HealingWell
Search Close Search
☰

Lyme: most hits on the web

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/23/2016 5:57 PM (GMT 0)
I taped a Fox special called Lyme 2.0. Before the show aired there was pre-show piece where the head of Fox spoke about how he ok'd the show because his wife has chronic lyme.

He didn't think the show would have many viewers but it was there most watched segment ever. So much so, that they added the second segment, hence the 2.0.

At one point he said the two most searched for videos on the internet are Hip-Hop and Lyme disease. (Not ****?)

That's an awful lot of searching for a disease that doctors don't believe exists :)
Posted 11/23/2016 6:03 PM (GMT 0)
I think it is epidemic. I live in a town of less than 500 people. Actually it isn't a town, it is an area. No township, or population sign. And, right here in this dinky spot, I know 5 names that have lyme. And, I only know a handful of people that live in this area because we are so remote.

I know I am in the forest, but gosh, the ratio is high. Oh and I am in California - clear across from where lyme started.

I can't imagine how any are on or near the east coast.

Yep, in my mind it is epidemic. But no one important is brave enough to come out and say it.
Posted 11/23/2016 6:17 PM (GMT 0)

1000Daisies said...
I know sooooo many people IRL who have lyme disease and company.
For some, they are chronic and tend to have relapses.
For others, they get treated briefly (eg hospitalized) and seemingly get better - and not chronic.
There are others that are treated briefly, get better, and then have some lingering odd symptoms that they never relate back to this.
Such variation for sure!
:(

Exactly! I'm so glad you said this.

It definitely varies. But that is kind of the problem. Because the majority (over 50%) fall somewhere in the get treated briefly and get better (my sister) or get better but some lingering issues (Me, My mom), it's not going to get the same attention as illnesses where people often die or have babies with deformed heads.

Sadly because most lymies "look okay" and aren't dropping like flies, it's not going to grab the societies' attention.

Some of my coworkers have a some pretty lymie symptoms, but they just live with it. The response I get from them is like "yea, this *insert symptom* or that *insert symptom* happens some times, I don't know why, it just does sometimes oh well."

I just say "yea who knows, right? *fake laugh*".
Posted 11/23/2016 6:24 PM (GMT 0)
watching the video now...thanks Huddie- sent you a PM
Posted 11/23/2016 9:03 PM (GMT 0)
Here are links to watch part 1 and 2 of the FOX5NY shows "Lyme and Reason":

/www.lymedisease.org/fox5nys-lyme-reason-special-report/?utm_source=Thanksgiving+2016&utm_campaign=Thanksgiving+2015&utm_medium=email



/www.lymedisease.org/lymereason-2-fox5ny/?utm_source=Thanksgiving+2016&utm_campaign=Thanksgiving+2015&utm_medium=email
Posted 11/23/2016 9:17 PM (GMT 0)
Lyme or maybe Rocky Mountain Spotted Fever. Maybe RMSF is pandemic in my area of Missouri Ozarks.
Every time I mention it to someone, they know a relative or friend that "almost died from it".
Every time.

Yet RMSF is still a lesser talked about infection. I cried tears of joy at the extensive info Buhner put in his 2nd edition.
Posted 11/23/2016 11:16 PM (GMT 0)
Leave it to Trav to have links. Thanks Trav!

Warning: I was going to watch with my son so he could learn more about the disease he now has but it does mention suicide, so just thought I would let you know - may not be suitable for kids.

My LLMD thinks Lyme is a pandemic -not just an epidemic. I believe him.

Met a woman in the health food store today (we are now upstate for holiday weekend), I had a probiotic, astragalus and Kefir in my hands and she inquired "Lyme?" Her sister had Lyme so badly she had to have a complete blood transfusion - complete. I have never heard of that. Which got me thinking about people giving blood - how do we know we aren't getting lyme blood when we are in the hospital?

I'm on a roll...

Dacarte - the fake laugh. I know right!
Posted 11/23/2016 11:19 PM (GMT 0)
Huddie I would not give nor take a blood transfusion. There are blood enhancers you can take. But, I did tell my husband if my life depends on it, he gets to make the decision.
Posted 11/23/2016 11:32 PM (GMT 0)
Peteza,

I totally agree. Yikes.

Apparently this woman was so sick and hospitalized and it was an emergency situation. Let us never get to that point. Especially you, since it sounds like all five people around you have Lyme. Sorry. Bad Lyme humor.

It actually sounds gorgeous where you live and probably why you healed so quickly. I was so sick all last week, as you all know, captive audience that you are, we're in the country now and I feel so much better. Not great, but night and day.
Posted 11/24/2016 3:28 PM (GMT 0)
Huddie - CD named me "Queen of links" - LOL! I love using links because it's not me saying these things that way, I'm showing where I got my information. I don't know much, but I do know how to research a lot of things online! LOL!

And Lyme is Pandemic - it's a world wide issue, made obvious by Lyme forums and where their members are from. Even though this forum is based in the U.S., we get people from many other countries that can't find the help they need.

We do try to get the word out about not donating blood and not donating organs once you have been infected with these diseases on here, and of course I spread it all over Facebook and other forums as well as by word of mouth - even when talking to hospital staff!! Ha ha ha!!! They asked at the hospital day before yesterday if it was okay to give my husband blood during the surgery if he needed it - I said "Not until you come talk to me!!!" She looked at me funny and I simply said that the blood supply if far from safe. I was winding up though after a bunch of stupidity that had been dumped on us, and hubby could see it - so he touched my arm (our signal) and he took over the conversation, but essentially said the same thing as I did. No blood to be given unless it's the ONLY way to save his life.

