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Share something positive! April 2017!

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Lyme Disease
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Posted 4/30/2017 10:22 PM (GMT 0)
Hey, y'all! Mr. Antonio here, back at it again with another monthly positivity thread, asking you to share your sources of smiles and laughter from the month passed.

Your first kiss? A new friendship? A moment shared with a friend or loved one. A funny video of a baby goat, because I know some of you are into that sort of thing, maybe? Treatment success? Your first visit to an LLMD. Anything, everything. Tell me you saw a cloud shaped like a banana today.

Life's rough, sometimes. The path often winds up beating us. Though, I beg: don't let the aches break you, don't drop those heavy hearts, don't stray too far from the light.

Stay strong, hopeful, and keep fighting for the treatment you need to get better, so you can better enjoy what life has to offer.

Until then, I urge you to try and find one thing that you can say you're happy to be alive and have experienced.

Stay in the game, folks.

Mwah!

My contribution:

I'm working through a new protocol laid out by my LLMD. It's kind of complicated to juggle, especially with school and work, but I've got good feelings it'll help chip away a few layers of my health picture, if I'm able to fine tune things.

There are more, but I don't care to make this all about me. I'm happy to be here, still be fighting, that's all.

Post Edited (NotQuiteAntonio) : 4/30/2017 4:31:53 PM (GMT-6)

Posted 4/30/2017 11:58 PM (GMT 0)
You are awesome to bring positive vibes! You're a good soul.

So glad you've hit another level w/ your LLMD - I like it when people boldly switch things up. This is the great experiment. Let us know how things go.

My good news is - I got through several challenges through April much more intact than I thought I would. And it's a beautiful day today.

-p
Posted 5/1/2017 12:14 AM (GMT 0)
My positivity: I had an appt. with my regular Dr. (who is supportive of my lyme disease and knows I'm on long-term antibiotics)..

At the end of the visit (it wasn't anything to do with lyme- my reason for going) - she said "Health Canada says where we live is Endemic for lyme disease"
And I said 'yup, I know" ....and then she said something like: "I'm having a lot of people coming in with strange symptoms. One patient came in a few days ago with a bite he thought it was a tick ..he didn't know for sure - I prescribed him a round of antibiotics."

I said "That's good. Treat the bite."
She responded: "Yes, if anyone comes in with a bite...and they don't know for sure what bit them...I'm giving them antibiotics."

I told her the risk of not treating the bite outweighs any risks of taking a few weeks of antibiotics.

...and then we were interrupted by a knock at the door.

I am thrilled that she is taking this action. We never got a chance to talk about dosage or how long she should be treating. But hopefully she heard my statement "....a few weeks of antibiotics."
Posted 5/1/2017 2:14 AM (GMT 0)
I have had my local clinic contact me 3 times in the last month asking details on how my LLMD treats not just Lyme but also Babesiosis. They had someone test positive for Babesisios a couple of weeks ago, and the only reason they even thought to test is because of my case and the many conversations I've had with physicians there. And this is in North Mississippi where Lyme is "rare".

Another positive, I am clear headed enough to begin writing a book and have already made excellent progress. On Lyme disease of course. There are a few books I've seen on personal accounts of conquering the disease, so this one is fiction with a bit of truth to it. It's very therapeutic and practically writing itself.

And I'd also share that I have been walking and jogging to the point where I believe I can run a 5k soon. Looking to how much I struggled to walk only months ago it seems unreal to think my body could recover, but in my worst moments I kept visualizing myself crossing the finish line of a race. Now I believe it's going to happen.

Hope this helps!
Posted 5/1/2017 11:56 AM (GMT 0)
Share, people! I know there's something positive in your lives; there has to be. Embrace it.

Thank you to everyone that's already contributed. You've been read and appreciated. Keep working toward your goals, my friends, with health, finances, friends, family, etc.

Take it slow, Norcross.

Also, thank you, P. I really try. I wish I could do more for you guys, myself, everyone.

Trying. :D

Love you guys.
Posted 5/1/2017 1:38 PM (GMT 0)
Things are looking up for me. I've been more active, getting things done around the house. Still slow because I forget what I'm doing or get distracted by remembering something else I have to do NOW... then forget my other things.

But I find that I'm bouncing back faster when I have bad days, as far as aches, pains, and moods. Used to be when I felt bad, I knew I was in for a bad week. Then it was only a bad couple of days. Now its maybe one day, but I can bounce back in half a day sometimes. My pains and symptoms are shorter and less severe.

My FitBit steps were averaging about 25,000 a week. They're up to 35,000 in April. Did over 40,000 the last two weeks smilewinkgrin

I feel a little too good and try to be "normal" sometimes, then I get overwhelmed and exhausted. So I have to learn to pace myself. But the progress is promising.

Best twitches wishes, everyone!
Posted 5/1/2017 2:33 PM (GMT 0)
I finally made it to the full dose of something (Ceftin). I've never been able to tolerate a full dose of ANYTHING, herbal or abx before. Seem to be doing OK on it. Now it's on to the next abx.

My GP, who is very supportive and integrative, has referred 6 people to my LLMD. Although my doc is great and totally believes in chronic Lyme, she fully admits they they are far from Lyme literate. Every person they referred to him has tested positive for Lyme. Every. Single. One. These are patients who have been sick for years. Because of my case, they are educating themselves and getting people the help they need.
Posted 5/1/2017 2:54 PM (GMT 0)
April is the month I was bit. 2 years ago. It seems like forever and it seems like yesterday. I have been in remission for over a year now and it was a year of always looking over my shoulder for a lyme symptom.

The moon can still affect me but the barometer really can. But, pre-lyme I was influenced by both, so I am used to it.

It was a record making year of precipitation here in the mountains of California. On the top of our pass we have 16 feet of snow and it is gorgeous!!! Our lakes will be full this summer and cold. But, like Stephen Wright says, "you can't have everything, where would you put it?"

Hubby is doing super well. His major symptom is slowly dwindling and I can hardly wait for him to say, "it has been gone for a month!"

Both of us are enjoying retirement and all it affords, which is doing whatever we want, whenever we want to. We are into bike riding now since the rains have quit. So much beauty out there to be seen.

I hope everyone heals and gets to move on with their life. Life is too short and I definitely want a long list on my tombstone. Too bad housework won't be on that list. LOL!!
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