Help~~ 11 yr. old story from Michigan

We have been detoxing since August. Before we found a Lyme Doctor we were lucky to find a doctor who uses a lot of supplements and is very knowledgeable. She drinks 2 liters of water a day, uses charcoal twice daily. Drinks green tea and dandelion tea daily and soaks in Epsom salt 1-2 times daily. We were put on a great probiotic in June and that has eliminated her constipation completely. Her first symptoms were the migraines, vertigo and neck pain. We have got the migraines under control but the vertigo is still constant. We were told that had a lot to do with the inflammation. We are taking stuff for the inflammation. I know this is a long battle, but it breaks my heart to see my daughter who is a senior go from dancing 20 hours a week to hardly being able to walk. Are there any herbs I can add to help with the week legs? We take magnesium.

I will look into the MTHFR. If there are gene mutations, is there something different you can do? I truly believe she is herxing really bad. This is the one week off between her antibiotics. She has been gluten free since June along with dairy and processed foods. She was on a strict anti-inflammatory diets for several months but lost too much weight. She is a very healthy eater which is good for us especially now. I will look into the Yogi brand detox teas.

Frazzledmom~~ I forgot to mention you should check into a BioMatt. It will help to relieve inflammation and make it easier for your daughter to walk. I read people get great results when using it. I plan on getting one for my daughter.

Frazzledmom:

Yes, rowingmom is great, she had helped me a lot, too.

about your daughter, I wish I had some suggestions. My son's legs were also week. This resolved with abx treatment. His legs were so weak, that he used to fall all the time. When it was bad, we had to carry him because he couldn't make it even to the bathroom on his own. When he was ok, he would walk on his own and then over the sudden, he would drop to the ground, so I constantly had to watch him. I wish I could be of more help, but I can't pinpoint what helped. He just stopped falling one day, about 6 months ago, shortly after abx. were initiated.

Start a new thread and say something like "rowingmom please help with child ... years old". She shows up here quite often and answers most moms even if the threads are not directed to her.

Yes, my son used to crawl to the bathroom as well. And up the steps to go to his bedroom. We do the detox a little different. We don't use activated charcoal because many docs advise not to use it with abx and dr. Cowden says not to use it with his herbal protocol either. There are members here that did it successfully but woke up in the middle of the night to take it, so it would be several hours from abx. Otherwise it pulls the abx and/or herbals as well, and than the treatment doesn't work as effectively.

So for detox we use Chlorella which works different but it is still a binder. It is also a superfood. We also use horse tail tea which has silica in it and it does work. And also Vitamin C which is a potion that I make in a liposomal form, which is better. I believe this 3 methods with the abx helped my son stop falling.

The baths didn't work very well for us. The kids used to get very ill after a couple of minutes and our water bill was like $80 higher with nothing to show for. So I used that money to buy other things as described above and that actually worked for us.

Yes, I do have 3 children affected by this and I was affected as well. No we didn't do the sauna because I think the kids won't use it--they hate being hot.

My son is doing much better. I usually speak about him here the most because he is the one that got the sickest from all of us. He started to have grand mal seizures. We did oil pulling for a while too, but got lazy and stopped. It's good to get the bacteria out of the mouth and teeth.

We also used coconut oil for my son when he got so ill that he could not speak. It gave him his energy back. I also used to give him a full body massage with organic coconut oil. I think that helped too. Also, for pain we used propolis. So, I did things differently than most people here. You have to listen to everyone and find something that works for HER. Everyone is different and everything works differently for all of us. I do not think is one size fits all when it comes to lyme.

I've learned a lot by reading and listening to Dr. Klinghardt's videos on youtube. I am a big fan of his and I listened to all his videos and read all his papers. He uses Chlorella, the Liposomal Vitamin C, the horsetail tea, and the propolis. So, I've spent thousands of hours on his website and listened to his videos and other sources talking about these products and put things together from pieces and then I just started to use them. Vit C potion (I call it that because I make it myself) is like a liquid solution of vitamin c powder and sunflour lecithin. It's good stuff. Keeps viruses at bay, kills bacteria, and detoxes. Some people use it here, but not my potion, they buy it. There are many videos on youtube about it's benefits. It is believed to be as effective as Vitamin C IV. One doc talks about how vit C iv can save someone from snake poison bites, so the liposomal vit C is as close as it gets. The reason I know it works is because regular vit C in that amount will give you lose stools. This does not. It is believed to go to the cell level, so if it cleans the cells too, I figure that is very good. It is said it is absorbed differently than regular vit C. It penetrates better.

