Kidney Stones?

Just wondering if anyone else has had trouble with kidney stones.

I've had them off and on for years. At one point, I had at least 5 in each kidney. I only seem to pass them from the right kidney. My first one was actually 3 fused together and I passed it. I was scheduled for surgery to remove it and ended up spending days in agony to finally pass it.

Since then I've passed too many to count. Last time I had one the Urologist write me a script for Sprix. The only thing that has ever taken away my "fibromyalgia" symptoms is kidney stones. So last time a very kind nurse gave me meds immediately. It was wonderful. The kidney pain left and the more "comfortable" fibromyalgia pain came back.

I never got to try Sprix and the script expired.

So here I sit with pain in my lower right back and Saturday we go on vacation. So I'm not sure what to do other than drink lots of water. If I go see a doc for a KUB or CT they are going to tell me I can't get on a plane.

Not fair. It's been a sucky summer. I haven't seen my daughter in 8 months and if we don't go I won't see her until December.

So besides wondering if other people have issues with Kidney Stones, I'm hoping that if you all take a few minutes and put positive feels that I pass the stone between Wednesday noon time and Thursday evening.

Sounds odd, but Wednesday at 10am I have my first LLMD visit and if I pass it by Thursday night I'll be good to go. It'll be a few days of discomfort after I pass it but nothing compared to my normal day.

Thanks all. Kim

I'm so sorry you're dealing with this!!

Has your doctor discussed diet that will help prevent the formation of kidney stones?

High oxalate foods are major contributors:

www.childrensdayton.org/cms/resource_library/nephrology_files/5f5dec8807c77c52/lithiasis__oxalate_and_diet.pdf

Unfortunately, so many of the "good things" we're supposed to eat can cause kidney stones if consumed in larger amounts.

Always a trade off....sigh

Thanks for the responses.

As far as diet goes, I don't eat or drink anything on the high oxalate list. It's a mystery to me and every urologist I've seen why I actually form stones. So there is something definitely related to Fibromyalgia/Lyme/everything else they cause, even though I've been told that's not true.

At this point, they do seem to bother me every couple of years to the point that I need a CT scan. Most times, I just rub my back for a few days to a week and don't tell anyone. It's likely that I feel that pain when the stone is leaving the kidney because of course they scratch everything up on the way down.

A funny story though, early June in 2007, my husband had a stone and had to go for surgery. I was waiting in the family lounge for the doctor but he wasn't my doctor because the practice I started with had closed. So the doctor came out to talk to me and we got into a conversation about it because I said I have stones too. They scheduled my husband pretty fast because we had plans for a vacation that had been in the making for a year. That and my husband travels constantly for work.

So we were going on the first Disney Mediteranian (can't spell that today) cruise. It was sailing on our daughter's 15th birthday. We are vacation club members and used 3 years worth of vacation club plus paid cash for the kids. The doctor asked me about the trip. We flew into Barcelona, spent three days then went to Sicily, Naples/Pompeii, Rome, Florence/Pisa, Monaco and Nice.

The doctor asked me about my stones and if they were a problem. He then pulled out his pad and wrote me a script and said you don't want to be at 25,000 feet and have pain. It would require the pilot to land at the nearest airport because it could be a heart attack, at least in the flight crew's view. He also said air travel had a nasty way of causing problems if you have stones.

It was a wonderful trip and the stones weren't an issue but the kindness of that conversation will always stayed with me.

Just after I posted this, another thread popped to the top about kidney stones. Funny how a 5 month old thread pops up just when you need it. It had lots of info. I don't know yet if the ideas mentioned will work but they are worth a try. Although, if I can find the products they suggested I'll just bring them a long in case.

But since it's a full moon Sunday (thanks Traveler), who knows. Better safe than sorry.

Thanks all. Kim

Hi gkamom,

Sorry the links didn't work... I don't know what happened as they worked when I first posted then didn't??

Anyway, I don't believe in miracle cures for anything.. But I do believe in trying alternative medicine instead of running to have surgery (unless it's an emergency)... That's why I do liver/gallbladder cleanses at least twice a year to keep my organs running smoothly as well as for preventive medicine.

Also I happened to take a peek at Buhner's site for kidney stones and this is what he wrote in response to someone who asked about kidney stones while having lyme:

You can try nettle leaf 1000 mg daily, magnesium ONLY – drop the calcium – 600 mg daily, B6 25 mg daily, vitamin k 2 mg daily, and daily consumption of a tea (at least 24 ounces per day) made from dandelion leaf, couch grass (agropyron), beggars lice (desmodium), java tea (orthosiphon), golden rod (solidago), and peppermint leaf. Mix them in equal parts (e.g. one ounce of each, two ounces of each, and so on). Add ¼ cup of the mix to a quart of hot water, cover and let steep overnight. Drink the next day. It may be hard to find some of these herbs but some Google searching can turn them up. If you can’t find all of them, use what you do find. The java tea is one of the most essential, don’t skip it.

Denise

Deejavu, thanks for the info. I will add it to the list of all the things I've learned so far. Too many things to do at once. in addition, life is very difficult right now and I'm treading water on the Lyme. I wasn't being critical about the links, just wanted you to know for future reference.

Georgia Hunter, I find all that interesting. Previously, I was using the guaifenisen protocol. Eventually it plateaued and I got no improvement. I think now that it was most likely that the improvement was because I was allergic to salicylates and/or the perfumes/preservatives/etc.

So the theory behind the Guai protocol is that the body has trouble getting rid of phosphates and guai plugs into the same receptors in the kidneys that aspirin (salicylates) and allows the body to expel excess phosphates through the kidneys.

Sounds pretty familiar to what you are saying. More things to investigate. Also would explain why I eat virtually no foods that contain oxalates but have terrible kidney stones.

Thanks all,
I appreciate that you took the time to pass on the info.

Have a good day,
Kim

gkamom said...
Deejavu, thanks for the info. I will add it to the list of all the things I've learned so far. Too many things to do at once. in addition, life is very difficult right now and I'm treading water on the Lyme. I wasn't being critical about the links, just wanted you to know for future reference.

Georgia Hunter, I find all that interesting. Previously, I was using the guaifenisen protocol. Eventually it plateaued and I got no improvement. I think now that it was most likely that the improvement was because I was allergic to salicylates and/or the perfumes/preservatives/etc.

So the theory behind the Guai protocol is that the body has trouble getting rid of phosphates and guai plugs into the same receptors in the kidneys that aspirin (salicylates) and allows the body to expel excess phosphates through the kidneys.

Sounds pretty familiar to what you are saying. More things to investigate. Also would explain why I eat virtually no foods that contain oxalates but have terrible kidney stones.

Thanks all,
I appreciate that you took the time to pass on the info.

Have a good day,
Kim

I am not familiar with any of the protocols, I just studied the physiology of the kidneys and hypothesized on what could be going wrong. Then I ate and drank a certain way to see if I got results. I did.

gkamom said...
Georgia Hunter,

I was able to get an appointment with the Urology Practice I saw before. They will verify that it's a stone, which it is. But last time they gave me a pain med that target kidney pain via a nasal spray. The idea is that I won't need to go to the emergency room. The stone will pass. They always do. I have so much going on that diet hasn't really risen to the top of the priority list. But this is more info that will help eventually. Thanks.
The nasal spray for pain was most likely Stadol and I haven't seen that in years. Good luck, you can beat them.
Kim