Lots of Questions...hope someone can relate :)

Hi All,

I haven't been on in a long time. I have been seeing a different doctor now. LLMD in Florida. He ran more tests and my Lyme is getting a little better, I have very high cortisol levels (via the saliva 24 hour test), My mycoplasma is 4x the positive, and my C4a is 14,788.

My CD57 was actually not bad he said at 117. My ADH is very low so he has decided to try me on DDAVP at night to keep my body from being dehydrated.

We are going to start babesia and mycoplasma treatment with azithromycin and pulsing malarone and artemisinin. I just tried the nutritional IV last Monday and my whole body broke out in a welted, hot raised rash that lasted for days! When I tried vitamin B12 injections about 6 months the hydroxo and methyl cobalamins both caused the same reaction but only at the injection site. He is thinking it is an allergy to B12 or all B vitamins :( Anyone experience this before? Also...I am supposed to go back tomorrow to get another IV just without B vitamins, but am nervous because I don't want to do another week of worse than normal.

Anyways, because of the allergic reaction he had me stop all medicine. So I just now added back in Diflucan for yeast at 50mg twice a week. My face is so dry and is flaking a little, not bad but it is peeling a bit. It is tight and dry and I keep putting moisturizer on it. I haven't done anything else really out of the ordinary. Anyone else have this? Does it pass?

Thanks!!

Leah

about two hours after the IV I got the welted hot gross rash all over. And then about a day later I was so lethargic and had the fever for 4 days or so. Now I am getting back to where I can do some things. I have not started the azithromycin back up yet. Just did the diflucan Sunday and Tuesday. And today my face feels like Jake the Snake!!! I'm hoping it's a herx and will subside!!

That sounds like some serious herxing or MCAD - I would suggest that you be very, very careful moving forward. Maybe you can do only 1/4 of the nutritional IV? It's obvious that the full amount is too much for your body.

As for your high cortisol levels, are you on any medications for that? When are your levels highest?

So your doc believes your adrenal issues are all due to your pituitary gland? Most docs just address the adrenals.

As for the cortisol manager, I've never used it, but I am using ashwagandha, one of the ingredients that is in it and I can't take it at night either. I have to take it in the am and no later than 2 pm in order to be able to sleep more than 3 hours that night. My doc didn't want me taking even ashwagandha for a long time (I'm about 18 months into treatment for adrenal issues), so I've just started using this about 2 weeks ago. If you still have some, you might try a different schedule.

It's possible that it could be MCAD and only react at the site, but I would think that it's not likely. Maybe it's just an allergic reaction to the meds themselves. Good idea to only do a small amount next time to see how things go.

I sooo wish that there was a more "standard of care" that was followed with adrenal issues! It seems that every doc has a different approach like they do with Lyme! Ugh.

From what my doc told me, she thought I would do best with just a natural adrenal at the time. She felt that adding an adaptogen in the beginning (because I was so low) that it would backfire on me. She just gave me the go ahead a few weeks ago.

I actually really like it - as long as I take it in the morning and afternoon only! I started off on a very low dose in the morning only for a week, then added in the afternoon dose. I'm hoping to add in a third dose after I recover from this "down turn".

LOL! Yep, adrenals are real drama queens! I too will be so glad when they 'unwind'.

Yes, Lyme, Bart, Babs, RMSF and others are all under good control - 1 year after healing from them, I was under so much stress (family stuff/care giving) that my adrenals crashed and took my thyroid with it. Misery loves company???

Anyway, I was reinfected with Lyme a few months after that, but I went back on my Lyme treatment and healed quickly and well again. Now I take astragalus to prevent another infection and it's worked well for 1 year at this point.

Candida is a tough one for some people. We have a lot of really good threads on here talking about it. Be sure to use our search function and use search terms including Pirouette and Chapelle - like this:
Lyme, Chapelle, Candida

or

Lyme, Pirouette, Candida

If your digestion is so messed up that you aren't absorbing the nutrients you need to heal, then I would say that the nutritional IV's are good - otherwise, I'm not so sure, especially if you factor in the risks with IV usage.

And yes, they have the potential to cause a herx, as you are ramping up the immune function, but that won't happen immediately like the 2 hours later and you were having issues. I would think it would take longer than that, more like 12 - 24 hours, as those nutrients have to have time to not only metabolize, but increase the immune function - but I'm not a doctor either. That's the only way I know that a nutritional IV could create a herx.

Bart can also cause a fever.

I don't get a fever, but I have hot spells...but if I take my temperature it's still not at a fever level.