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Yolanda & Bella Hadid doing a clinical trial

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Posted 10/16/2016 11:59 PM (GMT 0)
Yolanda on day 12 of clinical trial (of 60 days) and feeling 90%. Bella just started as well. I'm very excited about this! Just wish I knew what "it" was!

www.bravotv.com/the-daily-dish/yolanda-hadid-lyme-disease-is-she-closer-to-a-cure
Posted 10/17/2016 12:00 AM (GMT 0)
Any guesses? She's closely linked to the Global Lyme Alliance - this was at the Gala this past week. She also sees Klinghardt.

Post Edited (k07) : 10/16/2016 7:57:31 PM (GMT-6)

Posted 10/17/2016 1:34 AM (GMT 0)
Gosh I love Yolanda!!!...She has really brought alot of awareness & put lyme disease on the map!

I just love her as a person too. She carries herself well and seems to have a great heart <3


-Courtney
Posted 10/17/2016 2:45 AM (GMT 0)
YOU GUYS WHAT IS THIS CLINICAL TRIAL?!?!?!?!?!?!?!? NEED THE DEETS 😭😭😭😭😭😭
Posted 10/17/2016 3:04 AM (GMT 0)
I thought dr. Sapi was working with a pharma company last year for a new new drug....maybe is a trial for that.
Posted 10/17/2016 3:33 AM (GMT 0)
Maybe curza 99 is in phase 3 ..its supposda come out 2018....i hope it doeant cause aplastic anemia ....and or cost 40k $

http://www.curza.com/Technology
Posted 10/17/2016 12:23 PM (GMT 0)
Well, I know she's done 9 months of IV antibiotic - my thoughts were something natural or possibly a persister drug. Since Bella has joined so quickly I don't think it would be anything with a high amount of risk. This is all just my speculation. Possibly something with Bee Venom? Is there any trial with that?
Posted 10/17/2016 3:33 PM (GMT 0)
85 -90 percent seems like heaven!

Seems those of in the trenches might know of lyme trials? Would love to know what it is. Is there any way to find out what clinical trials are being done?

Also, for those of us with bee venom allergy, BVT is totally out, right?
Are you using actually bees, or injecting with some component of them?

I love the idea of bees but seem to have developed a systemic reaction when stung (by wasps at least - assuming they are in the same category)
Posted 10/17/2016 4:09 PM (GMT 0)
Most use actual bees - much cheaper. There's something about the energy of them giving their life for you...I know Klinghardt likes BVT and Sapi is doing research - Sapi is a researcher for Global Lyme Alliance which Yolanda & Bella are a part of. I'm sure if Sapi is working (or already has) on a way to use venom from the bees as injection.

If I really had to only take ONE guess, it would be that she's doing a persister drug - IV daptomycin.
Posted 10/17/2016 4:15 PM (GMT 0)
I thought that I read that when NY york lyme doc H used IV Daptomycin, he found that 4 months (felt great and then relapsed) was not long enough and that patients had to keep at it for a year.

I read that H's wife did it for a year.......He said that she was feeling better than she had in a long time...... I don't know how long that lasted...

( i think that this information was in the Darryl Hall interview)

Can we write Dr H's name since he is so well known(?) or better not to?
Posted 10/17/2016 4:45 PM (GMT 0)
The dr h with the giant book? His wife has lyme?
Posted 10/17/2016 4:48 PM (GMT 0)
Ok, so maybe it's not dapto! I kinda hope it's not since it's IV and not everyone has access to that. Yes, I think he mentions his wife doing dapsone too and doing well with it. I've never heard him say straight out that she has Lyme though.
Posted 10/17/2016 4:50 PM (GMT 0)
If it is true that this trial drug works I am sure that people with lyme would flock to their LLMD to get their hands on this. I can see how some doctors might not even prescribe it with few exceptions. Also imagine the drop out in use of antibiotics......I really wish there was something that could help us. However Yolanda seemed pretty bad, as she was doing all sort of IV therapies. She is my age.....and I am really hoping she is going to get better.
Like someone said above, I am also hoping this new "medicine" is not $40K
Posted 10/17/2016 5:06 PM (GMT 0)
She never says it's a drug though. Who knows. The only info is that it's 60 days - could be a diet. But would they do a trial for that?
Posted 10/17/2016 5:10 PM (GMT 0)
A diet, mmmmkay.........I want to believe it but I do not want to delude myself. Here at HW forum probably most of us is willing to be on something for life to have our life back 100%.....then again, being on something for life, lets say is a all liquid diet, it is not back to normal. It means only managing the disease to pretend to live a normal life.
Posted 10/17/2016 6:02 PM (GMT 0)
I would be disappointed if it was diet too - since I feel like my diet is good. I may try ketogenic though. 60 days isn't very long in the lyme world - let's hope it's something novel!
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