But, you should do your own research, as I did. No one here does this. It worked for us and my mom, who used to get up 10 times over night to go to the bathroom. She has kidney problems. She no longer wakes up to go to the bathroom overnight. She has a bacterial infection in her urine--most likely Lyme. Her oncologist showed it to us under the microscope. She got a swollen knee and lyme symptoms, but he never tested her for Lyme. He gave her cipro on and off for a year and she got well except the going to the bathroom over night stuff. Now she is fine. I do believe my potion (well, not really mine, I didn't invent it) clears her kidneys of some of the bacteria.

The reason I know horse tail tea works is because my daughter (6 yrs old) started to wet her bed this year, after she got sick from a tick bite. Dr. K uses the horse tail tea to detox the kidneys. She won't take my potion because she hates the taste, but she did the horsetail tea for a while. She no longer wets her bed. So, trial and error, that's how I learned. I used products that I researched for 100's of hours and I felt are save for my children, since the doctors failed to help them. I do have a healthy child too, by the way. And we are all doing so much better, it is now hard to believe we were so ill at one point.

Post Edited (Simela1) : 11/3/2015 10:06:28 PM (GMT-7)

Smilela1~~

WOW this is such a great threat with so much valuable information!

Once again you have mentioned supplements I have never heard of ~ chlorella & horse tale. I am going to incorporate both of these. I love that chlorella is from algae. I am a big fan of algae! I have seen miracles come from many different uses of it.

Today, I plan to start researching Dr. K and watching his videos. It sounds like your son and my daughter are very similar in their symptoms. Would you mind if I ask you to email me his exact protocol?

Between you, rowingmom, and traveler I am waking up each day more confident and ready to conquer this.

Are there any of these herbs that will interact with antibiotics in a negative way?

Rowingmom-- thanks for all the good information. We have checked my daughter for PANS/PANDAS as well and are waiting for the results. How long did it take you to get results for the MTHFR test? If that test comes back positive what do you do? Change how you detox or what? I know that sounds crazy. Our dr is treating my daughter for confections but we do not know specifically which ones she has. Are there protocols in Buhner's book that could be good for the unknown?

My daughter is now not only getting the migraines, but the last couple of days complaining of neck hurting, throbbing in her eye, as well as recently complaining when she turns her head everything is blurry? It's starting to worry me. Has anyone child experienced this? If yes any recommendations? Her doctor appointment is not until next week and it is over two hours away.

BC: YES to all the symptoms you describe. Lower back pain and neck pain are the most stubborn remaining symptoms my son is still dealing with but he's had all of the ones you describe. Most of them are gone now.

FM:
I do not have any suggestions, nothing worked for us either for neck pain and lower back pain... The migraines are now just headaches and they are not every day any more.

The other thing to keep in mind is that Lyme can cause meningitis type symptoms. These can be quite scary and painful - even as an adult I cringed when I realized one of these was on the way! I would almost always end up with a migraine during this time, and sometimes it was a 3 or 4 day migraine because of the tension in my neck muscles.

Heat or even ice may help, but won't be enough on it's own. Massage, dark sunglasses or certain colors of tinted glasses can be of help as FrazzledMom said.

Being in a dark, quiet room can often be the only way to deal with it. Sometimes it was easier if I had soft music playing to avoid going from silence to a louder noise that was unavoidable.

Get creative and be open to whatever they think may help. It's just a really rough patch that they are going through right now. This is generally when I was very, very grateful that I knew the symptoms would be changing in a short time!

If these symptoms don't change soon, then it's time to either get them evaluated for things like meningitis, or you can assume that it has to do with their body not being able to detox well enough. I used to get what can only be called a "toxic headache", as it literally felt like my brain was toxic - which it was! I needed to get my toxin load lower in my body for it to go away.

Just some thoughts.