme and company for atleast 2 years, maybe 10.

I've just started developing a rash all over my body too and so itchy! my doc also won't give me any alternate antibiotics. I've heard doxy is infamous for causing full body rashes and just want to try a different option but she will only offer steroids and antidepressants! I just wanted to throw a book at her and tell her to read something! I realized that is a terrible solution after looking at this forum for a minute!

What do you do when not on antibiotics? I am taking some of the core Buhner herbs, teasel- 4 drops 2 x day and the Classical pearls Gu syndrome protocol as directed by my acupuncturist. Also eating gluten, dairy and sugar free and doing daily detox baths. Kinda curious to see how the next few days go but also nervous and worried it will lead to a bacteria backlash I will have to battle later....

You are not alone!

Sending you prayers for a fast and sweet recovery.

Noralove- I was taken off of everything. I don't do anything but detox and take probiotics while I'm off treatment.

Jrpsf- no worries I didn't think it was negative. I'm just super curious lol!! I'm so sick of hitting these walls every time I turn around. Makes me want to throw the towel in and be done with all of this. If it wasn't for my family I don't think I would even try at this point. I feel like I owe it to them to get better.

Thank you!! That's incredibly generous!

As irritated as I am with my doctor right now, I think he's good at what he does. At least he can be honest and tell me flat out doesn't know why this happening.

My post would've been "it's working" if I was still infusing lol. Even though I have this hideous rash I was starting to feel better. Right now I'm still better than I was 2 months ago. I had a very angry day. It kind of came out of nowhere. It just dawned on me that it's been a whole year and I've still barely started treatment and I've made embarringly little progress.

I hope I stick with Lyme after this. I hope it gives me the drive to pay it forward. I want to help people after going through this.