Posted 9/22/2015 2:30 PM (GMT 0)
Well that's what hit me... treating Andrew! Although there were days in the beginning I would have said "here take him"... a psychotic teen from lyme/bart is NEVER a good thing.
cd3764, thank you. I've not been able to handle being on here lately. Andrew is better and actually going to school - have not seen him doing work though. Trying to get him started on his Eagle project, but when he is home it's computer or bed.
His ticks are a lot worse with the stress, but he hides them in school, at least most of them. His mood is better, much better. Going to school seems to help with that. The isolation and depression were really getting to him. I think we both needed a break from each other.
We are 15 months in to treatment. He is on full rifampin (we boosted up and did full guns this summer to try to get him back to school), full doxy, with lots of detox, clean diet (that is harder going back to school and seeing other kids lunches), and herbs.
I guess time will tell. Dr. S here in Jersey shore area has been really good to us. I know many leave him, bash him and say he can't get them well, but even though it is slow and painful, we are getting there.
No more raging, personality getting back to the way it was. No more beating intrusive thoughts out of his head, brain fog is better.... we have been on the same regimen now since early July. I know Dr. S will change things and keep digging to get at the root and stop the ticks, but I'm so grateful for the progress we have made.
I've been really strict with it all - some breaks on the food as he gets tired of all the healthy eating... thanks to all of you for "cheat" advice, like the Tinkyada pasta! He is so pleased to have that occasionally. Otherwise, I stay the course, stay the protocol, spacing things out timing foods and treatmetents... it's pretty much all I've done for 15 months. I don't really leave him except to get food or a dr. visit or something another of my children need. I think this is the only way to really push hard so it's not years and years to get well. The condition he was in, we could not live that way and I would have had to commit him to an institution :(
Unreal. If I had not lived this, and seen it all with my own eyes, I don't know that I would have believed it. I can't believe what this disease and coinfections can do to peoples' lives. One stupid little, minute tick that we never even saw!!!!!!!
I hope he can reach full remission. MOSTLY I pray he stays on a regimen for life. I dread if he goes to college or moves out and does not stay on a maintenance protocol. I don't think I can do this again... I'm so broken and tired....
So, I may not be here and chiming in so much. I will give back when I can, it's just I've abandoned so many things for the past 2 years, I'm trying to put our lives back together, at least a little bit...
cd3764, hope you are getting better... those protocols are SO expensive - they'd better be worth it!