Neurological Lyme Treatment

Jiggly it may be helpful to others to list some of your symptoms as sometimes the treatment is targeted to the symptom. This is very true for those of us taking herbs.

So a lot of this may be related to inflammation in the brain and in the body. So some of the things that could help are Pinella and Burbur (great for brain and body detox), Japanese Knotweed (crosses brain blood barrier, great for inflammation), omega 3 (fish oil), NeuroFlam-NT by Apex Energetics (great for brain inflammation); alpha lipoic acid (great for burning, pain, and numbness in the legs and arms).

This can get you started and others will come along with additional recommendations.

Someone will be along to help with the abx. Not sure if that is enough. Girlie is pretty good at answering those questions.

Also detoxing is a must. You have to get those toxins out.
www.tiredoflyme.com/detox-methods.html

Jiggly - I agree with Krimpet - listing symptoms is super helpful, and also, your LLMD will want to see this I am sure. I am following the Buhner protocol, and added also some herbs from the Zhang protocol for my symptoms, some of which were neurological in nature.

How fast did you start Buhner's? You need to start off very, very slowly!! One drop is the usual starting dose and hold until you quit herxing, then raise up to two drops and hold until you quit herxing - all the while detoxing like a mad woman!!

jiggly080365 said...
Thanks Questing, Traveler and Krimpet!! I appreciate your help so much. I was doing the Bruhner herbs and herxed so bad I thought I was dying. I can't take as many as he mentions in his book. It will kill me. I did order some Alpha Lipoic Acid and have some fish oil. I will take those and also some Japanese knotweed. This has been very frightening for me, and I have no appointment with llmd until November so I am doing all I can on my own for now. I do have Steven Buhner's book which has been helpful. This board has made me feel not so alone on my journey.

Yes indeed...you can herx awfully if you go too fast or if you are taking more than you need. Remember the amounts listed by Buhner are only guidelines. You can begin to obtain positive results on less than the recommended amounts. Some of these herbs can pack a mean punch and we don't need that! We want them to work but not at risk of hurting ourselves. Also some of these herbs may not always agree with us so watch out for adverse reactions that don't go away even with a reduction in amount and/or frequency. If it doesn't agree, remove it. Many of us have herbs sitting on the shelf because it just doesn't work with us or it may be too soon. Sometimes you have to get the toxin load down for some of these to be better tolerated.

Read burrascano's guidlines. ..agree with the previous posts ...may need rocephin but andrographis, bee venom cross bbb as does others

hi there, I was misdiagnosed for 20 years with lyme disease. finally diagnosed in 2013 and begin treatment for neurological lyme. this is my third year.

the first year I could not take antibiotics and when I did I had to pulse for a while then get off. then half way into the first year, I began IV food grade peroxide which saved me, from being bedridden to getting up and I could tolerate it. I herxx bad after first couple of infusions. I took that for 1 year. then I took 6 months of IV ozone. that really helped me move forward a lot esp my neurological symptoms. Then In april of this year, I could finally tolerate antibiotics without herxx so bad I am bedridden.

I have been improving well on doxycycline, diflucan, and famvir an antiviral. My doctor said that many people says lyme is a mixture of a bacteria, an fungus, and a virus, those that have read up on biological warfare. I know this has really helped me. I also learned I have mycoplasma pneumoniae and getting that treated now has helped me a lot.

Plus I addressed a lot of other issues, having root canals pulled, mercury, address teeth big time.

I addressed candida leaky gut and fungal infection in my sinuses with ozone.

I improved a lot with a jade tourmaline bio mat.

Magnesium oral supplements, mag oil, and epsom baths are a must. Immune and liver support. my thyroid medication had to be changed from synthyroid to west thyroid a natural form of thyroid hormone and I was iodine deficient and taking an iodine supplement made a big difference.

I have a MTHFR gene defect. people with this have to take a methyl form of folate and b 12.

I have to take medication for sleep and melatonin really helped. I now take a product called Rest that is good for me.

and I am on omega 3 which is a must for neurological lyme and lets not forget a probiotic in general.

I am hoping only to take the meds I am now on for 1 year. then I will maintain myself on a herbal protocol

Neuro is the nervous system. That includes the CNS and PNS.
So, psychological issues, as well as tingling/numbness are included in neuro.

I just wanted to point out that neuro does include things like ataxia. Which is one of the neuro symptoms I deal with. My brain miscommunicates to my leg affecting the gait. My leg wants to walk toe-heal and my left foot turns out while my right foot is just straight. It has caused all kinds of issues in that leg and with walking. Though this is not quite as common in Lyme it does happen.

Hoagie - are you being treated by a LLMD?

Are you already taking antibiotics?

I hope this Neurologist is Lyme literate and does not follow the IDSA guidelines.

Please keep us updated on how the next appointment goes.


Good luck!

head- brain issue- I suggest getting checked by a biological dds.
Dr mercola ha good info on his site about the toxins that jaw bacteria kick off inches from brain