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Lyme Disease
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Posted 3/22/2016 9:20 PM (GMT 0)
I've been treated for some ten years for Lyme and chronic fatigue. I took a break last year
and have been doing rife this past month with a coach. I felt I'd reached a bit of a plateau
and wanted to take a rest. Meanwhile, I sought out a new primary care doctor to help
monitor my thyroid and blood work in general. about three weeks ago, he found some
things which concerned him in my blood work. They had to do with inflammation markers
and also immunoglobulins. I mentioned that these often show up in my labs due to Lyme.
He has seen a number of people with Lyme. I asked him. Haven't you seen similar
things with other people who have Lyme. His answer was, 'not really'. We just want to rule
out some things before we proceed.
This Thursday I have an appointment with a hemotologist. I looked on the labs and
there are all kinds of blood disorders, various cancers listed that may cause these results.
He said not to be concerned. It could be 'mold'.
A friend is going with me I have tried to keep my mind occupied However,
I am feeling anxious at the same time.
Have any of you been tested for cancers of the blood or had strange labs and
been sent to specialists?
Any of your experiences or suggestions would be appreciated. Thanks.
Posted 3/22/2016 9:32 PM (GMT 0)
I have had some strange labs...but haven't been tested for cancer of the blood.

First one was high cortisol before lyme diagnosis, but after about 6 months of symptoms - so had to do additional testing, and a CT of my adrenals...followed up with an mri of the pituitary gland.
After the high cortisol test...I asked what it could mean, and why the additional testing...and she told me to rule out a tumor on my adrenal glands.

Also, my Dr. checked me for a parathyroid tumor. - Probably wasn't necessary - she was ruling it out due to my low vitamin d levels...so had more tests - parathyroid and calcium.

I have had many months of low wbc count and high liver function tests...my Dr. ordered an ultrasound of my liver.

I can tell you that I worried each time..not solely because of the lab tests results...but because I was feeling so horrible..that it made sense that I had one of the serious things we were trying to ruling out.

Try not to worry - lyme and co's can wreak havoc with all our systems/organs.

I hope the hematologist can put your mind at ease.
Posted 3/22/2016 10:05 PM (GMT 0)
thank you so much for letting me know about your encounters with all of these tests.
(Close Encounters, of the strange kind, maybe I should say that.)

I have had an ultrasound of my liver as well and gall bladder about four years ago and
luckily they came back fine with some cysts on the outer GB which no one was concerned about.
I had the opposite. Very low
cortisol, as in stage three burnout. This was about six years ago so they didn't test me further.
Put me on a cortisol drug and that's been working.

I will be patient and see what they have to say. Will let you know. It just
seems to be part of the Lyme territory and I am glad to read that you got through all
of this testing fine and that you found someone who has been treating you well, it appears.
I am a big fan of Buhner herbs and his writing and books.
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