I just wanted to chime in with my experience: I was housebound for months before I knew what was wrong with me. Because I couldn't be diagnosed, I started trying to heal myself. I changed my diet, following the Microbiome Diet for gut healing, and started using essential oils.
Within a couple of months, I was about
70% better from where I started. I'm not positive it's not a coincidence, but I do believe those things helped. I couldn't seem to improve past that 70%, but I wasn't diagnosed for over a year after starting the diet and essential oils and didn't decline at all.
My treatment is getting more and more expensive, and we're not sure how much longer we can sustain it. I've been contemplating quitting treatment myself, and doing what I can with diet, oils, exercise & supplements.
I wish you all the best - I think you can do some healing with what you're planning.