Some signs your are getting better..

I'm just getting there now, my first signs, and it's less excruciating pain over my whole body. Even a bit less pain in my back, although standing in one spot for more than 10 minutes breaks through everything.

It's the Japanese Knotweed, it's the only thing it could be.

I have no trouble sleeping, once I get tired. I may wake up a couple times to go to the bathroom. I've not gotten anything yet to address my reversed cortisol output, because I haven't been tested.

I'll have to look back, I don't remember what the first signs were, and which symptoms eased up first. I think it was just a slow drip, a slow ebb, a slow, slow, slow crawl back to the land of the living. I think actually, now that I think of it, was around 2 weeks after I started Cats Claw I began to feel as if life was coming into me rather than going out. I no longer felt like I was dying. That was the first to go. I think also, the sensitivity to sound and light cleared up fairly quickly as did the vertigo and dizziness. The headaches that were from h-ll cleared up after the brain aneurysm I believe caused by Bart, but the headache continued for a long time, and I still have it, but now, the nature of it has totally changed. It no longer hurts when I press on my head, it no longer migrates.

Some of the things longer to clear up are the pain flares (elbows, back, ears, jaws..), the pain on the soles of the feet (didn't start treating bart until later), nausea/GERD, and cognitive weirdness in terms of short term memory and writing one thing when thinking another.

Sleep cleared up, or got better, as soon as I integrated Buhner's advice.

Great question.

I've had my first cold in over 3 1/2 years (first one since lyme)


I'm wondering if it means something about my immune system?

Mine was probably sleep to. Up to 7.5 hrs. But I'm still tired if not physical active. Any more hrs and aches wake me up. Insomnia (not pain) made 2-4 hours of sleep my "sick" normal for many years.

But 10-11 hrs a night? Thats......well, a lot. Kind of unusual.

Was that much sleep "normal" for you one time before infection?

I didn't get a fever - just started with sore throat (thought the D-Limonene was causing it..because I had started it) , then cough and runny nose.

I have never had fevers with my colds though, so this is a 'normal' cold for me.


I don't even mind it, really...much better than my lyme symptoms...

For those of you who have improvements, even teeny tiny little baby slivers of hope, when did that begin? I'm waiting for even a teensy improvement...waiting waiting, just feel worse.

ChickNorris said...
For those of you who have improvements, even teeny tiny little baby slivers of hope, when did that begin? I'm waiting for even a teensy improvement...waiting waiting, just feel worse.

Okay. Late Winter 2015 I was sick and tired of feeling sick and tired, and running fevers. I knew something was wrong. I asked my internist to PLEASE test me again for Lyme because I just wasn't buying the Fibro thing anymore.

He finally got around to looking at my results, (because I asked what had happen after my second test) and he started me on Doxy. I had no idea that the feeling that made me think I was dying was a herx, or how to deal with it. I got my affairs in order. I suffered for 3 months on doxy, with the complete opposite of any improvement. I took a break from it for early Sept. because I had a food vending event to get through.

I was in much better shape during that abx break. As far as not having that "I'm going to collapse and die if I take one more step" kind of feeling, but I had all over body pain, and needed my prescription pain pills.

Aside from no herxing at that time, I think I had less fevers, but the weather wasn't near as hot anymore. I did start having neurobrain events. I started zithro mono. Still not doing or really aware of the significance of de-toxing, or any kind of gut support. Zithro didn't alleviate my brain issues.

THere is no point in any further thinking back about improvements with abx. Flagyl set me WAY back even though by then I new about and was de-toxing, etc.

I have to say unequivocally, this Japanese Knot weed has made the biggest impact on one of my major symptoms - pain...so far. I am just beginning with herbs compared to the rest of you.

Chick,

Hang in there. It looks like you have only started treating since September. I could barely leave by bed all of July and August. I found this board in August and that's when I learned to detox and it got better. By September I could go out a tiny bit and was much better, but still very sick. I'm six months since my reinfection in July, not knowing I had it before (also told fibromyalgia after numerous doctors), now I have days when I feel pretty normal but lots and lots more healing to go.

As July said, the meds make you feel the worst.

Be patient you will come out of this feeling better.

I am not doing so well with the treatment, but hopefully my LLMD will soon figure out how we should fight this infection.

However, one thing that I noticed is about my toenails. I had two yellow thick toenails (I think it is some kind of yeast - although I did lab tests and they were normal, it is not normal to have yellow nail)
And one of them turned normal again! :)

It is really small thing, but for me it is soooo big! It shows that my body didn't stop fighting.

Thank you Trav. I will try. Do you mix white vinegar with water?

blueberrymuffin said...
Thank you Trav. I will try. Do you mix white vinegar with water?

Nope, just straight white vinegar.

Best of luck!! It will take a while to see improvements, as the affected part of the nail has to grow out until brand new nail can grow enough to be seen. Toenails only grow 1.6 mm per month from what I have read.