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Need Guidance To Begin First Time EVER Treatment For Chronic Lyme

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Posted 8/28/2016 11:14 PM (GMT 0)
IF I have not goofed up what I am trying to say is, diagnosed only 6 days ago with Lyme, likely from 6 months ago and already lost use of BOTH legs, partial loss in both arms just beginning, moving FAST in my body. I am also an older geezer a 68 year old male who used to be athletic still surfing racing motorcycles etc. It ALL ended 2 1/2 years ago with 6 spine fusions, removal of massive tumor found wrapped around base of spine, a Mastectomy of left breast (yep, we MEN have fun too), 2 emergency surgeries for developing Massive football sized Seromas that developed. ALL in just 4 month period, now this.

Bands 39 & 41 showed Positive and just began Doxy 100 MG 2X a day for 28 days and I am on my own if I want anything else. You BET I want something else. So I placed an order at Amazon after reading all I could find out online for the top 3 herbs. Was told by a certain online herb store that I bought AL WRONG stuff when asked to see what I got. So, I cancelled ALL of it and unsure what htisis going to cost me but need something from SOMEONE as quick as possible. I am fading literally by the DAY so minutes count for me. I am not returning to my Neuro specialist as we think he is more brain dead than I am after the past 6 months and THOUSANDS of dollars just wasted. ALL we have will now go towards anything that I can purchase to try to fight back as Lyme is the ONLY lab work we have that returned with anything "positive" in testing. I don't have anymore time to chase around grasping at straws.

If anyone knows the EXACT link of the correct herbs and place to get them, PLEASE let me know by private or public means? I need your help and I do NOT consider anything you say to me to be any form of medical advice! I just need help to not waste another $100.00 plus on the wrong stuff. I need to know WHAT-I need to know WHERE. And I thank you and owe many here who have helped me with the overwhelming sock of discovering I have this disease. It is a very scary place to wake up to indeed. Wounded 4 times in War as a former Marine, I honestly never felt THIS kind of fear, even in the many battles that war brought me. Thank you,
Mike

PS-If I am not allowed to ask for this help, if it violate some rule, please just delete the post and I apologize!

Post Edited (lucynethel (OR Just Mike)) : 8/28/2016 7:50:43 PM (GMT-6)

Posted 8/28/2016 11:43 PM (GMT 0)
Hey Mike, just wanted to welcome you. I am an old woman with lyme but not old in spirit or in heart!

First, thank you for your service and I sincerely mean that. I appreciate you fighting for my freedom.

Now about this lyme thang. It is a scary thing but honestly you really almost have to get used to it because it will not go away like the flu or a cold. Being a super healthy person all my life, I was a very impatient person and wanted a quick fix!

No such think with lyme.... It is a marathon, not a sprint.

There is no tried and true method to rid it from a body. We are all our own guinea pigs. Each of us has different ways we are trying to find out what works to get us well. And, in my observations, I have not seen 2 people with the same treatment.

Now if that wasn't discouraging enough, there are many avenues you can choose from. Sad part is, who knows which road you should take. We all gamble on if we are on the right path.

I know I just tried antibiotics and felt nothing for the first 2 and a half weeks and then I was nauseous. I did not feel like they were working for me. So, I began my quest for herbs.

I began with Beyond Balance. You have to have a doctor that can order from them..... So I found him and yet he was not that schooled in them, so I was on my own again. However I never did quit them. I thought they were helping.

Then I went to Buhner's herbs. I found a couple that I absolutely had a bad reaction to and I could not take those, but the rest seemed to help me. I bought all the Buhner books and tried to read them.... but brain fog sure made that difficult. I could not read, let alone retain.

Anyway, long story short and many many months I slowly got better.

But I had a huge head start. 1) I ate super healthy to begin with - pretty much all organic$$$$. Very fortunate that I was able to do this. 2) I was way into detoxing but did not know that is what it was called. I called it healing my body. I drank lemon water, dry brushed (loofa), a kombucha a day, collagen, green smoothies, apple cider vinegar, fermented foods, etc..... All a regular part of my daily routine.

I would advise you to read that New to Lyme thread at the top and find the detoxing methods and begin doing those. Super important!!!

I know you will find your own special way in dealing with this lyme. But let me tell you another big secret I learned...... Lyme loves stress. If you want to feed your lyme be stressed.

So starve that sucker and meditate, be calm however you can. I had to learn to say NO to functions, obligations and volunteering. It made a huge difference.

Sorry you have lyme and sorry you are hurting so badly. But I am glad you found us.

