Growths all over bones? High Iron but extremely low Ferritin?

I'm getting lots of work ups lately for these very painful growths that sprung up all over my bones. Literally overnight I was in excruciating pain and touching the painful areas and noticed that there was jagged bone where there wasn't any before. My spine, knee, hip, feet, hands, shoulder, and jaw all seem to be effected.

Most of the growths are pretty small, but I can see and feel them. I only noticed a few in the general area of the pain but my Doctor examined my whole body and found a LOT more. I can't sleep, or sit, or stand comfortably.

I have an upcoming surgery again in my abdomen (adhesions) and they ran some iron tests. My ferritin is only 5, which is incredibly low. Last time it was 8 the doc said that was the lowest he has ever seen. I usually tend to have low-ish Iron, but now all the sudden they are high?! wth? My TIBC is still in the reference range but only a few points away from being too high. I just don't understand any of this.

We were hoping that it was just calcium deposits on my bones, possibly caused by a parathyroid tumor. Which would be a really easy surgical fix. My labs aren't necessarily pointing in that direction. I have a sick feeling in my stomach thinking about what could be wrong. Which is strange for me as I don't even tell my doctor when I have an anaphylactic reaction. ughhhhh.....

Any insight? Any similar experiences?

I got noticeable bony knots, especially along the top of my shin bones and along the top bone of my forearm. Not painful, but I've also had bone spurs which are very painful, and one did damage, and had to be surgically dealt with. Blood tests didn't show them, mri's did.

Sometimes the spurs wear or break off without intervention with me.

Thanks for the bump girlie ;)

I'm just confused by what's happening to me. I'm too tired to type it all out right now, but I've hit another low.

Hi,

I'm really hoping that you have already had all of the testing done around these - seemingly obscure - issues and maybe *crosses fingers* have some answers. I have the same ones.

Ferritin: low (10) - serum iron (hemoglobin): on the high end of normal, and RBC's: flagging just over the upper limit

I also have incredibly painful bones and they're looking into weird malformations on my skull (a seeming loss of density in one spot and a ridge that's built up around it).

Any info that you've managed to figure out would be SO greatly appreciated.

- Sonia

http://physiomk.com/en/images/photos/arthritis%20&%20arthrosislogo.pdf

What you describe looks to me like arthrosis (bone spurs).

The common view is that arthrosis and arthritis are unrelated diseases, but my lyme doctor thinks they are TOTALLY related.

He says that after arthritis (inflammation) comes usually arthrosis (bone spurs).

Arthrosis can be painful or not painful. Painful, redness, means inflammation.

I don't agree with description of arthrosis as being MECHANICAL in opposition to arthritis as being INFLAMMATORY.

Look at your case: these are cousin diseases!

After arthritis, many people develop those hard joint feelings, or they can see the spur growth, deforming the joints.

Gout is one of such diseases too, and I see hubby getting some arthrosis in places where he had a gout attack.

I think all joint inflammation are cousin diseases (including lyme arthritis).

Even though, I did not get bone spurs from lyme arthritis, I did get bone spurs from CANDIDA arthritis.

OP can you elaborate on these 'growths' youre finding on your body?
Are they hard? soft? fleshy? is it pure bone?

Where abouts are you finding them on your jaw?

Hope you get some answers soon.

IHL, did you find out any more about the growths on your bones? I am also dealing with this and would love to know if you got any help for this.