Has anyone lyme with symptoms of autonomic dysregulation

Dear lymies. I have been diagnosed with late stage lyme disease by dr DML in Brussels , Belgium.I also have unusual symptoms that start every day at 9am to last until 10 pm when they usually (but not always) subside around that time. THe symptoms that wax and wane but usualy always present are extreme nervousness not responding to benzo 's or a feeling of utter malaise in others words feeling unwell . When i feel unwell the nervousness is gone and vice versa
.I also have a 3rd symptoms which is brainfog
I believe (so does my dr)that these are infact symptoms of dysautonomia.I do not have POTS just this 3symptoms
Is there anyone out there who might have similar syptoms or other dysautonomia symtoms and very important have they dissapeared with treatment of lyme.
I am also trying acupunncture (been 10 times, but no relief yet)since acupuncture is believed to balance the autonomous nervous system.
I hope somone can help me or share his or her experience
Gratefully yours
Jack

i am getting acupuncture and chinsese herbs as well as minocycline 100mg a day? i also take 2 x reishi tablets for detox as welle 2x reishi tea
in addition it take bubur 4x 10 dr and pinella 4x 10 dr a day
cd3764 what nerve problems did you have can you specify?
thx in advance jack

jackdg

You might want to consider adding a few things to your detox protocol....and continue to add to it. It's really best to support the organs involved with detoxification.

For example, taking milk thistle will help your liver. Drinking lots of water (some with lemon) will help flush the kidneys.

Dry skin brushing before your shower/bath helps move lymph fluid as does a cold rinse at the end of the shower/bath. Red Root can also help.

Taking a binder can be really helpful. I regret not starting activated charcoal sooner.

The site I'm linking below has quite the comprehensive list of detox ideas:

www.tiredoflyme.com/detox-methods.html

And, to answer your question about my nerve problems:

I developed urinary urgency when on abx (I figured it was part of herxing). It got much better as I continued with treatment and I might have an isolated instance now as part of a herx.

I also developed a bunch of different manifestations of peripheral neuropathy: numbness, tingling, stinging sensations, internal vibrations that "improved" and became poking and/or tapping sensations. Thankfully, all of the peripheral neuropathy symptoms I've had have improved with treatment...very slowly.