Hi Cbelan,
Welcome!! I'm so glad you chose to join our community!!
If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.
Unfortunately, Doxy alone encourages the bacteria to go into 'hiding' - into the cystic form and into biofilms - to wait until the coast is clear again for them to come out. Then most any stress will lower the immune system well enough that the bacteria will come out and start replicating again.
And your doctor is wrong about
the muscle twitching. It happens throughout an infection if you are going to have it - or it can appear at any time during the infection. It's definitely not only a symptom of early infection since I had it all the way through my 40 years of living with these infections.
You most definitely need to see a LLMD in order to get the treatment that you need to get past this.
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained LLMD in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
location.
You can start a new thread titled something like "Looking for LLMD in the
(insert the nearest larger city & state) area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can email the Tick-Borne Disease Alliance at
[url]
[email protected] for LLMD referrals and you can go to
tbdalliance.org to learn more about
these infections.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/ You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
http://www.ilads.org/lyme/treatment-guideline.php