Hang in there our super Marine!!
Posted 8/28/2016 11:58 PM (GMT 0)
May I ask the name of your neurologist? Just want to stay clear as we are in the same county.
Posted 8/29/2016 12:55 AM (GMT 0)
Mike, welcome to our group. We are glad you came and hope that in time we can help you find healing.

I wanted to tell you that I am in a similar situation. I am 64, forced into retirement because I can no longer walk without assistance. To go anywhere I have to be in a transport chair. I have always taken a lot of pride in being a hard worker and having a lot of stamina. No longer! Lol. But I am healing. I get a little better every day.

I found out 6 mos. ago that my issue was Lyme. Since then I have been treating myself. Which is why I wanted to post.

I want you to have hope. When I first got the news I felt helpless. I was clueless as to what to do. I was so overwhelmed with all that is out there.

The best advice that someone gave me was not to feel pressured into any one thing. Just to pick something and go with it. Just get started. And so after a couple of weeks on the forum I decided on a treatment.

I went with Buhner's but there are others out there as well. I have been on it for 6 months. And though I am not yet walking easily, I am getting stronger. Some days I am even able to walk to the mailbox with a cane! That is huge for me and always makes me feel so good to accomplish that.

Healing Lyme can be a slow process, so be patient and rely on hope! We all want to help you through it and look forward to your healing!

I am sorry if this is more information than you want but I can so relate to what you are dealing with. It is still very fresh for me. I wish you (and Lucy and Ethyl) the best!

Thank You for your service to our great country. I can't tell you how grateful I am to our servicemen and women.
Posted 8/29/2016 1:29 AM (GMT 0)
Okay - let's get you going on ordering:

First - would you be okay with taking them in tincture form? There is a tiny amount of alcohol in the tinctures.

If so, there are two sources that many of us use when buying tinctures.

Check out these two places:

www.woodlandessence.com

www.sagewomanherbs.com

Let me know what you think about them
Posted 8/29/2016 1:57 AM (GMT 0)

AzerilA said...
May I ask the name of your neurologist? Just want to stay clear as we are in the same county.

Sure can. It is:Neurology Center: Sahagian Gregory A MD this time after I refused to waste any more time with the first idiot they assigned me to at this same clinic his name was Dr Zupancic. Now Dr Z was just a sleep doctor but insisted he had his act together. Yep, never even looked UP at my wife or myself in TWO visits. Never said ONE SINGLE WORD till I asked him what the....  and best of luck as my health plan OR myself could find ANY single doctor in ALL San Diego County not in this clinic except for UCSD and they were 5 months to see me. My primary care doctor was afraid I literally won't LIVE that long. There is one very bright side and they excel at it The make the VA Hospital in La Jolla look wonderful! Not funny actually....
Posted 8/29/2016 2:08 AM (GMT 0)
Yes I sort of imagine (without ANY direct experience?) that counting drops is vastly easier to deal with as well as find ways to take. Of these 2 it LOOKS as if maybe the quicker and more experienced could be www.sagewomanherbs.com It is would I would gravitate to but mostly she seems fully engaged 24/7?

Girlie said...
Okay - let's get you going on ordering:

First - would you be okay with taking them in tincture form? There is a tiny amount of alcohol in the tinctures.

If so, there are two sources that many of us use when buying tinctures.

Check out these two places:

www.woodlandessence.com

www.sagewomanherbs.com

Let me know what you think about them

Posted 8/29/2016 2:36 AM (GMT 0)

PeteZa said...
Hey Mike, just wanted to welcome you. I am an old woman with lyme but not old in spirit or in heart!

Thank you so much PeteZa. I called MY wife old once. ONCE nono

Posted 8/29/2016 3:17 AM (GMT 0)
Mike you will do fine. Hard to stay calm and relaxed but you have too. Hey, we are in the same state!! Me, I am way up by Lake Tahoe - not on the lake thank goodness - too many tourists!!

As for where to buy the least expensive herbs - hmmmmmm, I did a research for you. I took the main 1st herb that many people take, Japanese Knotweed (Polygonum cuspidatum or Hu Zhang) and ran it through Montana Pharmacy via Amazon and the 2 ounces would be $24.00. SageWomanHerbs 2 oz was $16.oo, Woodland Essence 2 oz was $22, HawaiiPharm (either directly or through Amazon it is called Hu Zhang) was $19.95 for 2 ounces.

