Stopping all meds and herbals.

Hello All,


End of the week I will be stopping the meds......just started Jernigans on top of that and now realize this could all be a waste of time and money.

Approx 40 days ago I stopped Rifampin and felt just about as bad as I do now......so now decided to stop destroying my gut and "try" this again.

After speaking with another "high priced" Dr (he basically told me my llmd is wrong).....I figure,maybe they are all full of sh!t??

I know there is great $$ working with people suffering with these conditions......so now I figure,going it alone,diet,detox and I do mhbot 1 hour per day....been doing that for approx 6 months.

Will update in a couple months,

r

Hello Huddie,

After speaking to a Dr for a "2nd opinion' and he wants 875 per hour (crook)I just don't believe them anymore....they are throwing darts at a dart board.

Still have light fatigue,some joint pain,light sensativity,sometimes sound,anxiety (now depression) herx reactions that come and go.

I was on azythromycin/Rifampin for 1 year....then switched to "pulse" doxy/mino/azith.....when does it end.

Try Jernigans and then it is what it is,


Infected for years,according to the llmd


Treating going on 2 years.

r

I'm so sorry to hear of your experiences, Reminder. I know that LLMD'S are expensive, but the good ones do this because they don't want health insurance companies breathing down their necks, trying to dictate what they can and can't use in trying to help people heal. It doesn't help those of us that simply can't afford it though.

Unfortunately, treating these infections is often like throwing darts at a dart board, but that's not really the fault of any LLMD'S - it's because so little is known about these infections - and it will likely stay that way until the government finally chooses to start funding REAL research into not only proper testing, but effective treatments as well.

But, I do understand. Not only are there no LLMD'S within a reasonable drive near me (more than an 8 hour drive one way), but I couldn't afford to see one anyway.

People heal with natural protocols. One of our own members healed using only the Dr J. at home protocols - Deejavu.

So, please do check in with us during this part of your journey, and, as Huddie said, remember to detox and also to give your body the support it needs. I do hope you still have a doctor that will work with you for lab tests (liver, kidney and such) as you need them.

And of course, best of luck!

Your former llmd did a bad job on you. Zithromax and rifampin shouldnt be used for an entire yr. You need to switch every few/several months. Also neither busts cysts.

Much appreciated from all of you,

So many directions you can go with treatment,Dr's,supplements,detox methods,pro biotics,.....I have tried everything and still feel a bit dodgy?

Then I get those "moments of wellness" then they fade.....like reaching for that beer (I can't have anymore) and having someone grab it and say "don't worry,I will enjoy it for you" ***

Abx Mino....no doubt messes with my head....added bonus/

Sitting outside at Whole Foods and said to my 17 year old Daughter..."they should just build a Whole Foods Hotel" and she laughed.

Spending so much time on my healing,feels selfish,however,if I don't........

r

What is mhbot?

If you're still having pain, including joint pain, may I suggest trying collagen support supplements in bone broth, and also trying Japanese Knotweed to address and relief inflamation areas?

I have been infected for over 3 generations and only was only able to get treatment last year. I don't think the 5-6 months of abx was prescribed properly, and I knew nothing at that time about helping naturally or detoxing.

Anyway, because of completely debilitating pain I'm prescribed narcotic pain reliever. Since starting Japanese Knotweed, and I'm still only at 1/3 protocol dose, I've been taking less and less pills.

Instead of counting the hours to 6 when I can take another(I only take half), several times I have gone 14-18 hours without needing one, and 24 hours just recently. Today is the first time in a very long time I didn't wake up needing a pain pill. In spite of the colder weather that usually has me hurting even more.

I am thinking the Knotweed is cutting inflamation, thus no pain. It's certainly cheap enough, and I take the tincture.

ETA: I've been on pain medication of this category for 13-14 years, but I can tell you I needed it for many years before that. So this is a wonderful thing to be experiencing.

Post Edited (julymorning) : 11/27/2016 10:27:32 AM (GMT-7)