Very Scared---Finger Started Moving by Itself, Burning feeling in Brain

I used to have that happen to me too - and it is very unnerving at times. Muscles twitches and spams are because of a nerve signal and for us, it could easily be a misfiring nerve - this is very typical of Neuro Lyme.

It got to the point for me that I would have them so severe all over my body that they would literally 'bounce' me off the couch, chair or Dr's exam table I was on. Those all over body ones though only happened from time to time, when my body seemed to have reached it's limit on the stress it could handle. I most often had muscle twitches and spams of only a few muscles at a time. But, now that I'm healed, my body parts rarely move on their own.

You've been in treatment for a month now, so what have you been doing to detox? Although I have to admit that I know very little about ozone and how it affects the body, I do know that by killing the bacteria you have increased toxins in your body that can really mess with a person.

If you need ideas for detoxing, you can go to our "New to Lyme?" thread and you can visit this site:
www.tiredoflyme.com/detox-methods.html

I can't count how many Neuro's I've seen!! I've had all kinds of nerve tests done, but I've never allowed them to do a biopsy.

You may need to add more to your healing protocol - but remember, what we each need to do in order to heal is not determined by anyone or anything other than our own body. But I would encourage you to start with more detoxing as there are some easy things you can add in that might make a big difference for you more quickly. Many people find Alka Seltzer Gold to be very helpful, and I liked using Benadryl to help calm the central nervous system when thing just got too intense.

The other thing you can do is have the gene test checking for mutations to the genes that help our body detox, often referred to as MTHFR tests. Have you had these done? Having these gene mutations can make it harder on your body to detox, and so toxin overloads will happen more easily and faster for those with these mutations.

Hi Traveler,
Yes I do have the MTHFR mutation.
The test says I am compound heterozygous for one copy of the C677T mutation and one copy of the A1298C mutation. Did you do your herb treatment by yourself or under the care of a doctor. And was it only the Buhner protocol or did you change things around? Thanks

Thanks Chapelle--Right now I am only doing ozone. Was previously doing Zhang herbs but ended up with hepatitis. My liver panel was through the roof and I became jaundiced! Right now I'm a bit afraid to go back to the herbs.

Hello,

theoretically the compound heterozygous that you have is the most problematic of all, that means you have to detox the hardest.
This is why I would suggest NAC or Liposomal glutathione, Chlorella(because you can't detox heavy metals and such either properly), something that has ALA in it, probiotic, milk thistle + physical methods.
I did HBOT at the end of my first treatment and I herxed badly, and the classical methods helped that , too.Baths, dry brushing, doubled NAC and ALA , drinking a lot of lemon water(the night I herded I drank aprox. 3 l, during 12 hours, it was so bad) and also moving a bit around(beeing in a facility where they had a long and nice corridor I had to walk up and down several times at night to feel better).Oxigen or ozone make you herx also like Abx. would do or even worse because once they come into your body they occupy it and you cannot control it, this was my impression.

Please do not loose hope.Until you get better you will have many bad days, and then suddenly you will have a good morning or a good afternoon , then you see you climb the stairs faster and without holding on the grip, etc.

All the best to you, Ioana.

Thanks everyone. Yes I do take electrolytes (Like the Emergen-C) packet and I do use Himalayan Sea Salt quite often and drink Lemon water every morning. I will try doing more of everything.

My biggest fear when I feel the burning brain feeling (at top or base of skull)....(I am the most balanced, easy going, logical person you could meet) but when I feel that feeling I start to get really weird panic feelings where I do not feel like myself...my biggest fear is that these things are damaging my brain and sometimes I feel like I will get crazy from it. I live alone and this scares me the most. Not trying to be a drama queen but this is what goes through my head. Thanks for all your great advice.

Hi Jackie--I did have encephalitis in an MRI over the summer, but never had headaches back then. I can only assume that because ozone is supposed to pass the blood/brain barrier the lyme in my head is finally taking a beating. I have the bad headaches, strange burning sensations and pressure. Question is...how do you know this is ok and how do you know when you're in danger of something bursting in there!? My instinct is to back off the ozone for some relief, but then if it's working do I want to do that? I do sometimes get IV Glutathione with the ozone but the doctor said that can even give more of a herx reaction cause it's a strong antioxidant.

I will try to see if I can look back to your posts for more info. Thanks again everyone.

A YEAR?!
I've only had a few weeks and am losing it!

Not that misery loves company or anything but I am so grateful for this site and each of you who take the time to respond. It's so reassuring to know that other's have had the same issues. When I described the "brain burning" to my doctor he just gave me that look... you know like...I am a hypochondriac or crazy!

I will try the yucca and L Ornithine--thanks again

I had the same symptoms. Twitching in fingers and burning sensation in the front of the head.

I've found that making an extra cup of green tea in the morning, putting it in the refrigerator and drinking it with half of a lemon juice helps a lot for detoxing.

Candy, you just explained what I feel too - the only thing that has helped it is treatment for these infections.

Are you treating tick-borne infections also? If so, which ones?

What are you doing for detoxing? Detoxing makes a major difference, depending on what you are using. There are some good herbs to use to help with this.

Kudzu root helps with brain pressure.
Jernigan's CNS/PNS antitox helps a lot of people, as does Pinella and Parsley tinctures.

NYC you have to detox more than that. Also ozone alone isn't enough to kill the bugs. You need to combine it with something like uib and then follow with herbs or abx. Ozone alone is nowhere near enough

No I haven't been tested for that is that something I can have checked by a blood test? They gave me one the other day but they weren't looking for it so would it have shown up? I've read Lyme disease is caused by tick bite but I haven't been bitten as far as I'm aware..I live in the UK. Thanks to you all replying as any information is a great help

lol I'm so dumb thanks girlie. Candy try kudzu for the head burning!