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Posted 5/10/2016 1:05 AM (GMT 0)
What are some symptoms people on this lyme board get only when they sleep, excluding insomnia?

Mine are ear ache (depending on which side the ear I sleep on) and limps falling asleep and tingling. Those two things ONLY happen when I sleep and not when I'm awake.
Posted 5/10/2016 1:33 AM (GMT 0)
Chest pain, limbs go numb, shaking/vibrations in chest, couple night sweats and a very embarrasing & painful one that I thankfully only get about once a month - proctalgia fugax (rectal spasm).
Posted 5/10/2016 1:34 AM (GMT 0)
haha no worries, I forgot about the rectal spasms (except mine aren't painful). I get them too but only happens when I'm resting, I don't have to be a sleep. And of course how did I forget night sweats.
Posted 5/10/2016 2:17 AM (GMT 0)
minor night sweats, sore shoulder from laying on it.(never happened prior to lyme)
Posted 5/10/2016 2:37 AM (GMT 0)
Wierd little spasms throughout my body. And involuntary movements of my head. Limbs falling asleep. "swishing sounds" in my ears. Eye pressure which can be all the time but is worse at night. Actually feels like my eyes are bulging. I get the sore shoulder and arm that falls asleep too and never did before the last year or so!
Posted 5/10/2016 2:42 AM (GMT 0)
weird breathing, night sweats, headaches like my pillow is made of concrete, hands sore from being balled up in a tight fist, I'm a side/back sleeper but hips hurt when I am on my side too long, muscle pain in my legs and arms - sometimes aches and sometimes stabbing pains, and whole body spasms where I literally jerk myself awake - this is so disturbing and frustrating especially when I'm exhausted that it makes me cry (which sounds funny when I type it but it really does infuriate me!)... and slight palsy in the lower left side of face when I wake up.

but my list used to be a LOT longer...

-p
Posted 5/10/2016 2:49 AM (GMT 0)
P - I used to have the clenched hands while sleeping that would hurt when I pried them apart. They have resolved.

Sometimes my "alarm clock " is shivers waking me up in the morning. What a way to start the day.

My list used to be longer, too...Yay...we're making progress.

I used to be stressed as I got into bed...knowing I was going to have a difficult time in bed...
Posted 5/10/2016 11:18 AM (GMT 0)
limbs falling asleep or tingling and muscle spasm seem to be the most common denominator. I would like to know why that is so (scientifically/biologically).

But when most of the main stream medical community doesn't even believe in long term lyme and co, we are definitely not going to have adequate research on individual symptoms.
Posted 5/10/2016 1:53 PM (GMT 0)
I used to be obsessed with wanting to know why I was going numb at night. I never had this a day in my life prior to this. I would freak out when I would wake up and not be able to feel my face and neck. I think circulation to my head is pretty important, lol.

It seemed like the consensus was either bad circulation (possibly pressure related?) or thick blood. I have had my fibrin checked and it was ok. I've wondered if it could be a heart thing. Or, maybe related to whatever nervous system (autonomic or parasympathetic??) that takes over and does things automatically. My BP is low but my pulse is a little high. I also tend to get light-headed (again sometimes worse than others) upon standing.

Initially I would have this every single night. It's been a year now and it's more come and go. And I'm not really even treating right now, nor have I treated for an extended amount of time.
Posted 5/10/2016 2:48 PM (GMT 0)
The most annoying night symptom was it felt like I had put a quarter in the bed to make to it vibrate. My whole body had like an electrical buzz. It was ever so slight, but it was enough to make me freeze and concentrate to make sure it was real.
Posted 5/10/2016 3:41 PM (GMT 0)
the numbness is a weird one for me, too - at first I thought I'd been sleeping on whatever limb, leg was numb, but as it has been happening more frequently, I am becoming aware that I am NOT sleeping on it or putting pressure on whatever part is numb - so strange. Insomnia is such a biggie - sleep for 2 - 2 and a half hours straight if I am lucky and then I am awake for hours. Pressure in eyes - usually left one- spasms and stabbing and stinging pains - random ones anywhere on the body- also happens -as does sore joints and jaws ( feels like I am clenching them all night, but I know I am not). The chills on/off random - that one is weird because I have like 5 thick blankets on me. Oh and the neck pain is terrible. Aaaargh, I need some decent sleep already!
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