Why did things get worse NOW?

I've been dealing with this disease likely 20 years. I've had ups and downs in the past, looking back, but I would always come out of them and it wasn't too debilitating. I really thought everyone felt the way I did tbh. So why is this year different? I finally get diagnosed and everything goes to crap? Why??
I wear a brace full time now on my ankle due to pain. Headaches are nonstop. Cognitive is more impactful. Pains etc everything just has gone downhill over the past few months. Is it that the samento and banderol has stirred things up just enough to make them angry without killing them? Did the 7 weeks of abx do the same? Am I just lazy and a whiner now that I know what's afflicting me? Am I on a multi month herx? I don't get it. My pots like symptoms are worsening. My arms are weak and sore.
Does anyone else have experience with this? Is it a matter of not being on the right treatment? Or is it par for the course?

I've been wondering about that myself Chick. All I can come up with is my recurrent surgeries.

Have or had you even had so much as dental work done? Anything that could have sent your immune system into a tailspin?


Girlie is on to something too. Although it doesn't always hold true that treatment is the only reason.

Samento and Banderol are very powerful and they hit on a lot of things. You are more than likely stirring things up and they are NOT happy. As others have said you are unraveling things. As these bacteria die off they are invoking responses. These toxins have to get out.

What are you doing for detox? Do you dry brush? Are you using any detoxing products? What are you doing for immune system support?

Oh what a tangled weave.

For detox I do lemon water, Epsom salt baths, and activated charcoal (not daily, just every now and then when my symptoms spike). I will be getting my sauna soon, thank goodness. I hope that that helps. So is the uptick in symptoms then from things dying or from them waking up and getting angry?
My list of supps:
samento and banderol - 10 drops/2x a day
DIM
Calcium D Glucarate
zinc
magnesium
methyl guard
mitochondrial nrg
migralief
glutathione
curcurmin
probiotics
armour thyroid
kava
trazodone

Just when I get over one hump, I get hit with something else. Par for the course.

Any dietary changes?

Girlie said...

ChickenArise said...
Just when I get over one hump, I get hit with something else. Par for the course.

Any dietary changes?

I swear - Lyme and co's has decided that it has to invade every part of my body before it leaves.

I have had my tailbone pain, my finger joint pain, my neck pain, the back of my head burning pain..etc...leave

But, about a week ago...I got a new pain area. Under my butt cheeks. What's with that?
Does it really have to make the 'rounds' in every nook and cranny of my body?

Me to. Finger tips to shoulders and head to toes with varying symptoms like a roller coaster ride.

I agree with goldengoose - you may need to scale back on your herb dosages...for a week or so...and see how you feel.

But Samento isn't quite the same as Cat's Claw. Samento is TOA free.

Personally from what I've read there's no reason to remove the TOA

Lolap said...
Hi Chick Norris,
I have to say, this is what I'm afraid of. I'm heading into week 3 of my first round of antibiotics. From everything I've read, I'm seriously afraid I'll most likely get way worse before I get better, if I get better.
I'm thinking of just eating a super healthy antiflammotory diet and do a lot of detoxing and see what happens for now. I don't know...
Good luck to you😊

Honestly it's been a slow decline into the pits of hell. And it began before I even started abx. A lot of people start feeling a bit better around the 3-4 week mark.


ETA: this is why I question if it's a healing crisis or herx at all. I always read a herx is a more abrupt jump in flu like symptoms. There has been nothing abrupt or self limiting about my experience at all.

I didn't feel any better in the first few months...honestly.

I did get a ramping up of my back pain though...yay...lucky me.



My symptoms....slowly faded away...over time (with treatment)....but I still don't feel 'well'...and I won't until my worst symptom is better...unfortunately it wants to hang around...and it was the very first one I had.

Randy - you mentioned fingertips...that reminded me.


In the first 6 or 7 months of symptoms...(undiagnosed)...they just kept piling on. I remember one morning getting out of bed and the bottoms (where you step on) were bright red.
Then when I used my fingers...anything that I pressed with my fingers...the pads would go bright red.

I don't know what was happening then...but I was literally freaking out...with all these crazy symptoms.

Well last night was Bible study. I ended up spilling a full cup of tea all over my Bible and coffee table and everything at my friend's house last night because my stupid hands just didn't want to pick it up.
And then, after we were home and I was in bed and relaxing, I had another panic attack. This one was more intense. I thought my husband was going to have to call an ambulance. I started to feel weird and drugged, limbs went numb and weak, it built somewhat slowly. My heart had been having palpitations all day but when the panic attack peaked, tachycardia set in. I could barely talk. It freaked me out because of the heavy drugged feeling. But once it was over I realized what it was. It seems like literally every symptom I've ever had at one point in time is getting worse indeed! UGH!!! I'm glad it hit while I was at home with the hubs next to me, but still, I was doing nothing stressful, just chilling.