I have been on oral antibiotics since March of 2016. Started with doxy, added rifampin in May; neurological symptoms continued to worsen. Started malarone with doxy and rifampin, had herx reactions that were torturous. Still, not getting better.
Last resort, started IV Rocephin, stopped doxy and switched to minocycline, stopped rifampin, continued malarone and started Zithromax as well in early August of 2016. So, IV Rocephin, malarone, mino, and zith. IMMEDIATELY GOT BETTER. The IV erradicated my brain fog and psychotic tendencies, anxiety all but left for the first week. It could have been a combo of all 4 of these antibiotics hitting Lyme, Bart, babesia and mycoplasma.
Continued this protocol till December, before stopping the Zithromax and changing to biaxin. So, IV, biaxin, malarone, mino. After a week off Zithromax ALL OF MY PHYSICAL PAIN returned with a vengeance that I experienced in 2014 and 15 when I was undiagnosed and suffering both physically and mentally.
Joint, muscle, small fiber neuropathic pain; feels like burning skin, absolutely life changing and horrible. So zithro obviously inhibited a lot of these symptoms.
As for the IV rocephin, well a few times I stopped it to see how I'd react. Did this in November, again in December and February. Would stop the injections for several days. Recently I stopped For a week and All my neurological symptoms returned with a vengeance.
Now, I'm a funny guy, always been talkative, an extrovert; I enjoy people.
SO, when these neurological symptoms returned I become so scared and depressed. Rocephin made me cry in joy when I frist took it. To put in perspective. BEFORE STARTING THE IV OR STOPPING FOR A WEEK, I would get constant fight of flight issues, couldn't walk into a store due to overstimulation, zero concentration, so talking to ANYONE IS AWKWARD and a nightmare. Can't even understand language sometimes, short term memory problems; ALL impacting my ability to speak and think coherently, thwarting my confidence and talkativeness making me feel awkward and shy . Word finding was hard as well, before starting.
WAS unable to talk to my mother or grandmother, felt autistic, couldn't look any of them in the eyes, constant disconnection and feeling alien like. As if I was in another world. If anyone has taken psilocybin mushrooms, which I have many years ago; neurological Lyme symptoms feel like a constant bad trip that you can't excape. As if your brain is telling you to inhibit all your behaviors for you not to lash out and do something inappropriate. Of course, I knew I wouldn't do any thing like that, it's just the feeling. And it's VERY SCARY not being able to talk to your parents because your hanging off the edge of a cliff, holding on to your sanity knowing at any time you could lose it.
Well IV helped tremendously and I'm scared. I don't want these symptoms to return and they have whilst stopping, and occasionally flared up even when on the IV, but this was at the end of treatment, so possible resistance, not sure.
When I take the injection at 6pm everyday, I find immediate relief. Mornings and afternoons, my anxiety is a lot worse and I feel de-realized and just off. Nervous around my friends BUT then I take the IV after about
an hour its like night and day. I feel talkative again, witty, thoughts are able to flow, I don't have trouble finding words. Everything is just natural and I can look people in the eyes. It definelty brings down brain inflammation. Basically, my behavior is normal again. The biaxin and mino in the morning make me feel off and anxious. Don't want to be around people.
I just don't have the money to continue Iv Rocephin.
Post Edited (birthdaysuit) : 3/3/2017 9:01:08 AM (GMT-7)