What else changed for you?

I know this isn't a medical or scientific based topic, but I was wondering what other changes any of you have made due to lyme other than diet, exercise, sleep. For instance, I can't handle having clothes pressing on my hips or waist, so I'm sort of reconfiguring my wardrobe. Will probably cut my hair short because it keeps falling out anyway (not in clumps, but I shed as much as my dog lol). I also do most of my shopping online (even grocery shopping) because I'm too tired to walk that far. I seem to only watch reruns of tv shows or movies I've already seen so I don't have to worry as much about paying attention lol.

I feel like I'm in some sort of 12-step program dealing with so many emotions at once and yet working through all of them. Guilt, anger, hopelessness, anxiety, etc, etc. It has helped me weed out a lot of nonsense, though.

I guess I'm just curious about the little nuances that people changed to make life a little easier. Stuff that other people didn't notice or didn't know were a result of living with Lyme.

I'm guessing we all have made changes. I couldn't do a think in the beginning. Got hit hard not sure if it was lyme or the lyme/abx combo. I stopped cooking, except for myself. I stopped cleaning. Husband and son learned how to do both (shocker!). I order all supplements and groceries online. Luckily I live in Manhattan so I can have groceries delivered. I enjoy the market for fresh produce but for now that will wait. I had to cancel three summer vacations. I decline all social invitations and just say "I have a personal conflict." I don't tell many people. I told a few in the beginning and the responses were: 1. "Everyone has lyme it's no big deal." 2. Everyone I know has had lyme you just take the abx for four weeks and your fine." 3. "Don't go o the message boards they are all crazy people who like being sick." LOL - guess I like being sick. The biggest challenge is future planning. I want to accept a job I have been offered, I was to go visit my mother, I want to plan winter vacations. First world problems I know, but I don't like not knowing. Some good changes are I now meditate every single day and I have gotten to read several books I hadn't had time for.

I like this post. It puts things in perspective.

Denikeef, sorry you have to be in a wheelchair when you go out. I wouldn't be great with that either. Loved hearing about your husband, cooking and grand kids. Those are the important things in life.

How do you find Facebook Lyme?

Thanks.

I am just more inclined to stay home now. I don't have the energy I used to have for running around town, doing errands, working two jobs, and exercising.

I miss the exercising the most. I miss being able to go for a run. I try sometimes to exercise, but it is very difficult. And I feel that running is out of the question for me now, when my lyme went into remission for a couple months I went on one run and I cried at the end because it was so amazing to be able to use my body like that. Waiting for that day to come again sometime:)