When he was in the hospital quite a few years ago for a stomach bleed, the doctors wanted to give him blood (he lost 45% of his total blood volume) and he refused. His doctor at the time talked with him and they finally agreed that if he seriously needed it to safe his life, he would take it, but not until he was tested for everything the hospital would test him for, and the blood that was given was recorded so that we could find out where it had come from if he ended up with something else.

But, we all know they don't test the blood supply for any of the diseases we deal with here in this community, other than Babesia. Other than that, the Red Cross relies on the patient to know if they have had Lyme, Bartonella or other diseases.

So, if you have been so generous as to say yes to organ donation, now's the time to change that so that these infections are not given to someone who won't be able to fight them off because they will be on drugs to suppress their immune function if they get an organ transplant.

If you have been so generous as to give blood or plasma, please don't do that any longer either. No need to perpetuate this cycle!

And, of course, be leery of receiving blood as well!
Posted 11/24/2016 4:38 PM (GMT 0)

Traveler said...
Huddie - CD named me "Queen of links" - LOL! I love using links because it's not me saying these things that way, I'm showing where I got my information. I don't know much, but I do know how to research a lot of things online! LOL!

And Lyme is Pandemic - it's a world wide issue, made obvious by Lyme forums and where their members are from. Even though this forum is based in the U.S., we get people from many other countries that can't find the help they need.

We do try to get the word out about not donating blood and not donating organs once you have been infected with these diseases on here, and of course I spread it all over Facebook and other forums as well as by word of mouth - even when talking to hospital staff!! Ha ha ha!!! They asked at the hospital day before yesterday if it was okay to give my husband blood during the surgery if he needed it - I said "Not until you come talk to me!!!" She looked at me funny and I simply said that the blood supply if far from safe. I was winding up though after a bunch of stupidity that had been dumped on us, and hubby could see it - so he touched my arm (our signal) and he took over the conversation, but essentially said the same thing as I did. No blood to be given unless it's the ONLY way to save his life.

When he was in the hospital quite a few years ago for a stomach bleed, the doctors wanted to give him blood (he lost 45% of his total blood volume) and he refused. His doctor at the time talked with him and they finally agreed that if he seriously needed it to safe his life, he would take it, but not until he was tested for everything the hospital would test him for, and the blood that was given was recorded so that we could find out where it had come from if he ended up with something else.

But, we all know they don't test the blood supply for any of the diseases we deal with here in this community, other than Babesia. Other than that, the Red Cross relies on the patient to know if they have had Lyme, Bartonella or other diseases.

So, if you have been so generous as to say yes to organ donation, now's the time to change that so that these infections are not given to someone who won't be able to fight them off because they will be on drugs to suppress their immune function if they get an organ transplant.

If you have been so generous as to give blood or plasma, please don't do that any longer either. No need to perpetuate this cycle!

And, of course, be leery of receiving blood as well!


How is your hubby doing now?

So is organ donation a no for the rest of our lives? That makes me sad but I understand why.
Posted 11/24/2016 4:44 PM (GMT 0)
Trav,

How can you even say "I don't know much." You know more than anyone I have ever met regarding Lyme and cos and anatomy and herbs and just everything! You are too humble - makes you even more wonderful.

Never thought about organ donor cards. Oh my - in the future there will be no organs everyone will have lyme. Better go get some AI organs ready for the future. Maybe a few nice donors will come from Antarctica. Can't be ticks there.

I don't blame you for saying that to the hospital. Again, he is so lucky to have you. I have a feeling he knows that.

Happy Thanksgiving - go enjoy your family.
Posted 11/24/2016 6:18 PM (GMT 0)
ChickNorris - were you referring to his stomach bleed? If so, he can't have any anti-inflammatories - although we did get him on turmeric and that helps him. He's beat up his body so badly that he now requires at least one knee replacement, his ankle will have to be operated on soon as well (it's collapsing into his already extremely flat feet) and back surgery soon also. He's a mess, even without having had Lyme once! LOL! But, we make it all work. We live a laidback lifestyle, do what we can when we can, and concentrate on being kind to one another. :-)

And yes, that means no organ donation AND no blood donation for the rest of our lives. The bacteria is almost never actually removed from the body - instead, the immune system keeps it under control, so if someone who has received immune suppressant therapy for any reason gets our blood or an organ from someone with Lyme, they too will have these infections. That's something that nearly everyone would want to avoid - knowingly passing these infections on to others.


Huddie - You are just much too kind! blush There is sooo much that I still don't know!! But, I'm working on that too. LOL! smilewinkgrin I'll be doing LOTS of studying (I hope! Either that or chasing the nurses and doctors around the hospital!! Ha ha ha!) next week in order to learn more about herbs.

When the mobile blood donation vehicle comes around and people in the store remind us, I take the time to explain that with having had Lyme, I can no longer donate blood and explain why. This gives me an opportunity to plant a seed or extend others (cashier and others standing near me) education on these infections.

I've had people ask me about this and other aspects of Lyme because I speak up and also have a "Lyme green" ribbon tied to my purse, with the words "Lyme KILLS" on one side and "Ask me about Lyme" on the other side. Just trying to do my part and spread awareness in a state that denies Lyme is even here.
Posted 11/24/2016 6:24 PM (GMT 0)
Traveler, that still surprises me that your state is still in denial. I wonder what it will take for them to believe.
Posted 11/25/2016 12:52 AM (GMT 0)
Trav,

I'm sorry your husband is so sick. I think the two of you are the sweetest.

Love the green ribbon. Think I have to get one of those.

I hope you enjoyed today with your family and aren't worrying.
✚ New Topic ✚ Reply