Rocephin

I gotta say, I think this Rocephin stuff is working. I've been pulsing it 4 days on/3 days off. On my off days, I feel like a normal human being again, after being very sick for 2 years.

It's weird being healthy again for a couple of days. I had forgotten what it feels like to be healthy. That good energy feeling. Then I go on Rocephin and that old sick feeling kicks in with it's carnival of side effects kicks in. Really strange. Very thankful for Rocephin!

Thank you gfields...i think i may give it a shot..how long into it are you and are you taking actigall or any other oral abx? How long had you been sick do you think? Are you doing 2g a day?

Are you on oral or IV Rocephin? My Docs are talking about putting me on IV Rocephin again. I had one off of oral abx while waiting for the insurance company t oapprove the picc line. It took a month for them to approve it and I was amazed by my improvement. I have stuck with herbals since and I would say I am at about 60%.

Good luck,
Ed

bluelyme -

I've had relatively little trouble with Rocephin. I have horrible GI issues, which is why I went straight from diagnosis to IV (no oral abx other than herbal) and haven't really had a lot of issues while on Rocephin although I have been on probiotics most of the time, have been on/off antifungals, and take binders all of the time. This combination has kept yeast/fungus in the gut manageable.

I take Ursodiol to protect that gall bladder. So no problems there.

I started bart treatment with Byron White A-Bart. It was very antagonistic for me, didn't realize it at first but after starting and stopping it a couple of times, which happened to coincide with these bizarre GI attacks, my LLMD and I figured it was causing the attacks. So that's why I started the vanco.

Once I get a few other issues to calm down I'm going to incorporate the A-bart back into my protocol so that I can wean off vanco (which will hopefully have addressed the majority of the bart in the gut) and back onto A-bart. There's a possibility that it wasn't bart that my GI was reacting to when I was taking the A-bart that caused the attacks... but will have to cross that bridge when I get there. The vanco has been helpful but it's not the panacea I'm looking for.

I'm also accepting the possibility that I may need to take stronger measures to rebalance my gut (like doing a fecal transplant). Not quite there yet.

-p