PANDAS and Toxic Mold?

Hello everyone, my 21-year-old brother was diagnosed with PANDAS shortly before his 18th birthday, and he also has a past history of Lyme disease. He has been in and out of the hospital and psych wards over the past several years and often unable to care for himself and in a psychotic state. I know that there is toxic mold in the home where he has lived his entire life and recently he went to stay with his older sister for a week and saw some small improvements (was able to eat, carry on some conversation, etc.) but when he returned to his home with my parents and two other brothers he grew intensely worse and ended up hospitalized again. My family has not seen any connection between mold and his condition and just attribute it all to the inflammation they are told is in his brain. The only thing he has received in the past that has given any help were the IVIG infusions but they never lasted and this past time, there has yet to be much improvement seen from them. I am putting out a call for help to any parents out there who may have some helpful advice, experience, and especially scientific evidence on the connection between mold and PANDAS, especially because I am 99.9% confident that my brother is one of the 25% who is unable to detox the mycotoxins from mold. I had to leave that house because of my own chronic illness and the mold keeping me from stabilizing or improving. Thank you so much for any help you can offer. Grateful!

Thank you so much.

I agree with you that he needs to leave the moldy environment right away. My parents just haven't seen that connection and I believe they either need to hear someone's story firsthand and/or be presented with the scientific evidence.

I had to move across the country from Maryland to Colorado just to stabilize because I was reacting to every place I tried in Maryland and there was mold everywhere. I'm still not driving or too functional myself, so sadly, he can't live with me, but I do have another sister in Maryland who has helped out. She doesn't see the connection either, though.

As far as his Lyme, I believe he had short round of antibiotics as a child but it came too late and he is likely still dealing with post-chronic lyme issues, too. I agree that he needs the type of physician that you are recommending. He has seen a PANDAS doctor but not one who is LL or mold-literate.

Your brother's treatment wasn't too late - it just wasn't long enough or everything wasn't addressed - such as co infections and mold toxicity..etc.

Many...maybe most of us on this forum have chronic Lyme infections,
Symptoms persisting after treatment is because it was stopped too soon.
Sure there can be some damage leftover - some arthritis perhaps..etc.but often the treatments were just stopped before full healing had happened.