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Posted 4/16/2017 2:33 AM (GMT 0)
I don't know what to do anymore..
I've been battling this for so long. My stomach problems have gotten so bad from being on antibiotics for about a year. I've tried about every natural medicine but they aren't enough and aren't working for me.

When I stop my antibiotics even for a day, I immediately become weak, get severe brain fog, can't think or focus, have heart palpitations, numbness and tingling, legs falling asleep constantly .

I take over 100 billion probiotics a day, I take a supplement called restore, I tried taking l-glutamine which worked until it made me crash. I eat no junk food, alcohol, or starches- just vegetables and meat. No dairy. I take olive leaf extract.

I just recently began treating a mono infection with antivirals.. its helped a bit but not much.

I am currently on rifampin and clarizythromydin and valtrex and a beyond balance mcbb1 and a-Bart from bryon white. It's not enough to sustain me.

Someone please help me
Posted 4/16/2017 2:52 AM (GMT 0)
I'm so sorry you are going through this. I think we can all relate. What does your doctor say about your stomach issues? Have you considered IV antibiotics?

Hang in there. I know it's hard when you're in the middle of it, but it will get better.
Posted 4/16/2017 2:56 AM (GMT 0)
I can't be on IV antibiotics because he is in a different rate. I am in college and have to be away.
Posted 4/16/2017 3:08 AM (GMT 0)
You may have to stop the antibiotics for awhile if your stomach isn't doing well.

You are sandwiching the antibiotics with food? Starting your meal...taking the antibiotics...and finishing your meal?

Are you taking the probiotics a few times a day?

You could take a short break..and then try switching antibiotics for awhile - maybe switch up the clarithromycin for minocycline or azithromycin.
It may be easier on the tummy?

I am also wondering what your LLMD is saying about the stomach problems.
Posted 4/16/2017 3:17 AM (GMT 0)
I was recently on a five month break from antibiotics and had to restart them because I could not function and my health deteriorated so quickly..

I've done all of those things for my stomach and take 85 billion probiotics twice a day
Posted 4/16/2017 3:22 AM (GMT 0)
maybe it is time to try an herbal protocol?
Posted 4/16/2017 7:49 AM (GMT 0)
I stated that I am currently on herbs in addition to my antibiotics
Posted 4/16/2017 7:50 AM (GMT 0)
This is what I'm saying, no one can even offer me advice because I'm so stuck. I don't want to continue living like this
Posted 4/16/2017 9:06 AM (GMT 0)

PeteZa said...
maybe it is time to try an herbal protocol?

i agree with this 100%. Herbs helped me not be crippled like I was in January. I still need to get more and figure out what else I need besides what I'm taking
Posted 4/16/2017 12:13 PM (GMT 0)
There are no definite answers. We all react differently to treatment because of all the variables to Lyme and co infections. You just need to form a game plan that works for you. This forum is the place for ideas and suggestions, so ask away. Hope you have a better day today. Xoxo
Posted 4/16/2017 1:57 PM (GMT 0)

gabybee said...
I don't know what to do anymore..
I've been battling this for so long. My stomach problems have gotten so bad from being on antibiotics for about a year. I've tried about every natural medicine but they aren't enough and aren't working for me.

When I stop my antibiotics even for a day, I immediately become weak, get severe brain fog, can't think or focus, have heart palpitations, numbness and tingling, legs falling asleep constantly .

I take over 100 billion probiotics a day, I take a supplement called restore, I tried taking l-glutamine which worked until it made me crash. I eat no junk food, alcohol, or starches- just vegetables and meat. No dairy. I take olive leaf extract.

I just recently began treating a mono infection with antivirals.. its helped a bit but not much.

I am currently on rifampin and clarizythromydin and valtrex and a beyond balance mcbb1 and a-Bart from bryon white. It's not enough to sustain me.

