Could I Have Babesia?

hi all. i am hitting another rough patch. my brain fog is back with almost full force and i am not doing as well as i was several months ago. back then, i was still mostly housebound but generally felt like i was on the right track. at that time, i had been on azithromycin and clarithroymycin. i was taken off them for a while, got a lot worse, then tried them again but did not feel improvements.

my doc is doing some probiotic gut stuff at the moment and things are just bad.

now, throughout most of my 22-year illness, my symptoms have been SEVERE brain fog, neck stiffness, fatigue, malaise, etc....but no actual pain - just major pressure in the head. also, night sweats and heat intolerance. due to this, docs over the years have suspected babesia and have tested for it repeatedly - through Igenex and even with the FISH test, more recently. everything was negative.

but the more i look up babesia, the more my symptoms seem to match that one.

I wanted to know what the likelihood was of my still having Babesia...cuz i did feel like i was responding to chlarithromycin for a long while and i believe that treats it (although I am sure it treats other things, too).

I ordered a Nutramedix herb called Enula...maybe if i try that and get some reaction, I will get a clue regarding Babesia?

I cannot send blood to Fry labs that easily and cost is becoming a major factor..but I wonder if that testing is better?

Any opinions would be greatly appreciated.

Thanks
xoxo
Daffodil

Hi Rikky. Thank you for that insight... I agree....some meds do nothing and then yrs later, seem to do something.

I did not know about Cryptolepis, but I ordered something called Enula from Nutramedix to see if maybe I would get a reaction from it..have you heard of that one?

Thanks!
xoxo

Hi Daffodil, I'm new here and don't know very much unlike every one else but I couldn't believe seeing 22 years of this for you? And you still sound sane and articulate and everything. Can I offer a ((hug)) to you?

I also have babesia according to my LLMD and he did put me on a-bab and also recently a cryptoleptis liquid.
Lyme has taken up so much of my thoughts that I've not looked into babesia symptoms at all. I definitely will now thanks to this post.

Hi Daffodil,

It sounds like Babesia to me too. The testing for Babesia is very poor. There are many strains and they constantly change.

Also, the longer you have Babs, the less likely you will test positive for it because it significantly suppresses the immune system. Many people don't test positive until they have significant Babs treatment.

I tried testing through IGENEX, but it came back negative. I would not stress over spending the money on testing. Fry is not well known for Babs testing. Igenex has a much better reputation for Babs testing. I recommend finding a doctor who is willing to treat you based on your symptoms.

With Babs, I have found using multiple herbs very helpful. I seem to react differently to each herb for Babesia. I suspect you will get some sort of reaction from Enula. I guess that you might get more of the symptoms you mentioned above. It made me sweat more and caused weakness and other Babs symptoms. However, it makes me highly irritable too. :)

I definitely would look into Babesia some more if I were you.