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I need some honesty with these symptoms...

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Posted 10/21/2016 8:21 PM (GMT 0)
I have been OFF antibiotics for 3 weeks now. My doc wants me to transition into herbals and see how I do. I've started with Cat's Claw and am adding Japanese Knotweed next week.

But here's the thing... there's one darn thing lingering and I can't figure this out. My story starts 3 years ago when I started to feel off balance all the time. Short story long - my ENT said I needed surgery and that would help. Up until that point there was no indication of Lyme at all. After surgery and in recovery, I found 2 ticks crawling on me. They were NOT embedded. I didn't think anything of it. Months later is when the physical stuff started with groin pain. The off balance thing was pretty much under control by then.

Fast forward after several Lyme tests and being on the fence I finally got to my LLMD in March who treated me for months. That took care of everything wrong EXCEPT the off balance crap. And I mean right now it's borderline vertigo. If I'm walking and sidewalk dips, I feel like I'm falling. If the sidewalk goes up, I feel like I'm falling. If I cross my leg over the other, I feel like I'm falling. If I turn my head, I feel like I'm falling. And it's gets accompanied by head pressure and eye pressure.

I cannot figure out what this is or what to do.

Another thing is that I get "dizzy" when I chew! If the food is crunchy at all, I'm screwed.

The second this feeling hits me it triggers anxiety and fear. I am in a 24/7 state of FEAR. True fear. I can't believe I'm admitting this on a public forum, but it's true. I am deathly afraid of Lyme coming back, not being gone, and never going away.

Now, I had posted before about all the blood work done in September that showed there is NOTHING wrong with me. Every level, co infection, Lyme band, etc. EVERY SINGLE BAND WAS NON REACTIVE.

But I am in fear. The anxiety is eating me alive. I feel like I can't get anything under control.

My doctor is a good man and helps me a ton. He willing to do whatever it takes. So I'm not worried about him. I just need to know what to do... can this be Lyme? Can it just be I have something wrong with my head,eyes,ears?

Better yet... CAN ANTIBIOTICS DO DAMAGE?
Can antibiotics take months to get out of your system?
Can you body take months to get used to not having medicines?

I fee like I'm trapped right now. I don't know where to turn. I'm afraid to put more medicine in my body. I'm afraid if I don't I'll never heal. I'm afraid I'll never heal. I'm afraid this feeling is my new reality forever.

And my head just spins, spins, spins.

Now, when I say "dizzy" I put it in quotes but it's not that things move and spin, but I feel like I'm moving and spinning. I just get this sensation across my eyes and in my head that make me THINK I'm going to fall or trip or something but I never do. Does that make sense?

I am so darn confused.

Post Edited (JimWisneski) : 10/21/2016 3:28:19 PM (GMT-6)

Posted 10/21/2016 8:39 PM (GMT 0)
So you are ON antibiotics now? - you said for 3 weeks you've been on.

But later you mentioned you were treated for months. So you went back on treatment just for 3 weeks?



There are some risks from antibiotics - the main one being - killing all the beneficial bacteria in your gut...and the resulting issues that creates.

The fluoroquinolones can cause some permanent serious issues - that's why there's a black box warning label now.

I don't know of any antibiotics that would cause permanent damage - resulting in your 'off'balance' issues.
Posted 10/21/2016 8:40 PM (GMT 0)
What is your LLMD saying about this symptom?
Posted 10/21/2016 8:46 PM (GMT 0)
So basically it was your first symptom and the surgery triggered more symptoms which are now resolved? Did you have anything done before the vertigo-like symptoms started? Like moving or dental work or even a vaccine? It is likely a Lyme symptom but possibly could be due to something else. It's great you are doing the herbs (especially Jap Knotweed since it can cross the blood brain barrier) but maybe explore other things too. Or maybe you already have? Ideas would be viruses, metals, mold, etc.

Also, do you have any amalgam fillings?
Posted 10/21/2016 8:53 PM (GMT 0)
Abx do some damage to our body, but bacteria do more damage. Damage from abx can be reduced by taking probiotics. If you feel unease, you can always go herbal route.
Posted 10/21/2016 9:29 PM (GMT 0)
I meant to say OFF antibiotics! Sorry about that.


Yeah, no fillings. I've moved since the original stuff started 3 years ago.


I'm wondering if it's fear and anxiety induced to a point also. I'm terrified of medicines, including anxiety meds that I may have to take all the time. How silly, no?


My LLMD wanted me to give it a few weeks, which I did. Hence why I have another appointment Monday night with him.
Posted 10/21/2016 9:35 PM (GMT 0)
I used to experience fear and panic, which in part was PTSD, but I think also this disease. It cleared with treatment. I went an all herbal route. I found this really great article, synchronistically, when researching something else, about anti-biotics. Very good read. http://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0117207 What anti-biotics were you on? This recent research implies that a mix of different kinds can be good for resistance. Good luck! Hang in there! and yes.. antibiotics can be damaging to your gut, so you'll want to take care of restoring your micro biome. An overgrowth of candida an actually cause cognitive weirdness.
Posted 10/21/2016 10:11 PM (GMT 0)
have you been evaluated for tmj? Anxiety can cause many symptoms of Lyme no doubt.
Posted 10/21/2016 10:14 PM (GMT 0)
I have balance issues also but not nearly as bad as yours. I currently think they're a symptom of the Bb or coinfection but I am still actively treating.

Back in July I added acupuncture and meditation and tai chi chih (movimg meditation not martial art) and I truly believe they are helping both mind and body. It seems it could help some with the fear and agitation at least.
Posted 10/21/2016 10:17 PM (GMT 0)
Jim antibiotics taken for a period of time as long as yours would not irreparably destroy your gut. You would have to take them much longer for that to occur. Tbh any wiping out of the microbiome on your length of time with abx would be able to be restored with good probiotixs and a good diet so dont worry.

Also antibiotic treatment is supposed to continue until ALL symptoms disappear including your vertigo and anxiety. Then you stay on them for three months with no symptoms then switch to all herbals. But its possivle that herbals can wipe out this vertigo and anxiety too as they are very effective. Please discuss this with your llmd.
Posted 10/24/2016 3:44 PM (GMT 0)
Thanks for the replies here. I have a LLMD phone appointment tonight. I'll discuss everything. I just can't stand that constant feeling that I'm going to fall over. It's driving me nuts. There are times when it gets bad enough that my stomach feels sick.
Posted 10/24/2016 3:53 PM (GMT 0)
Do you know if your body is actually 'swaying" (for lack of a better description)? I know that for me, I would feel that "dizzy" feeling (very similar to what you describe) and discovered that I wasn't moving at all (I asked others!). This was a dysfunction happening in my body. For me, treatment for these infections cleared it.
Posted 10/24/2016 7:24 PM (GMT 0)
YES! Nothing ever moves. I don't move. I just feel like everything is moving. Like that pressure you get in your head when you're actually dizzy. I have never once tripped, fallen, etc etc etc

I just feel like I am going to ALL THE TIME.
Posted 10/25/2016 1:06 AM (GMT 0)
Jim it happens to me ...if i look at something far then close ...i woke up with spins some days ..and im having to use xanax to not freak..bvt has helped ..but hey pic your poison....i know some people that 6byrs abx dindnt help but 3 of bvt did ...i think is nerves damged by bartonella that have effecred my tolerance ..i used to be cool as cucumber. Its likebi been drunk for a year and 1/2..sad is i am kinda getting used to coping with it

Post Edited (bluelyme) : 10/24/2016 7:09:10 PM (GMT-6)

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