Random lyme symptoms or Bart?

He everyone,

Had a stressful week last week and very little sleep. But ok. Past two days I have been having weird feelings in forearms/hands and shin/ankles. Sort of mild and not painful. I was able to take a one mile walk yesterday and today. More like a weird feeling - can't explain the shin feelings. The temps also dropped so I wonder if it is a change in barometric pressure - which usually makes me feel more of something.

I'm only on eleuthero and still haven't added in stephania. That was going to be my first 'killing' herb. Wanted to build myself up first.

QUESTION: Should I try Teasel since I seem to have mostly mild arthritic pain (or what I think arthritis would feel like?)

Thanks.

Huddie said...
He everyone,

Had a stressful week last week and very little sleep. But ok. Past two days I have been having weird feelings in forearms/hands and shin/ankles. Sort of mild and not painful. I was able to take a one mile walk yesterday and today. More like a weird feeling - can't explain the shin feelings. The temps also dropped so I wonder if it is a change in barometric pressure - which usually makes me feel more of something.

I'm only on eleuthero and still haven't added in stephania. That was going to be my first 'killing' herb. Wanted to build myself up first.

QUESTION: Should I try Teasel since I seem to have mostly mild arthritic pain (or what I think arthritis would feel like?)

Thanks.

Have you ever had those feelings come & go before? I only ask because ALL my troubles began that exact way when I was walking 1-2 miles per day every single day after having 6 cervical & spine fusions. Then, out of nowhere, I got a sort of odd & tingling (just ODD) feelings in my shins and now here I am.....now, since beginning Stephen B Protocol I have now begun getting those same feelings WAY up high at the very top of the front of my legs near the hip area. I sure hope this doesn't progress as I have already lost my ability to walk. You are the first person I read about who has anything weird in the shin areas so I want to see what happens and sure hope you do better than I did Huddie.

Huddie, I don't recommend stopping herbs and supplements. That puts you behind the eight ball, so to speak. I would maintain or lessen for a few days, but I never stopped. Something is better than nothing.

I don't think Teasel is appropriate for this point in your treatment. And here is why. www.tiredoflyme.com/teasel-root.html

Are you building up your body with collagen? That is what I would do first.

Also you want to stop the inflammation brought about by BB, breaking down the collagen throughout the body. This would be Japanese Knotweed, but since your body cannot handle that, then the Stephania should be taken.

I like Buhner's idea of getting the body ready for the big guns after you have prepared for them. You help get your immune system ready to take over the fight first and then help it by bringing in the heavy anti-spirochete herbs.

Make sense? It is a methodical avenue to strengthen and build up and then go for the kill. That is why diet, detoxing, sleep and mental attitude are important in the treatment throughout also.

Breaks in the treatment can delay and let the bugs dig in deeper. I like to keep them scrambling to try and find a safe space to hide. And I don't quit -- I keep attacking so there is no safe place for them to hide.

If you need any help, hollar. Been there, done that and I bought the t-shirt.

I went through huge stress last month with my grandson. He is my eldest grandson and is in some trouble with the law - stupid 20 year old stuff. I feel for him because his mother is no longer living, my daughter, but he can stress the heck out of me. I don't want to mother him, I want to grandmother him.

Slow and steady wins the lyme race. I had a glass of wine every once in awhile when in treatment - that is Sugar with a capital S. But otherwise I don't like sugar. We quit white flour a long time ago. Now they have so many good substitutes - quinoa, etc.

You can do this. I know you were feeling tired and that is why you did the eleuthero, but maybe quit it and start the Stephania. Then next how about some Red Sage and Skullcap. Oh and get that gelatin or collagen going. One at a time but you can add in that collagen or gelatin any time on top of the herbs. It will really make a difference.

Oh and baby yourself. Hair, nails, whatever. You have to treat yourself so you feel special because otherwise you feel like a sick person and that is no fun!

The weird ankle feelings- that was my first symptom! Its hard to describe, its like a weakness but not a normal weakness. Just a funny feeling.

