Posted 9/19/2015 1:28 AM (GMT 0)
Hi fellow lyme friends,
I have had lyme disease since the late 1980's but did not realize that my treatment was ineffective.
(short term antibiotics). In the 90's I was having many problems such as severe headaches, carpal
tunnel surgery-which led to RSD a severe pain disorder. Many many other things which
Drs could not find help for me or diagnosis. When i got pregnant in 1997 a lot of
my problems (luckily) subsided, but never really went away. In 2013 I got another
tick bite on my stomach with a rash and GP ordered another short course of
antibiotics. (which at the time i didnt realize would be ineffective). Since then i have
been having chronic URI's, headaches, insomnia,joint pain that is here one day, somewhere
else the next., and the list could go on and on. I was attributing problems to this reason or that reason, not looking at the whole picture. The problems escalated that I couldn't breathe and catch my breath. So I have been going to cardio,pulmonology, ER... all stating nothing really wrong its panic attacks or asthma. But i knew it wasn't- it was something else, I asked GP to do lyme test it came back negative(western blot) it had bands 41 and 23. (which i now know are lyme specific.) Good luck finding a DR that wants to treat you if you say you are having lyme symptoms,I went to an ID last week and he said I didnt have Lyme I may have RA but his office partners would be too booked to see me, and he couldnt wait to get out the door. Unbelievable!!
Sorry for the long post, I see many of you are having these same issues.
I live in Ocean/Monmouth NJ and was wondering if you could refer me to a LLMD that takes insurance, as an OOP expense right now would be hard to handle right now.
Thanks to everyone for your insight and help!!