Feeling crappy....so if I'm grouchy...that's why

My body hurts....I'm having less "better" days lately. (never had symptom free...but better days)

A couple weeks ago (maybe 3?) I started taking the Rifampin 600 mg once daily (instead of 300 twice) and added Artesunate.

I am also waking more in then night and having anxiety at those times...mornings are doom and gloom again.


Today, I will be focussing on detoxing....and see what I can do to turn things around..

Hoping it's not a back-slide...but a herx.

Thanks, jenny.

I'm taking it around dinner-time, as well...so that might be why it's bad during the night now...I couldn't take it in the morning anymore because I'm takin the Artensuate then.

But, I think I should try and maybe take it earlier - like early afternoon...and see if that helps...maybe sleeping with the full dose isn't ideal...no movement to get rid of toxins, no peeing, etc...lol - tmi.

Oh no!! I"m so so sorry, Girlie!! I sure hope that you can figure out a time to take it a little earlier in the day and that the extra detoxing helps!!

And, I'm in the same boat - although I'm not taking the same meds. Herxing, trying to still 'carry on' with hubby's rehab and my own treatments.

But, we can do this!!! At least that's what I keep hearing in my head. Lol!

Thanks my friends.


Yup, Trav - we CAN do this...we WILL do this....
I know you've got a lot on your plate these days..

Girlie you are never grouchy (((hugs)))

I hope that you will feel better soon

ChickNorris said...
Hugs! Sorry you are feeling crappy! Be gentle with yourself and detox like crazy!

Yup, Chick - I'm focussing on detoxing...on my second round of Pinella and Burbur...and have had my liver detox, I'm heading upstairs for some light exercise and follow up with a warm epsom salt bath.

Maybe I'll even lay down and try napping.

Huddie said...
Girlie,

Lots and lots of hugs to you. I'm so sorry you are herxing, having anxiety, and waking up. Talk about a trifecta.

This is no way to begin the New Year!

Seems like it hasn't started out 'all that' for most of us. We will all have to finish strong.

I have no abx. advice to offer but would echo what others have suggested about taking the meds earlier. Perhaps you can have a little Yogi Bedtime tea with Valerian or Kavinace PM

Hugs and prayers headed your way my friend.

You will be back at the poker table in no time.

Oh, yes, I do have Kavinace PM maybe I will try that tonight....it's in my husband's pile of supplements, so I forgot about it.



No Texas Hold'em for me for awhile.

Yes the three week thing especially rang a bell for me I asked my twin and she said that's when her herx really stepped up too on rifampin it definitely wasn't right when we started taking it maybe u have toxin buildip

thanks all...

Yup, Krimpet...the doom and gloom is yucky...i know the doom and gloom is part of the infection...or herx...there's no reason to wake up with it...none at all.


jenny - thing is - this ain't my first rodeo. ...and I've been taking Rifampin for over a year...just not once daily dosing..is all...I did twice daily dosing - with mino and then bactrim...then I did a pulsed twice daily dosing with mino (M/W/F)

...took a break for a few weeks...and now on Riffy once daily full dose...switched to evening because I was taking Artesunate in the a.m. and I thought they shouldn't be together.

I've pretty much been on Rifampin or Rifabutin for the past 10 months or so. I was amazed that I was still getting my proverbial butt kicked 8 months into this. Apparently these bart bugs are plentiful and pack a punch even in small amounts. You can't measure progress with this particular pathogen in terms of weeks or even months. I remember it took me about 4-5 months to get my chest pain to calm down (still there but not sharp pains just dull aches). My "frozen" arm started 4 months ago and its still an almost daily occurrence. My lymph nodes behind my knees were really bad when I first started better now but still there!

Bottom line dealing with chronic Bart takes a lot more patience than we think it should. You are herxing for sure. If it gets intolerable split the doses to 2x/day or shorten your pulsing. You already know this though ;)

Thanks,Huddie...it's been a long ride to get where I am.

Even though I don't feel like exercising...they always...always make me feel better. i think it must be because Bart affects our blood flow...and the movement gets it flowing..into the extremities.

So, I usually will warm up on our Elliptical. Some days I do a longer time on it.

Then I do some stretches....I'm amazed how much more flexible I am from doing these almost daily.
I do some light weights for my wrists and biceps. My left side (the weaker side) I had to start with 3lbs and now am doing 5 lbs. I'm not muscled up...but I am much stronger. Looking at both arms, you don't see a big difference in the left arm anymore...



I do some specific exercises for my frozen shoulder, muscles in the thoracic back region. This includes therabands - working on the pectorals and opening up that area to reduce the impingement.
My physiotherapist has given me these exercises.

The left side of my back is looking much better...the atrophy was obvious before...not so much now.

I had to get over my fear. When the first symptom hit me...the pain was excruciating...sent me to the ER.
And it was so weak, I had to carry my left arm...it was just limp...and it hurt to leave it hanging.
All the guarding didn't help...in fact it added to the resulting atrophy on that side. But, I just didn't know what to do...I was afraid of experiencing that awful pain again...so didn't want to do anything to aggravate it.

I started very slowly...I have full mobility now...I have no range of motion issues anymore...thank goodness.

Yah, Rikky - I think you're right - its a herx.

Girlie and Rikky,

I am so inspired. Every time I would try to do some lifting I would experience exercise intolerance and have a setback. So I just stopped.

Girlie I am starting tomorrow - I'll go light and just do it. Thanks for inspiring me.

Rikky, thanks for explaining that it helps. I certainly know and understand the benefits of exercise pre-lyme but I thought it wasn't good for lyme - exercise intolerance and bacteria being released too rapidly from muscle tissue. But again, I guess slow is the answer.

How do you guys have the energy? I'm not bedridden and I don't even needs naps but definitely not old-self energy level.

Next I'll be taking up poker.

Huddie - maybe just do some light stretching...and even just do a 5 minute walk around the house. See how you feel...you don't need to do weights...or anything strenuous.

If the body is too fatigued...then it's not good to push it.

I don't want you to do something to set yourself back...so please don't overdo it.

My energy hasn't been a big issue...I'm more in the pain category.
I have never spent a day in bed since this all started.

I believe in Dr. Burrascano's guidelines - he recommends every other day...and doesn't subscribe to cardio.
But, we've had that debate before on here (the cardio...or not to cardio discussion)

The reason I do it everyday...is because for some time I thought I might have CPRS or RSD which requires daily exercises.