Update- I feel like I can talk to you more than my doctor haha

It seems like every time I send a message through the portal that my doctor uses (she will not talk on the phone) that she doesnt realize it is me and just gives a general response, kind of annoying honestly. I had my visit last Thurs, and felt even worse on Friday which I relayed to her in a message on Friday. Sent another message on Sat about how I was not feeling well still, and she responded to my second message first:

Basically stating that my symptoms described (tired, run down, lack of being able to stay asleep, headache, sore and stiff neck and shoulders, no motivation) are not normal and are typical of Lyme, Bartonella, or mold. Well duh I have Lyme and Bart....

Then she sent me a message yesterday in regards to my first message on Friday telling me that either I was having a reaction to the Minocyclin or I was causing a huge die off at once. So she said to go off the meds and eat a healthy diet.. ummmm

Well I switched from Biaxin/mino to Rifabutan/Mino on Sunday, and since after my salt massage on Sat afternoon I have felt pretty good. So either its the massage, the new meds, a lapse in feeling bad, or all of the above, but besides a little tingling in my shoulders and slight stiffness in my neck and being a little tired i still feel ok today (last week same thing I felt great sun-tues, then weds started to feel crappy again).

I am at a loss, does this happen like this to anyone else, literally having these symptoms and then suddenly having a day or days when you are fine besides maybe a little brain fog? I dont know what to do :(

First off you have to remember that the doctor MUST give you a generic message. She can't have anything in typing that you can use if she mis-guides you. I understand her somewhat canned answers.

As for your symptoms, gosh lyme symptoms just do not make sense! I think that is the first thing I had to learn. That no matter how good I did my meds, how much I detoxed and how wonderful I ate..... I got a symptom! It was like I was doing something wrong.

But, I wasn't doing something wrong. I was killing bugs. The bugs were dying and some were running scared to try and find a new comfy place to hide from the meds.

I never gave up. I just kept chasing those bugs and doing everything I was suppose to do.

Now, I say this, barring allergic reactions. I had a couple of those and they happened right away with a new med. This is why the low and slow part of treatment is stated.

But, if you have been on a med for awhile and you are getting symptoms, it is just the nature of the beast. It is trying to counteract what you are trying to do. Stick with it and you will win.

Just do all the right stuff and hang in there. Detox is so important!!! Good food and good sleep and I always emphasize fun or happy activities or thoughts.

As PeteZa said, you simply will have symptoms, you have an infection. The symptoms take time to go away, but they will have "cycles" where they will ease up some and then come on a bit stronger throughout much of the treatment until you near the end of the treatments.

With that said though, each time you start your abx (from what I'm understanding from your post), your symptoms increase. This is due to the die off that happens as we treat effectively. When the bacteria die, they release toxins. These toxins are what symptoms can appear or increase.

This is why we encourage every member to help their bodies by detoxing. We each need different levels of detoxing, depending on what all we are dealing with because things like multiple infections, mold exposure, gene mutations and other things affects just how well our bodies can move the toxins out.

What all are you doing to help your body detox?

I did get a sore throat initially and it was a weird sore throat. Weird, in that it was different than any I had ever had. Because I told this to my doctor he said I had a sinus infection because of the symptoms I described to him.

I had lyme. I don't know if I had bart or babs also. I treated lyme and a lot of my symptoms went away. And at the end of my treatment I did take some herbs for bart and babs. I am pretty sure I had bart. I had feet that felt like there were glass in them and I did get the classic "stretch mark" looking thing that bart is known for.