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Rifampin and sleep issues....anyone?

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Posted 11/9/2015 5:45 PM (GMT 0)
To treat Bartonella, I am on Mino and Rifampin. At the two month mark of rifampin full dose.

I have had some bad herxes - around the 6-7 week mark...but those symptoms are getting better.

Overall - since Rifampin, my sleep isn't quite as good...more wake-ups...and not being able to sleep in as late in the morning. But, it's been okay - just considered it to be a side effect of Rifampin.

But last night I had that feeling of panic, just as I was drifting off. Then in the early morning - I woke up with anxiety....took me awhile, but I got back to sleep.

I had those sleep issues over a year and a half ago pre-diagnosis.

What are your thoughts - herx...or symptoms returning?
I'm thinking maybe I should switch my mino for biaxin.
Posted 11/9/2015 5:47 PM (GMT 0)
Just wanted to add - I have been on the minocycline since mid-July. (and added Rifampin in August)



Edited to read 'Rifampin' (not biaxin).
Posted 11/9/2015 7:19 PM (GMT 0)
I think you just got the bart bugs pissed off and they are fighting back. Pretty stubborn buggers they are.

I have no problems falling asleep. But 2:30 - 3:00 am is wake-up time for me... ready for work or not. I can return to deep sleep again by 7am, but only on weekends if I want to keep a job.
Posted 11/9/2015 7:33 PM (GMT 0)
Thanks Tickbite - I just thought since I went through a couple bad herxes at the 6-7 week mark - that now to have these issues at night - is a bit odd. I keep reading people say two months - and then they started to feel better...so here I am at the two months mark...I guess I'm too impatient.

I was hoping at the two month mark - I would be 'turning the corner' on this bart crap.

I have been falling asleep - no problem - just usually have a couple wake-ups during the night and fall back asleep right away.
But, this panic as I'm drifting off - that hasn't happened in about a year and a half.
Posted 11/9/2015 7:35 PM (GMT 0)
I did take my Rifampin a little late last night. Maybe that had some effect on my sleep.

I usually take my a.m. dose between 8:00 and 9:00
and my evening dose between 7:00 and 8:00...but it 'slipped my mind' last night - and I ended up taking at around 10:00 p.m. and going to bed at 11:30.

It's so odd - the past few days - I've had less 'sweats' during the day - so improvement there...but back-slide in sleep.
Posted 11/9/2015 7:38 PM (GMT 0)
I would guess that it is sort of a herx bringing up the bacteria and causing new issues. If the sleep problems are bothering you too much, you can try another drug. Otherwise I don't think it is abnormal.
Posted 11/9/2015 8:04 PM (GMT 0)
Thanks Sarah - I can 'take' the sleep issues - if they don't mean I'm backsliding.

I guess I need to give it more time.

I did have one good day about a week ago. The best I've felt in a long time - I mean many months.
Posted 11/9/2015 8:07 PM (GMT 0)
Hooray!
Posted 11/9/2015 9:25 PM (GMT 0)
yah - need to celebrate the good ones!
Posted 11/9/2015 9:33 PM (GMT 0)
Something to consider is that you've killed off a good amount of bartonella and either lyme or babesia symptoms are surfacing. I know for me, sleep issues and panic/anxiety issues were caused by babesia and they only really started coming out after I had treated bartonella for a few months.
Posted 11/9/2015 10:05 PM (GMT 0)
So, if I treated lyme for 9 1/2 months - but Bart was my 'dominant' infection - after bart, do I have to go back and treat lyme again...even though I'm on Mino...(and I read that Rif has some effect on lyme...not sure if that's true)

I did have the anxiety and panic before diagnosis...but it got better....

My Dr. and I don't think I have Babesia...but who knows?
Posted 11/11/2015 3:41 PM (GMT 0)
Hi,

I've been on rifamptin for Bart for a while now and, yes, my insomnia is worse. It kinda comes and goes but my anxiety levels have gotten much better since I began treatement. Bart is a stubborn little bugger and does strange things as it dies off. It does help me to take a detox bath right before bed and drink a lot of green tea to get rid of the nasty die off.
Posted 11/11/2015 4:21 PM (GMT 0)
Hi Daisy's mom - How long have you been on the Rifampin?

I've been on it for a couple of months now...and I actually think I felt better a month ago than I do now.

Are you taking biaxin with it?
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