SageWomanHerbs was the winner BUT!!!! I did not check the shipping and that can kill you. Sorry, I just didn't want to put all that order information in. So you really need to check that information out.
Posted 8/29/2016 3:30 AM (GMT 0)
We much have some weird ESP thing goin on since I did exactly (well minus one lil thingie) search as you! Wow I LOVE the pricing on SageWoman and looking into shipping but imagine MAYBE over $100.00 offers free? Maybe not at her prices though. Will check tomorrow. Just have to cross over the other 2 things I am supposed to have. Cats Claw was one but I swear I can't remember the third but I'll find it in a few! Plus something for detox but can NOT find Burbur at her site yet in tincture unless a different name. Confusing stuff!
Posted 8/29/2016 3:34 AM (GMT 0)
here is an excerpt from Buhner's Healing Lyme Book in guiding the treatment plan with herbs:


1. Protecting endothelial structures (pg 214) - Polygonum cuspidatum (Hu Zhang or Japanese Knotweed)

2. Cytokine remodulation (pg 214) - Salvia miltiorrhiza (Red Sage) and Scutellaria baicalensis (Skullcap or Huang Qin)

3. Collagen protection (pg 214) - Great lakes gelatin, Vit C, Selenium, etc

4. Immune remodulation (pg 215) - Unicaria tomentosa (Cat's Claw), Cordyceps mycelium (a mushroom), withania somnifera (ashwagandha), Eleutherococcus senticosus, Glycyrrhiza (licorice)

5. Antispirochetal (pg 215) - Andrographis



So, with $100 you have - maybe pick 4 - I would suggest Japanese Knotweed is one you should start with.
Cat's claw is another one that many people use with the JK. Buy the smallest tincture size...for your first order of the herbs.

You can order just order two or three at first ....and see how it goes. You will be paying for shipping each time you order, though.

FYI - another name for Red Sage is Dan Shen - in case you can't find it in the tincture list.
So, on the website - go to the Store, Herbal Products, Tinctures, Single Herbs and select the herbs.

If you want to order collagen supplement - that will be a separate order from another company.


The best thing to do is develop a good detoxing regimen, healthy eating...and then add in a herb...one at a time.
Posted 8/29/2016 3:39 AM (GMT 0)
Thank you! Have 2 already in my cart at her place but couldnt find the one you just gave me:-) Still trying to find the detox name for something in case she offers free shipping over $100.00 We have $180.00 together so NOT limited to below that. LOVE her products, her prices make me feel I have a chance.I OWE you so, SO much.
Posted 8/29/2016 3:39 AM (GMT 0)
For detoxing the best is Alka Seltzer Gold. I never had to take it but it is recommended on many wonderful truthful sites. This seems to be the least expensive "get you over a herx" treatment you can do.

Not just any old Alka Seltzer, it has to be GOLD> on amazon 5 or 7 bucks depending on if you have prime.

I personally love lots of water. I put lemon in one a day. I put apple cider in one a day. I love to dry brush my skin to exfoliate. But a good stiff towel works just as well. Our skin is a huge organ. I bet at CVS you can find a loofa and that works good too. Cruciferous vegetables - eat at a couple meals a day. Bone broth, I get the Pacific brand and love the Turkey one, I do about a half a cup a day of that - super good for your digestion.

It is a whole new way of eating, drinking and being this lyme treatment. But baby steps......

You will do fine. Anyone that can take being wounded in a foreign country is going to do a lot better than me.
Posted 8/29/2016 3:43 AM (GMT 0)
Well we DO have Prime and I be doing the plop plop fiz fiz BOOGIE in NO time! Things are sure looking better tonight. Don't you folks EVER sleep :=)
Posted 8/29/2016 3:46 AM (GMT 0)
Yep, I am hitting the sack now. I love my reading time. Hang in there Mike and someone is always here, so you are never alone.
Posted 8/29/2016 3:47 AM (GMT 0)
If you're talking about Pinella and Burbur?

they aren't available at Sage Woman Herbs or Woodland Essence.

They are proprietary - so they are made by Nutramedix. Two places I have ordered them from are iHerb and Amazon.


So, if you need those two - I think they run about $20 each....or more...can't remember.
Posted 8/29/2016 4:02 AM (GMT 0)
got it. and ON it no chickening out either...
Posted 8/29/2016 5:29 AM (GMT 0)
Mike,just curious as to if you knew about water contamination at Camp Lejeune,NC.
If not,please google.Many nono nono nono I wondered if you were ever stationed there.Many men have had breast cancer that was linked to this.Prayers to you and ethel.
Posted 8/29/2016 5:32 AM (GMT 0)
OK-Placed my order with http://www.sagewomanherbs.com/

