Hi Violet -
I'm so sorry you're dealing with the pain and exhaustion. I think most of us here can identify with a lot of issues with just a little bit of activity. It's such a challenge to deal with.
I was in so much pain at the end of my work day I was practically numb and in shock. Most of the time, I would literally skip dinner and pajamas and crawl into bed. But I learned a thing or two with these poor habits...
It might (I'm really just trying to be polite---it absolutely WILL) be best if you set aside what you think others are judging you about
, and do what is best for you. No one else is going to take care of you, so you must!! And you can't successfully take care of others if you remain ill.
Pushing your body like that is only prolonging your recovery. Period. There's no gray area with that. There's no bend or give with this illness. There's no safe procrastination.
If you allow yourself the time it takes to heal, you will likely be back to normal much faster and your family will see the difference.
The best advice I can give for the foot pain is to try to stay off them as much as you can, prop them up, pamper them with detoxing and rejuvenating foot soaks. And of course, wear the most comfortable shoes you can when you leave the house. I think staying off your feet will alleviate most of the pain but if you're having joint/muscle pain as well, low dose naltrexone might interest you (you can do a search on the forum- we've had several great conversations about
it).
Your back also needs not to be supporting you so much. Some lymees do well with massage (I am not one of them) but that might be something to look into (do a new post or do a search for conversations).
Sleep for us lymees is as important as the treatment. Your body just can't manage the illness AND the treatment AND being pushed too hard AND not being able to rest enough - rest is absolutely critical to rebuild your adrenals, support your immune system and restore your energy--all required to process the treatment.
I know this sounds like a crazy question - but is there any way you can work in shifts? Work 2 hrs in the AM and rest and then work 2 hrs in the afternoon? Or work every other day? Is there some combination of work and rest that would be helpful for you and a compromise your employer is willing to accept? Is he/she aware of your illness and treatment? It's AWESOME that you like the work - that alleviates additional stress involved in working when you not only can't really do it but also hate trying. ;) So you have that going for you!!
Hope this helps... others will be along to share thoughts.
-p
Post Edited (Pirouette) : 5/4/2016 9:15:57 PM (GMT-6)