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ALL blood tests come back normal

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Posted 10/27/2016 1:32 PM (GMT 0)
Good Morning,

Something that I have been struggling with this morning; every one of my blood tests have come back normal Not JUST the Lyme but, all of the minerals, liver/kidney/muscle/thyroid ...etc.

The frustration I have is that - with all that I can feel is going wrong - how is this possible? How is it that the disease can cause all of these symptoms but not elevate any levels anywhere?

For instance, I have put on 40lbs in about 2 years with the only changes to my diet being to make it better. I was excersizing 2 hours a day (about 13,000 steps) and couldn't lose a pound and THAT isn't normal.

For someone who already has body dysmorphia ... this is a HUGE issue in this process.

I have taken out gluten, dairy and as much sugar as I possibly can (no added sugars) I was on the Whole 30 diet for a while but, no results.

Some days, I push myself to walk a lot (Ala the days I was in Disney) but, most days .. the weather is too cold for my joints or my neck/back hurt too much to get out and walk .... etc.
Posted 10/27/2016 1:40 PM (GMT 0)
Did you go to a LLMD?

Sometimes a regular doc will tell you tests are normal but when you get a copy they may not be totally normal. This mostly happens with thyroid. Post your results on here.

Also, I was normal on all the regular tests too (cbc, etc). But once you dig a bit deeper - like looking at the complement c3a, c4a, these were abnormal.

Was your lyme test through a standard lab? I had NO bands on my last labcorp western blot but a positive C6 ELISA at the same time. Actually, my c6 Elisa was crazy high.
Posted 10/27/2016 1:56 PM (GMT 0)
My tests were all through LLMD.

I have requested all of my blood work tests and I will post them on the forum when I get them from my provider.
Posted 10/27/2016 2:13 PM (GMT 0)
If any of the bloodwork is through labcorp you can create an account on their site and view it.
Posted 10/27/2016 2:23 PM (GMT 0)
That is so frustrating. My first lyme test with my doctor was an Elisa test and done through Quest lab. I was negative for lyme.
Posted 10/27/2016 2:29 PM (GMT 0)
I agree with k07. If you dig deeper, you may find something. Especially with thyroid. Were all the thyroids done? Did you have your hormones, esp cortisol tested? I too, a few years back, put on excess weight. Nothing I did changed. Cleanses, paleo, low carb. Then I discovered I had very low cortisol. We addressed that and the weight dropped. I am not saying that is your issue. Everyone is different. But keep looking.
Posted 10/27/2016 2:59 PM (GMT 0)
I am unsure if she did a coritsol test or not. I know she did a T4 and they did a Thyroid test a few months back. As soon as I get all my labs back, I'll post them and - maybe you all can help me decifer.

It is the worst part about this whole thing. I can handle the pain and fatigue. I am having a VERY hard time - mentally - handling the weight gain. I don't want to even leave the house ...
Posted 10/27/2016 3:35 PM (GMT 0)
Thanks 1000daisies. I didn't do IGenX yet because of $$. Everything I have had done, I've had done via regular doctor because insurance covers it. It's an issue of $$ for a lot of this.

The other issue is that I haven't been able to find a Lyme literate doctor - in my area - who is able to see me and who isn't $400 per office visit. I live in a small area and most doctors around here only know as much as I know from research online.
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