Someone please help me

Hey gabybee,

What else are you doing? Diet, lifestyle changes? My LLMD won't let me touch probiotics until my SIBO is taken care of. Have you looked into that?
Posted 4/16/2017 2:00 PM (GMT 0)
Have you seen a biological dds?
You may also look into ten pass ozone
Posted 4/16/2017 2:15 PM (GMT 0)
Ten pass ozone sounds like a great idea.

Nascent iodine might also work but no doctor I know of is going to sanction the treatment. If you go this route start slow 1mg daily increments. It took 3 months before it made a huge difference but I was beginning to feel better after a month.

I limited treatment to 15mg per day. Best to stop intake of all halides during treatment (Fluoride, Chlorine, and Bromine from bread).

I do hope you get better soon.
Posted 4/16/2017 3:03 PM (GMT 0)
Kristenbee,

I'm sorry you are going through so much. It sounds terrible. Hugs to you.

You have to be comfortable with what you choose but my first reaction is you are on too much, for too long.

I would up detoxing and go on an herbal protocol and boost immunity.

A friend who is a master researcher and super smart about Lyme just shared that for many with chronic Lyme herbs work better than abx. Just something you may want to consider.
Posted 4/16/2017 3:21 PM (GMT 0)
KristenBee,
I know you said you have been on an herbal protocol - can we talk about that a bit? I noticed that you said you have been on MC-BB1 - is that the only herbal you've used? Herbal protocols are like the abx, not all of them work for everyone. So, have you tried other herbal protocols? There are many.

You will have to keep rotating through protocols - and do be sure they are complete protocols, not just a few herbs from one - until you can find one that really does seem to help you. It really doesn't matter if it's pharma or natural/alternative. I just don't have the knowledge to help those using pharma abx - but there are others here that do know and can help.

I have this one very dear friend that tried absolutely everything to treat, and she didn't get any relief until she finally tried essential oils - now I'm not saying that essential oils are what's right for you, only that sometimes people have to try many different things to find what will work for them. Very frustrating to say the least, but there's no way around it. As you said, you can't function if you aren't in treatment.

Do you have a LLMD that will work with you to help you rotate through different kinds of treatment until you find one that works? That would be the best way to go about this, with the guidance of a good Lyme literate doctor.
Posted 4/16/2017 9:08 PM (GMT 0)
gabybee,

Be careful with switching to herbals thinking it will help your gut. For me it did the opposite, and made it worse! I was on antibiotics for 3 years, and took a year break to go on Buhner herbals *which didn't work btw) and the japanese knotweed made my already torn up stomach worse! The candida got better but my actual gut was causing me pain and I was going to the bathroom a lot. Herbals can make it worse.

IDK what to suggest for you because antibiotics make your stomach worse, but so can herbals. And you are already on a lot of probiotics. Honestly, just talk to your doctor and he/she will say what's best for you.

P.S. I'm in college too! If you ever want to talk, message me!

P.S.S. I know i said I didn't really have any advice but I would honestly suggest that you pick one: herbals or antibiotics, especially to see which one is hurting your stomach. Do this for at least a month or so. If it's both that's killing your stomach then maybe just taking one of them will lessen the effects on your stomach. But still you need to get your doctor's advice.
Posted 4/17/2017 3:17 AM (GMT 0)
gaby-Do you go home for summers? If so you could do IV's then. In the meantime it's possible that your LLMD/ND might be able to coordinate with a LLMD/ND near you who would be willing to administer the IV's-Or if your insurance will approve you could get a picc line put in and then you would be able to administer the IV's yourself.

If you truly are not at all better than when you first started treatment maybe it's time to look into a new doctor. Just someone who approaches treating from a different direction.

You will get better. I know it's hard to see that when you feel so lousy but it's true.
Posted 4/17/2017 6:35 AM (GMT 0)
Have you tried bvt and or rife ?...essential oils with dmso ,mms or herbs like smilax ,andrographis and houttynia. gotta break some eggs to make a omelette
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