Posted 10/16/2015 2:59 PM (GMT 0)
My teen daughter has been quite ill for several years. Her symptoms include frequent illness (multiple flus, strep, c-diff twice, pneumonia, EBV, CMV, and frequent severe headaches over the past year). She has positive ANA titers (almost always 1:320 when we have them checked), chronic malaise, and anxiety. We saw a rheumatologist at Mayo Clinic who ruled out Lupus but diagnosed her with Fibromyalgia and CFS. He said he feels that her "true" disease will affirmatively show itself over next 4-5 years. We had more blood drawn last week and the positive ANA was there, but she was also, finally, checked for Lyme Disease (she also found out she has high cholesterol). The LYME AB SCREEN had a 2.71 index. Her LYME DISEASE AB (IGG) BLOT was negative. Her 41 KD (IGG) Band was REACTIVE as well as her 58 KD (IGG) BAND was REACTIVE. Her LYME DISEASE AB IGM BLOT WAS NEGATIVE. We have been referred to a Disease Specialist in our area due to the 2 showing positive LYME and her overall chronic malaise. I would like to find LLMD in GA but cannot find one and had no idea of the political mess this disease is the center of!
I am at my wits watching my child go through so much and not having any answers for her. Her always feeling bad is causing stress and anxiety for her. This is supposed to be the best times of her life and she can't ever feel well enough to even attend bon-fires and sleepovers with her friends.
Thank you in advance!!