FWIW i have tested positive for Bart, C. Pneumonia and M. Pneumonia. Not lyme (yet)

PeteZa said...
You help get your immune system ready to take over the fight first and then help it by bringing in the heavy anti-spirochete herbs.

Andrographis is the only specifically anti-spirochete herb, right?

Is it enough to combat lyme?

Huddie said...
JustMike,

I have been wondering how you are. How is it going? I'm so sorry for all that you are going through. Hope the herbs have been good to you and your herxing has let up.

I know calf/shin things can be Bart, according to the Bart checklist. I am fairly new to Lyme (bit in July) and was an avid exerciser before two years ago (injury and fibro) then someone who walked every day before lyme. That said, I did nothing from July until this week. Two other one mile walks that you actually inspired from one of your posts. I only walked yesterday and today. I already had the shin feelings before the walking began. I actual though the walking would help and it did. I stopped supplements/herbs over weekend, had a ton of stress last week and ate gluten one day and sugar the next, and didn't really sleep so I think it is related to that and the temperature changes. Who the heck knows anymore. But now I'm nervous. I don't want to lose my ability to walk. My followup isn't until end of October.

Well the fact you CAN do the walk is magic to me anyway. My advice and I know NOTHING about Lyme yet, is walk while you CAN! Having lost that ability in just a single day when I collapsed and then lost the 2 1/2 inches of both calves in just a few weeks....well it scares me half to death so do all you can while you can unless that is a Lyme no no? I'm the last one to know what is good OR bad on that level but now I can't even stand up on my own for over 3-5 seconds and I collapse. I take all 3 of the Stephen B Protocol. I THOUGHT I had made it all the way to full dose already in 29 days but just found out the instruction on my Sage Herb Tinctures are NOT for Lyme...so it turns out I am actually only exactly 1/2 way to Mr B's FULL dose of of 1 full teaspoon of each of the 3 herbs. someone told me I likely have Bart so I REALLY load up on the Japanese Knotweed early on.

Today is just day 29 or 30 since I began herbs so hopefully being at full "bottle" recommendations but only 1/2 of the BOOK recommendations is doing OK? I wish I knew how to guid YOU but don't have ME figured out yet but sounds like you at least have a Lyme doctor? I simply can't afford one so my primary care gave me the 28 day course of Doxy but now I am ON MY OWN! I can't really afford the Sage Tinctures anymore and they only have pill for for Cats Claw so I need to shop around for pills or powders wherever on sale and hope to someday be able to walk again. Got some antidepressant and pain medication called Lyrica that stopped the thought of suicide and sobbing/panic attacks IN THEIR TRACKS first day! God how I wish I had confess to that problem and issue and not worried about the humiliation a LONG time ago....What this disease does to us and the thousands we spend being misdiagnosed is worse that all the War and VA ever did to me.

If I ever learn anything and ever get better I swear I will make it my lifes work to help others and do EVERYTHINGI can for all those who also feel so lost and so alone. It is a horrible place...

Thanks Girlie,
Just placed a new Sage order yesterday for 8 ounces of the big 3 herbs and it shipped 3 hours later. I have to begin looking for the pills and maybe even powder I can just add to a glass of water from here on though. Wanted to stay with one stable source as long as possible to get going at least

PeteZa said...
Mike, I did Amazon for most of my herbs. Many I got the "prime" free shipping. One day I shopped around for my supplements, not my herbs, and I had 3 web pages open for 3 different vitamin companies and cost compared. Vitacost was the winner that day. But I haven't done that in over 4 months now, so it may have changed.

Any time you need to find out the least expensive cost for an item, come here and ask. Especially if you don't feel like looking everything up. We will gladly do it for you, at least I will if I am around.

I remember how hard it was to cost compare when you are sick. Hard to do anything actually.

Thank you-I have Amazon Prime & subscribe and save for a TONE of Lyme "supplements as of last month.. Had all my "Big 3" set as well from Amazon but that jerk from the online herb store scammed me into doing a cancel by telling me I bought all wrong items and HE could sell it far cheaper etc...live and learn.

