Starting to think I don't have Lyme- help!

What are your symptoms?
What did you treat with specifically?

Dave,

1.5 years is not that long. I was on IV for almost that long. After 5 years of treatment with big pharma ABX and later combining with Buhner's herbal, I weaned down and stopped ABX to see if herbals alone would be adequate maintenance. It took about 6 to 8 weeks to relapse.

I don't want to be too pessimistic.. you sound like you're doing some good things and open to alternative treatments as well. Keep at it and rotate protocols often to find the right combo that works for you.

You have Lyme. You have several Lyme specific bands that are either IND or +. Bands 93, 83, 39, 34, 31, and 25 are all showing up on your test and they are all Lyme specific. To top that off, you also have band 58 positive and that is thought to be a European strain of Lyme.

You may not have found a protocol that works for you yet, or you just may not be one that herxes, as that's only due to an overload of toxins all trying to move out of the body too fast all at once - which explains why you herxed when using the sauna.

As the others have asked, have you seen any improvements with your symptoms?

Band 58 is believed to be Borrelia Afzelii. It's actually been found and identified in Poland.

Well, I'm sure glad you've had some improvements! You might want to consider some of the other alternative treatments like Essential Oils or it may be that you need to treat another infection first. Is it possible that you have another infection like Bartonella or Babesia or even mold exposure that could keep you from healing?

Trav I have a high Bart load as well as mold. I know I need to treat these as well

DaveNJ41 said...
I have nerve pain (neuropathy), joint pain in knees, shoulders and sometimes elbows, pain in the bottoms of my feet, a messed up gut, bloating, loose stools sometimes, really fatigued, irritability at times, trouble focusing, trouble sleeping, anxiety, depression, heart palpitations, internal tremors, restlessness.
I used herbs like sida acuta, houttynia, cats claw, japanese knotweed, reishi, cordyceps, teasel root amongst other herbs. I used rifampin, rifabutin, biaxin, minocycline, sulfa ds, and a few others i can't remember.

I have a lot of symptoms, yes.

I have a lot of your symptoms: nerve pain, joint pain -knees, shoulders, elbows, wrists, fingers, pain - bottoms of feet, internal tremors (had anxiety and depression but has pretty much resolved) plus many more.

How long have you been treating Bart?

When I start to question my diagnosis...I stop and think "What else would give me all these symptoms - affecting so many systems?"

Other than an autoimmune disease...I don't know of anything else...
And, I've had (as many of us have) autoimmune testing done.


...not to mention positive lyme specific bands.

Healing your gut can go a long way towards healing infections. Not only are the toxins not being re-released back into your body through your gut, but you will be able to absorb nutrients and meds better!

Also, many find that they have to heal from mold first before they can treat these other infections.

I hope it works for you Girlie...what are you currently taking for babs?

Thanks trav- I heard that too, that mold must be treated first before I can treat other infections. My LLND does not know a lot about mold, he said he has to re-learn Shoemakers protocol. I may go to a specialist who deals with mold toxicity.

It is very hard to know what to do with everything and it is quite overwhelming. I think you should see if you have toxicity first. You can do a DMSA challenge for heavy metals and also go to shoemakers website to get a list of labs your doctor can run to see if you have markers for mold toxicity. You can also do the VSC mold test online.

Well it's more specific for mold. I would ask her to run lab tests for TGF-B1, MSH, C4a and a few others. Here is a link:

http://www.survivingmold.com/diagnosis/lab-tests

my LLMD just recently had me do a mycotoxin test through RealTime Labs. Only $699 I wonder how do they do it so cheap? ;o) i get my results in 2 weeks.