Doc Apt for Son

So today was not a very good day. I am very overwhelmed to say the least.

My son (12) sees a lyme friendly doc but I don't think it's going to cut it. The guy left the room 3 times to consult the main doc on what to do and changed the protocol 3 times. At first they thought my 12 year old could swallow big pills like doxy. Then he was going to give amoxy without probenecid and had to call the pharmacy to see if this could be compounded for kids. He didn't give any direction on how to address the high uranium in his hair metal test. The red flags were flying all over the place.

The ONLY reason we tested him for Lyme was because he had a bad reaction to the meningitis vaccine (swollen groin lymph nodes, felt horrible/off, muscle twitching/jerking at night, sporadic troubles breathing and also swallowing). No symptoms prior to that. Most of the symptoms are gone now. It took 3 months.

In addition, we found my son has high IGG for Chlamydia Pneum. Which is likely explaining the cough he's had since October. He wants to add Buhner's total protocol for it never once saying let's go slow and try one thing at a time.

This is what he threw at us - take doxy, amoxy/prob, a custom Borellia herb mix that they had Woodland Essence make, plus the entire CPN protocol, oh and a bunch of different supplements (d3/k2, probiotic, colostrum, even LDN!). Is it just me or is this not practical for a 12 year old who has VERY mild symptoms? I was thinking let's address the CPN since he's coughing. Maybe try an antibiotic that hits it? Possibly add in one herb at a time to help the CPN.

And I finally got the hard copy of his Igenex results which are considered Negative by both Igenex and CDC. Also, he did have a negative Elispot. The results were IGM: 18+, 39 IND, 41+. IGG: 31 IND, 39 IND, 41+++, 58+. I read that CPN can react on 18. His Bartonella FISH was negative. CD57 is 190.

I am going to likely make an apt with a pediatric LLMD for this summer. But in the meantime I was going to email this doc back and ask if we can put the brakes on a bit. I would prefer to try a month or so of abx (something that could hit lyme & cpn), then follow that with a long-term herbal program with simple immune building stuff. Any advice on if this seems good?

If my kid was really ill I would do whatever it took (all this and more), but the fact is he functions normally. His only major complaints are some spacey feelings at times, a little trouble sleeping and maybe a little twitching still at night. He plays basketball with the same energy level as before all this, isn't fatigued, and get's straight A's.

Having been a 7, 8, 9, 10 (etc) year old with mild symptoms, but not ever specifically addressing the tick-borne infections. I can tell you that it's not worth it to take the "let's wait and see what happens" approach with these infections. Although symptoms may be mild, that by no means indicates that his body isn't struggling - as a matter of fact since he has symptoms, it shows his body isn't doing so well with the keeping the bacteria under wraps.

I was infected around the age of 7(could have been earlier), got diagnosed at the age of 37 - I never had symptoms serious enough that they stopped me other than for a couple months at a time until I was in my late teens/early 20's.

So you can see that I simply don't agree with not treating a child because supposedly their immune system is strong enough to deal with the infections on their own. I wasn't sick at all before this stuff set in, so my immune function should have been more than strong enough to conquer these infections had that theory been correct.

Traveler - I agree with treating but I think this is way too much. Start simple and see if we get results, which is hard to gauge in a child with hardly any symptoms. He may have a very low bacterial load that responds well to a month of antibiotics followed by an herbal protocol for a few months. Doing all this at once seemed like overkill.

I think treating the CPN makes most sense first. They are saying only one month on the CPN protocol. I have to research more on this.

I think you are right in being very cautious!! Treating whatever the person is showing the most symptoms, or the most severe symptoms for, and holding off on the other treatments only makes sense. As you said, no need to overwhelm the body.

Remember to let your doc know that you will be introducing and ramping up on the doses slowly too. That way they will understand when you aren't done with treatment like they think you should be according to their schedule.

k07 go with your gut feeling. You are Momma Bear and no one knows your son better than you! You were given at his birth instincts and they are generally spot on.