Tomorrow I will get in my new book-the revised edition and write down what the exact dose is of each of the 3 herbs PER dose (not per day (or visa versa?) so I can THEN do the math and know how much (how big a bag of herb powder) or how big a bottle of pills I need per month for a FULL dose and then know exactly what to do. I was SO panicked 30 days ago when I was read by my neurologist that I had lab tested positive for bands 39 & 41. I just lost it and am still struggling with hope VS despair. I also imagine I am pushing myself WAY too fast to full protocol but when you lose all use of both legs and have such severe muscle wasting, well I think anyone would panic?

When I saw this thread with Huddie my heart sank since I worry and wonder if this will happen there as well? I just don't know anything about this stuff yet but just keep trying to tell myself non prescription herbs alone MIGHT give me back a life. Never said I was real smart:-( I just hope Huddie doesn't have exactly whatever I have?

Treating for lyme was where I began and some of the symptoms that overlap with Babs and Bart were eliminated.

At the end of my treatment when I was feeling quite a bit better, I was afraid that once I quit the lyme treatment Babs and Bart would show up.

So I decided to take the Babs and Bart herbs just in case.

Everything worked out fine.

Mike, it is horribly scary - this lyme journey. It can seem very overwhelming. Heck I was so bad at one time I could not remember if I took my morning dose of herbs or not. Then a couple hours later I could not remember if I took my lunch dose. I was a basket case. I had to figure out a system that was foolproof in noting that I had indeed taken my herbs.

It really is a slow methodical approach to getting well. I have not read of a fast way yet.

After about the past 10 months and THOUSANDS of wasted dollars with conventional medical care and testing it was their utter incompetence that led me to walking away from them 4 weeks ago once I got my blood test confirmation for lyme. Then was told not to worry about it becase "we don't get Lyme" around here? Good God...

I am stronger than most anyone you find but a week or so after that day I literally began to unravel to the point suicide became the only road I could see myself on to end the physical & emotional pain and to get my wife to STOP wasting all this money on e and risk losing our home to keep me alive. The prescription for Cymbalta (duloxetine) stopped THAT stupidity in it's tracks or I wouldn't even be here. And that is NOT who I am or ever was so it is yet another layer that the inhumane suffering Lyme lays on our tables. Having been abused by the VA for 45+ years I was used to it and had very thick skin. But after so many surgeries and having lost so much I was exhausted. Hell, still am and likely always will be (I'm OLD!) But I never quit in my life so this is very scary waters I now navigate.

I will let my wife spend $200-$300 a month for a year or two if I even survive that long, for herbs and the like but no more. So I have to make every penny count and I am just far too damaged already BEFORE Lyme to be "worth" more of an investment. And my wife's own struggle with her Cancer left me with the determination that our home that SHE worked herself half to death to pay for while I was out surfing and wasting MY paychecks on 4 wheel drives, motorcycles and jet skis, would be there for HER. I have no title to that and will not let her borrow against it when I am so beat up now at age 68 come February and with all these major surgeries in 2014 that nearly killed me and did cripple me for life. If we can just make me somewhat "comfortable" and just mitigate this Lyme to the point it can be somewhat contained? THAT will be good enough for me. It's just when you see ALL your muscles waste away so fast (almost instantly in my case) I became terrified. I think we ALL are when we get up one day out of the blue and can't move, walk, go to work or even do the dishes or get the mail?

I hope my "economy approach" if you can call two or three hundred MAYBE four hundred a month for my herb & supplement care program works. Or at least has a CHANCE to help. If it doesn't, I feel I at least tried? If I was young I would chase the "cure" to the ends of this earth. This group is an AMAZING resource and it's participants nothing short of my Guardian Angels of sorts. It lends itself to the becoming an actual lifeline for some of us. Had I not found this place 4 weeks ago, I wouldn't even be here now. So, when I get "grumpy"? It's all YOUR fault! In the meantime I will be taking my 3 main herbs from Stephen B., plus I also just added Full Spectrum Andrographis to those yesterday just to see if it helps or hurts but have NO idea what I am doing. But I AM trying...

Hope so, wife is reloadin'