Can't find the answer to this.

I think you need to rely on your LLND's advice and ignore your uneducated GP's comments.

I'm not sure if the following link will be helpful but here it is:

www.ncbi.nlm.nih.gov/pubmed/25092818

I had the symptoms of RMSF - without the rash - in 1970, yet in 2008 (38 years later) I tested fully CDC positive for not only Lyme, but RMSF. The only one to believe those results? Yep, my LLMD. Not everyone gets every symptom of ANY infection/disease. Your GP is trying to follow IDSA treatment standards is all - I'm sure they are under great pressure to do so.

The CDC has created 'Lyme Corps', a group of people that go around from doctors office to doctors office, or making phone calls to make sure the doctors know to treat by IDSA standards, which means of course that it will be harder and harder to find doctors that not only will pay attention to our symptoms, but finding (or getting approval for) treatment from a Non-LLMD will be harder to get as well.

If your GP puts up too big a fuss, you will need to find another GP- because obviously any GP that refuses to acknowledge that their patient has an ongoing infection, or harasses them because they seek treatment elsewhere (ever heard of a GP refusing a cancer patient?) is surely more interested in their career than their patients - which is fairly ironic in my way of thinking, since it's the patients that make a doctors career. But running scared is running scared and that's what these doctors are doing. They are afraid to stand up for their patients to get them the treatments they need.

Don't agree to the tests if you haven't - other labs that don't take the care with the testing like Igenex will return a negative or ind results, which will only fuel a CDC pushed doc to deny treatment and further harass their patient.

And don't forget, "recent" only means that your body is making antibodies to that bacteria (again) - it's not a way to determine when the infection was picked up. As I said, I only had symptoms of RMSF in 1970, yet 38 years later I was still fully CDC positive for the infection. There really is a chronic form of RMSF, there's just very little literature on it.

Hi thank you all for the responses, where to start.

Thanks cd3764 I found that link interesting.

Chapelle I was technically diagnosed with lyme disease last january and was given a course of 1 month amoxcilin then rifampin then 3 months I had to push for doxycline for 300 roughly a day mg. I have been sick for around 7-8 years now it is honestly like living in a dream world where in my dreams it feels more real then real life if that makes sense. I have not fully awoken in about 5 years now the fatigue and tiredness keeps me from doing almost anything.

Traveler I really like my GP because he listens to me and out of the 5 GP's I have had in Calgary he is by far the best and he is really sympathetic every time I see him. I wanted to keep him because my LLND here in Calgary is not allowed to prescribe the antibiotics I am on which is bicillin LA once a week 2.4ml and clarithromycin 500mg twice a day. My LLND can prescribe if I went to BC 4 hour drive but that becomes a hassle so I asked him please work with me here and he agreed for another month of the antibiotics I don't want to push him. When I was a kid we had this park across the street and we spent majority of our kid lives there I remember this 1 time coming home and was so sick and nausea that I was bed bound for almost 2 weeks throwing up stomach acid (sorry) and so dizzy I could not stand and I wasn't taken to the hospital for it so not sure if I got sick then, I was about 10ish so 19 years ago.

PeteZa thanks, it is stressful and confusing I am afraid it will get to the point where he will just be like ok enough is enough.

I have been doing both for the last 2 weeks about now when I brought in the herbs through the LLND which is where I got the test done.
It was basically me getting the positive through the LLND I am seeing and bringing the results to my GP for help.
Since I have started the herbs I have noticed a huge reduction in the pain I have felt just got a crazy headache about an hour ago but aside from that ya good.
I am on like grapefruit extract, lumbrokinase, tads, active probiotic, regular probiotic, broccoli glutathione, cats claw, magnesium malate, d3's, and q10's.
Lyme brain had to run up and down the stairs 3 times to write that down ha I kept forgetting.