Shipping
$10.80
Handling Fee
$1.50

No matter how much or how little. Given her EXCELLENT (to me anyway) prices this is extremely fair in my mind. NO idea how long after placing an order till products ship bt I am SO grateful to you all. To people I have gotten to know so well, so fast. Now to settle in for the long haul, settle in, settle down and hopefully this will work at least a little. I never asked it if is safe to use these herbs when taking my Antibiotic for 3 more weeks. But will soon find out.Well I hope anyway. You are all the BEST. I mean it. Have several juicers and VitaMix and have always eaten healthy, don't drink booze and even stopped my occasional beet the day I hear the word Lyme. Fridge is stocked with the cold Probiotics Girlie ORDERED me to get and I am ready to go,
Mike
Posted 8/29/2016 7:30 AM (GMT 0)
Hi mike blue here .
Herbs that have helped are chinese cats claw for the twitch ,andrographis ,houttynia ,smilax ,lomatium .but in reality we need iv antibiotics according to burrascanos guidelines ...please read he has 20 plus years exp ...also i know i needed more and found that bee venom treatment has been the most effective treatment with iv abx ...get a port a picc a rife ,reverse mortgage cuz it aint cheap ...llmd are out of pocket ..but if you want life and out of that chair than get ready for battle soldier ...learn lots, you are lucky to have your wits and a lady who cares ...fight friend fight..also reishi mushroom ,venom and iv curcumin all have anti cancer effects ..artminisin too, hunker down get out the big guns

Post Edited (bluelyme) : 8/29/2016 1:35:24 AM (GMT-6)

Posted 8/29/2016 7:41 AM (GMT 0)
I think it was only a few days before my orders from Sage Woman Herbs were shipped.


When you get the herbs - start one at a time...very low dose...
Posted 8/29/2016 12:24 PM (GMT 0)
Mike you definitely can take herbs and antibiotics.
Posted 8/29/2016 12:59 PM (GMT 0)

bluelyme said...
Hi mike blue here .
Herbs that have helped are chinese cats claw for the twitch ,andrographis ,houttynia ,smilax ,lomatium .but in reality we need iv antibiotics according to burrascanos guidelines ...please read he has 20 plus years exp ...also i know i needed more and found that bee venom treatment has been the most effective treatment with iv abx ...get a port a picc a rife ,reverse mortgage cuz it aint cheap ...llmd are out of pocket ..but if you want life and out of that chair than get ready for battle soldier ...learn lots, you are lucky to have your wits and a lady who cares ...fight friend fight..also reishi mushroom ,venom and iv curcumin all have anti cancer effects ..artminisin too, hunker down get out the big guns

Thanks and weighed options heavily but with so MUCH health damage to me the past 2 1/2 years and after what those surgeries did to me, I would rather BE in this chair that to reverse mortgage and rob my sweet wife of what little she has left after she worked SO hard to take care of me and my poor health for so long. Biggest reason I considered and nearly did go through with suicidal was to stop HER the expense and TIME that is required of her, caring for me. Embarrassing subject to address "out loud". But still I st, I wonder, will it come to this? I will NOT put her in any jeopardy with the tiny bit left to her after all I have already take away...So if this can help me with herbs alone, even a little I will try. If it does not, I am done...

I also have a high possibility and or probability my tumor is back in my spine since it HAS been twice before. And that causes this exact same paralysis. Getting someone to find it is the hard part since NO MRI or CT scan ever even saw it when larger than a grapefruit. WHY keep paying for MI testing when it can't even see THAT? Just crazy.

I guess where I am,at this very moment is, if ONLY herbs can do anything at all to even just make me a LITTLE more comfortable I will stick to it like glue. It it doesn't help at all, I simply can't take this anymore. I really can NOT. I have been in too much pain for too long and the 2 sides of that coin are my will too fight VS how TIRED I am. Body, mind AND spirit. Not ready to walk away right now. But I really do suspect herbs alone may not even help just a little by themselves. In which case I better count the very minutes I have left as very precious. But then for me, I always have, after all I have seen.
Posted 8/29/2016 5:12 PM (GMT 0)
Mike - I hope you can dig deep and put those thoughts aside. I know it's difficult to be suffering day after day...I'm so sorry for your pain.

You have a plan now...and when those herbs arrive...you can start working towards better health.

Hang in there...and be kind to yourself.

How is the detox coming? While waiting for the herbs to arrive - use this time to prepare your body...effective detoxing is very important.
Posted 8/29/2016 5:30 PM (GMT 0)
Something else to consider, in rare instances, Lyme and Bart can cause tumors, so maybe it's been Lyme and/or Bart all along and why the tumor has come back twice? I don't know what kind of tumor you have, or exactly what kind of tumors those two infections can bring on, but it might be worth looking into at some point in time.

I am another one that will not put my family in jeopardy, so I understand. Just take the long road, and keep fighting this with those of us that are here for the long haul as well. We make a pretty good group!! :-)
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