Posted 10/21/2015 1:31 AM (GMT 0)
Girlie, my posts in no way are meant to minimilze yours or anyone else's journey. It is hell. I'm going through a lot of stuff right now and so I'm very cranky. So if my posts came out sounding whiny I apologize.
It is unimaginable.
I have been on disability for 12 years with my diagnosis of Fibromyalgia. At the time I stopped working, I was being seen at Duke Med Rheumatology Clinic. You expect them to be the best resource possible in the area, but what they do is let you train their residents and then dump you when you are no longer of use to them. Now I know that one of the researchers there writes lots of papers denying that Lyme exists so they wouldn't dare diagnosis anyone with Lyme or even introduce the idea that it was possible.
My son was three when I stopped working which is unimaginable too. I know I passed it on to him we are just waiting to do the test until he has been on the OLE long enough to provoke a response since the Lyme has had plenty of time to hide.
Truly the intent of my post was that there seems to be a whole group of people missing from the patient population on the forum. I'm very much an introvert but I have always talked up things like mine and my kids healthcare when I find something in common with complete strangers. I can't pay back the people who have helped me but I can pay it forward. I think i was kind of wondering out loud.
I have very much appreciated the reply you have made to my posts. You guys have all helped so much.
Sarah, I've read lots of your posts and I understand that you get what I'm saying. Yeah, it would be nice if we could all get well in a year or even two. We'll just have to work towards helping as many people as we can.
Thanks all and I hope everyone has a good day,
Kim