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Sooo confused! PLEASE help

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Posted 11/27/2015 9:11 PM (GMT 0)
Just when I think I may have figured something out of course something new happens and puts me right back in the "hmmm, ummmm, what" category. Short story. Started getting sick in 2011. Finally diagnosed clinically and through labs in August 2015. I have Lyme, Bartonella, Babesia, Ehrlichia and Filariasis.

My first month I was on Rifampin and Zythromax. Second month was Rifamin, Zytromax, Plaquenil and Alinia {P&A added for the filariasis}. At the end of the 2nd month I was starting to feel a TINY bit of a difference. TEENY, TINY but a difference non the less. At my appointment my LLMD and I decided to stop the Zythromax because I was having diarrhea at least 4x a day everyday and he felt that was probably was what causing it.

Within 4 days of stopping the Zithromax the burning in my feet, chest and head came back. For the next 3.5 weeks I was back in a living hell! The burning in my feet would not let up, I spent so many days not able to walk because the soles of my feet hurt so bad {different from the burning} and my brain function and emotions were getting like they were before treatment had ever started. I felt like Bart was taking its hold on me back because the Zithromax had been stopped. At my monthly appointment last week I discussed everything with my doctor and he also felt like it was and an agreement to re~add the Zithromax was made. At that time I finishing my 3rd month of treatment. This is where I felt had finally figured something out. BUT.... BUT I didn't pick up the Zithromax for 3 days and in that time I started to feel "better" again. I use the word "better" very loosely lol. This is where I go back to the "hmmmm, ummmm, what" thinking. If stopping the Zithromax made me feel soooo much worse for 3.5 weeks why did I start to magically feel better the last few days before I had restarted it?? I don't want to add medicine if i don't have to and I was positive I did have to restart it but now feeling better makes me wonder do I need it. IF this post is making any sense the answer may be clear to some of you but the answer is not clear to me. ANY thoughts/opinions on what is going on will be greatly appreciated.
Posted 11/27/2015 9:51 PM (GMT 0)
I am not very good with the antibiotic thing, I'm so sorry.

I do know that if I felt better I sure as heck would not take another antibiotic.

Everyone is still eating turkey and they will come around and answer this a lot better than me.

This will just bump you up to the top of the list.

~Annette
Posted 11/27/2015 10:15 PM (GMT 0)
Is the feeling better coinciding with your cycle or mid cycle? I'm trying to come up with reasons. Did your LLMD make any supplement changes or detox changes that could be the reason you are feeling better?
Posted 11/28/2015 9:35 AM (GMT 0)

~PixieDust~ said...
If stopping the Zithromax made me feel soooo much worse for 3.5 weeks why did I start to magically feel better the last few days before I had restarted it??.

Lyme normally cycles every month, you have symptoms that come and go. It does not matter if you take antibiotics/herbals or not, your immune system does kill the bacteria on its own. It just does not do that too well, so the bacteria persists. When the bacteria dies you feel worse.

While it's useful to keep a journal of your symptoms, it is pointless to try to understand what's going on, or to associate what you do to some of the effects on short term. It is very misleading, because you will have one of these flares once a month no matter what, and if you happen to change your medication the week before, add some herb, or do any change, you will blame your symptoms change on it.

All you can do is, if you have positive lyme tests, is to take your meds and be patient. If you don't take high dose probiotics you will have major gut issues because your flora will be destroyed by the ABX, you will start getting diarrhea and then you need to stop the medication and start over again.

By the way if your diarrhea does not get resolved after stopping ABX in a few days, please go check your stool for c. diff. This is a very serious infection that gets triggered by the use of antibiotics and it is much more dangerous than lyme itself.

Post Edited (mpostelnicu) : 11/28/2015 2:53:10 AM (GMT-7)

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