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Is this more proof that I don't have active Lyme?

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Posted 12/9/2015 5:20 PM (GMT 0)
Hi guys, so I'm thinking after looking at all the data and symptoms maybe I dont have active Lyme; I think I just have Babesia and Bart or something similar.

I got a serum metals test recently, and my Manganese was HIGH. Triple the end of the normal range. 2.8 ug/L.

Ive read Manganese is supposed to be LOW, as Lyme uses it up a lot.

Thoughts?

And here's my longer list of evidence of no active Lyme:

Samento and Banderol huge doses did nothing
1 week of Minocycline and Tindamax [Lyme hard hitters] did nothing
Advanced Lab Services culture- negative
No bad fatigue, no pain anywhere, no neuro or brain issues at all, basically no classic Lyme symptoms
A few positive Igenex Lyme bands yes- but that doesn't prove active infection.
Posted 12/9/2015 5:41 PM (GMT 0)
I know Magnesium gets used up by Lyme....but wasn't aware that manganese does, also.

How long did you try the Samento and Banderol? If it was only a few days...or a week, that wouldn't be long enough. And, not everyone responds to all treatments.

"1 week of Minocycline and Tindamax [Lyme hard hitters] did nothing"

One week isn't long enough...it can take several weeks before you get any response - either a herx, or feeling some improvement.

"Advanced Lab Services culture- negative"

We can't rely on testing...just not good enough. Is that test like the PCR - where they take a sample of blood and look for DNA? If so, it's not reliable, as the small sample taken just might not happen to have the bacteria in it.

You listed the symptoms you don't have - but what ones DO you have?

I never had flu-like symptoms, or fatigue...so I kept dismissing getting tested for Lyme...but I have many other symptoms.
Posted 12/9/2015 5:48 PM (GMT 0)
I did samento and banderol for a month, 90 drops a day each! Was like drinking water.

My only "lyme" symptoms are muscles twitches and sleep problems, but those can be explained by Bart...
Posted 12/9/2015 5:53 PM (GMT 0)
There are people who don't respond to one herbal treatment, but will respond to another.

You might want to consider Buhner's herbs...and see what happens.

So, have you thought about trying Bart treatment...and see what happens...sometimes more symptoms will 'shake out' after you hit one infection.
Posted 12/9/2015 5:54 PM (GMT 0)
If you have babesia like you stated in the first post, that may be preventing the lyme treatments from making you feel better. Some people have to treat babesia first. So until you try that, I wouldn't rule out Lyme. It's also RARE to have one of those without lyme.
Posted 12/9/2015 6:30 PM (GMT 0)
What bands did you have?
Posted 12/9/2015 6:51 PM (GMT 0)
I had IGM 18 band, and IGG 31 and 39 IND bands on Igenex.

Positive Elispot. Clearly I was exposed to Lyme at some point, question is...is it an issue now.

Current regimen I just began recently is:

Mepron, Malarone, Artemisinin pulsed, Zith, Minocycline

Thinking of adding back Tindamax pulsed 2 weeks on/ 2 off OR bactrim. If I add back Tindamax it will be to try knock out any Lyme I might have...Bactrim would be to try knock out Bart along with Zith/Mino.

I am a little afraid of too much Mitochondrial toxicity though...Tindamax with Mepron and Malarone might be too much??
Posted 12/9/2015 6:56 PM (GMT 0)
You may be the first person I have seen without 41!
Posted 12/9/2015 7:13 PM (GMT 0)
Oh yah forgot to mention, also have 41 :)
Posted 12/9/2015 7:48 PM (GMT 0)
Figures!
Posted 12/9/2015 8:03 PM (GMT 0)
If you are (rightfully) concerned about your mitochondria, I suggest you take things to support them.

NT Factor, acetyl-l-carnitine, CoQ10, etc.

And, you don't necessarily have to take pharma abx to treat all of the infections. Herbals can safely be integrated with abx.
Posted 12/9/2015 9:09 PM (GMT 0)
CoQ10...cant do that while on Mepron I believe, right?

acetyl-l-carnitine...can that be taken while on Atovaquone?

For Mitochondrial support NAC helps too right? I take 1200mg per day.
Posted 12/9/2015 9:33 PM (GMT 0)

floridadude23 said...
CoQ10...cant do that while on Mepron I believe, right?

Most definitely right and I apologize for not mentioning that since I'm aware of this limitation.

floridadude23 said...
acetyl-l-carnitine...can that be taken while on Atovaquone?

I don't know - I'd be using one of those interaction checkers...

floridadude23 said...
For Mitochondrial support NAC helps too right? I take 1200mg per day.

Yes it does. NAC also inhibits the formation of biofilm and helps increase glutathione levels.

There are other things that can help as well....I'd need to Google a bit to be reminded :)
Posted 12/10/2015 6:21 AM (GMT 0)
Floridadude,
Your LLMD prescribed Malarone and Mepron together?
Posted 12/10/2015 6:31 AM (GMT 0)

finisului17 said...
Floridadude,
Your LLMD prescribed Malarone and Mepron together?

Yes. Is that unusual?
Posted 12/10/2015 7:31 AM (GMT 0)
You usually take one or the other.

Mepron is Atovaquone.
Malarone is Atovaquone plus Proguanil.

A dose of Malarone doesn't contain as much Atovaquone as a dose of a Mepron.
I'm wondering if that's why the Dr. is having you take both. Maybe it's just a small amount of a Mepron...he wants to bump it up.

I would ask your Dr. about it.

I'm curious to see what others say - hopefully you will get some more responses from others who have taken Mepron or Malarone.
Posted 12/10/2015 1:08 PM (GMT 0)
For your sleep issues ...have you tried inositol/choline ...and possibly valerian root.... as well as ashwagandha

I've found them to be very effective at improving sleep and reducing night time symptoms. I have the inositol/choline from NOW... it says it "supports healthy nerve transmission" and is probably one of the best supplements I have tried.
Posted 12/10/2015 1:51 PM (GMT 0)
That seems wrong to take both Mepron and Malarone together...that will likely overwhelm you! I mean, maybe there is a reason your dr prescribed them both but I would ask as it is definitely not common.
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