HealingWell
Search Close Search
☰

Help please

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/6/2015 7:41 PM (GMT 0)
I am so confused right now. I have a present band of 23 on IGG and IGM.

1. Does this mean I have chronic Lyme, since IGG is present also?

2. Is band 23 only specific to Lyme? Any viruses that could cause this positive?

I am asking because I'm hearing very mixed responses. Two doctors are telling me I do not have Lyme, but some forums are saying I do.

An LLMD is not an option right now.

Can someone with experience please answer to the best for their knowledge? Thank you for your time
Posted 10/6/2015 7:59 PM (GMT 0)
No, there is nothing that can interact and make band 23 positive other than Lyme - that's why it's called a Lyme specific band. It will only react to the antibodies that are produced by your body when it tries to fight Lyme disease.

Yes, when a person has IgG bands present, it means that they are fighting a longer standing infection.

Talking to any doctors that are not properly trained, such as an LLMD, will only confuse the issues more.

And here's the thing - they are not supposed to treat based on these tests as they are for surveillance only!! Even the CDC recognizes this: "Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks. Laboratory testing is helpful if used correctly and performed with validated methods."

www.cdc.gov/lyme/
Posted 10/6/2015 8:01 PM (GMT 0)
Thanks. If I've been exposed, is there anyway to tell how long ago o was exposed? 23 is IGG and IGM present, however levels are under .80.........is there any possible chance this isn't Lyme? Does it sound like maybe I had it a while ago and it's reactivated? I just want to understand and get some clearer answers. Thank you for responding to me
Posted 10/6/2015 8:10 PM (GMT 0)
No, you have Lyme if that band is present. There is no way to know how long you have had it other than by when symptoms started.
Posted 10/6/2015 8:19 PM (GMT 0)
Do you have symptoms? That's the most telling information since your lab results are coming back positive for Lyme.
Posted 10/6/2015 8:25 PM (GMT 0)
I'm 2010 tinnitus started (normal brain MRI), unexplained fatigue just feeling lethargic, tingling in arm (normal ekg/very tight muscles, which deep massage helps relieve), sore eyes(normal eye exam) sensitive to bright light and loud sound, TMJ, inner ear mild vertigo (ent said Eustachian tube dysfunction) this all happened between 2010-2012. All labs normal, I have struggled with an anxiety disorder for 15 years, so that is what everything has been "chalked up to be". Don't ever remember a rash. My symptoms come in cycles/flares(?). However, I got stung badly by a wasp 3 months ago and it sent my symtpms into overdrive. I have not felt the slighted of normal since this past June after I got stung. After I got stung it swole up really badly. I've read wasps can spread Lyme. But the confusing part is I've had these symptoms for 5 years off and on. It's just ever since the wasp thing it's been consistent/daily
Posted 10/6/2015 8:29 PM (GMT 0)
The wasp sting is what sent your immune system into action to bring up the symptoms on a daily basis. There are some that are doing bee sting therapy and are finding that it is healing them from these infections because it ramps up the immune system to the point to effectively heal them.

You have likely had Lyme for at least 5 years since that's how long you have had symptoms.
Posted 10/6/2015 8:34 PM (GMT 0)
Wow. I appreciate you guys responses. I'm just trying to understand all the new info. Maybe wasp sting was a blessing in disguise to resurface this and bring it to my attention. I was actually stung a total of 3 times this summer lol 😓

So Lyme, huh? Smh. I knew this wasn't due to anxiety. In fact it's all the oddball symptoms "without cause" giving me anxiety. Not feeling well isn't fun
Posted 10/6/2015 11:10 PM (GMT 0)
I've been having a MAJOR flare-up ever since I was hospitalized Sept. 7th for Salmonella. My sister who was stung by a wasp which resulted in her entire side of face to swell-she's been having a flare-up of symptoms.

According to my RN sis who's had Lyme since '08', people who have 2 or more of the herpes viruses have suppressed immune systems(similar to what we see in AIDS), which means it's that much more taxing on the immune to fight off everything else!

With that said, Im equally confused about whether Lyme is gone, as my 2nd Lyme test revealed IgG & IgM, but 3rd test, after treatment revealed negative.

I still have symptoms, but I also have several herpes viruses, chlamydophila p., Mycoplasma, and heavy metal toxicity-those WITHOUT Lyme can cause my continued illness.

It's VERY SELDOM ever just Lyme...

M.S.I.D.S= multiple systemic infectious disease
Posted 10/6/2015 11:15 PM (GMT 0)
Oh sorry I forgot to say that my 2nd Lyme test was only 1* on one band, and I was STILL treated for Lyme...based on that test, my history of time in the woods and bug bites(no rash no tick seen), and based on symptoms past AND present!!!
Posted 10/7/2015 1:25 AM (GMT 0)
Thanks for the response @sweetpeaisme how can you tell if you have herpes virus? I get my yearly pap's and have had a complete STD workup and all was negative. This sucks. Do you take anything? What do you find triggers your flare ups? Mine seems to be stress or allergies
Posted 10/7/2015 1:49 PM (GMT 0)
Practically everyone in the US has a herpes virus of one type or another. The EBV virus (Epstein-Barr Virus) which is also known as HHV4 (Human Herpes Virus #4 - there's 8 of them I believe) is so prevalent that 97% of the American population has it. So it's safe to assume we have them, but it's a matter of if they are reactivated or in remission. Many of us here have the EBV virus reactivate while we are dealing with these infections, and others have more than one virus reactivate.

Do you have any symptoms of a herpes virus?

Stress is a major player in reactivating viruses and in increasing our symptoms of these infections because stress lowers the immune function, so these things have a "free rein" to grow and cause more issues in the body.
Posted 10/7/2015 2:07 PM (GMT 0)
I do have EBV from when I had mono 13 years ago. I didn't realize that's a herpes virus. So yes, EBV for me and I also had chicken pox and fifths disease as a child as well
Posted 10/7/2015 4:26 PM (GMT 0)
Please understand that those viruses will not have interfered with any of your Lyme testing. As I and others have said, band 23 is specific for Lyme, meaning Lyme is the only thing that can make it test as positive.

You may have to take antiviral meds or herbs in order to find relief from any symptoms that may be occurring due to your lowered immune response from having Lyme disease as it can cause a reactivation of these things - so just watch for symptoms of these things.
Posted 10/10/2015 7:40 AM (GMT 0)
Also good to know is that the herpes virus (HHV 6) that causes Fifths or Rosiola; according to the cdc.gov, 100% of the American population has the antibodies. It's the one herpes virus that's got its own 'society' of research due to its connection to AIDS. They've found that HHV 6 actually spurs HIV on to become AIDS....So what does HHV6 do when reactivated in those negative for HIV?

It's also been linked to Chronic fatigue immune dysfunction, M.S., and some cancers. There's an official website for HHV6, where you can read the scientific studies done.

Whenever my immune system becomes over burdened, such as when I got salmonella, my HSV 1&2, & shingles flare up-all due to the HHV6!!! So I'm back on viral again!

Ugh!
✚ New Topic ✚ Reply