Lyme Sleep Jerks

Does anyone here get sleep jerks? I get terrible bouts of them. I have just started abx with a LLMD but want to know if anyone else has this symptom.

I would twitch at night even on sleep meds. It was enough to wake my husband all the time. If it was strong enough (and the strength varies), you call it jerking.

It is so routine of a symptoms that I now sleep on an oversized chair I have in the bedroom (kind of a chaise lounge) because otherwise neither of would get sleep.

Kim

What's causing these is that we have (or in my case, had) Neuro Lyme. The myelin sheath that covers and protects the nerves (which carry the signals to the muscles) are being attacked and damaged so that the nerves are getting and sending out mixed messages. Think of a corroded telephone line(old fashioned land line), and the static that would be heard if someone tried using it.

Once we get through enough treatment to stop the attack on our nervous system, the myelin sheath heals and we no longer have these episodes/issues.

Tennessee65, are you taking anything for sleep? You won't heal without sleep. It's not just a matter of rest. When you sleep, your body produces growth hormone even as an adult.

As an adult, the growth hormone is what allows our body to repair it self. So even if you kill off Lyme&co, you'll be left with a body that has to repair itself.

I don't know what herbals are available since I us prescription meds. I take Ambien and yes I go at times walk and talk without remembering doing it. I don't think I eat or drive. I spoke with someone who had a theory that you wouldn't do anything while on the drug that you wouldn't do normally. So that means I'm not likely to drive.

I also take Soma, it's a muscle relaxant but I take it 4x daily so one dose is near bedtime.

The other thing I take is Neurontin (gabapentin) which for some people makes it easier to stay asleep when you get to stage 4. I never have a problem falling asleep. I just wake often due to pain or twitching or whatever. Some people don't due well on it but I've never had a problem.

So if you look at your child and think they grew over night. They definitely did. LOL

Kim

When trying to fall asleep - my right leg would kick up...that was the only part of my body.
I've been on antibiotics for about 12-13 months now and I realized that it stopped about a month ago.

Hang in there - it gets better with treatment.

Now if the vibrations, shivers and nerve pain would just go away...I'd be a happy lady.

Oh, and the twitching is about 80-90% better now! too, although it got a bit worse (not as bad as it was initially though) when I started full dose of Rifampin...that lasted several weeks...and I've just realized that the past few days it's gotten better again.