seizures, flasking lights, loss of consciousness?

Ths is my first post anywhere. I am having not having luck with Dr's. I tried to contact Llmd but was told they don't do initial testing. And was turned away. Symptoms began in 2003 with chest pain , fatigue,etc. 2005? Began facial spasms, insane halos, light sensitivity, headaches, floaters, lung pain, cold numb extremities, rash on chest +neck, 2008 swollen lymph, thrush, nodding off (loosing consciousness?) randomly, Now, dizzy, zapping\electro sound in head ccompanied with leg movement+ flashing lights eyes closed lying down to sleep/ rest. Spots on palms. Lost 3 fingernails. Shoulder stiffness, shooting pains , chronic headache and tinitus. Once I actually had to force breathing. It isn't seem to want to breath automatically. Static vision. Eyes moving while trying to sleep. Dr's do nothing tests cbc "normal" waiting for standard Lyme tests. They look at me like I am nuts. Brain mri clear.
What do I do? Neurologist says I'm just twitching as I fall asleep! I think fungal in blood, meningitis, Lyme. No one seems to care if I fall over dead. Or call me crazy. And I do not exaggerate symptoms. I thought llmds were there to help test?

Hi Draden,
Welcome! I'm so glad that you joined our community!!

Cd has already given you some good information, let's see if I can add to that!

​If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.​

I was wondering if maybe your nodding off/loosing consciousness is more narcolepsy? I had that, and it is a bit disturbing.

You simply won't get anyone to look at tick-borne infections as a serious possibility without seeing an ILADS trained doctor. They are the only ones that usually have any understanding of how serious these infections can be.

For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.


​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​


You can start a new thread titled something like "Looking for LLMD in the (insert the nearest larger city & state) area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.


You can email the Tick-Borne Disease Alliance at​[​​url]​[email protected]​ for LLMD referrals and you can go to ​tbdalliance.org​​ to learn more about these infections.


You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


​ You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
http://www.ilads.org/lyme/treatment-guideline.php

As for the testing, you can order your own test. You only have to find some place willing to draw the blood and follow the instructions for sending in the samples. Often hospitals are willing to do this.
www.igenex.com/ is the Lab you want to use. You can call and order the testing kit for free, then pay for it when it's sent in.

If you are in certain financial difficulties, you may qualify for help paying for this testing:

Lyme Tap: www.lymetap.com/

Eligibility Requirements:www.lymetap.com/lyme-disease-lab_tests

Keep asking questions and looking for your answers. We are here to help!!

I did contact llmd from referral site. Are the ones that told me they do I initial testing. Traditional test negative. Cholesterol way high. Pcp gave script for that & nail fungal issue. On probiotics. Will look again at ilads. Called igenix they said Dr. Must sign off so I'm confused about that. ?? Thanks for assistance so far.