I've posted a few times in the past few months, as I was diagnosed with neuro Lyme this past January. I'm just baffled & so scared at times. I spent this past weekend in the hospital with what the doctors are saying pseudo seizures. And had a cardiologist, neurologist & psychiatrist all see me during my 3 day stay. And it's so frustrating & disheartening that when you even bring up the topic of having Lyme, they don't believe you...hence the reason for the psych visit, which really upset me. Thinking I was crazy, and making up the seizures. They started Saturday night. I was just hanging out with my husband and son, and I don't remember a lot, but slumping over, not being able to speak, knowing what I wanted to say but not being able to get the words out, and when I could manage, it was extreme stuttering, and then shaking. I've experienced a couple grand mal seizures about
15 years ago, but they were much different...actually don't remember them. This past weekend, I continued to have these spells of the inability to speak clearly, and then started to tense up and shake. This morning when I woke up, I had a small spell of one...but by this afternoon, I'm feeling back to my normal self, and have an abundance of energy. I'm being treated by a LLMD, and my treatment has been not consistent, as we're trying herbals, and at one short period of time abx, but because of the reactions I'm getting, I stop. I now am wondering if I really need to hit this full force with these new set of symptoms arising. I'm just so scared, because I start reading about
ALS, or MS...and am afraid this will eventually turn into that. Can someone explain with Lyme do your symptoms come and go like this, and some days feel totally drained, and the next have extreme energy? I'm so thankful to have this site for support, because as I stated...I'm coming to find out the "regular" medical community doesn't have a clue, and doesn't want to have a clue about
this disease.
