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What helps your lyme pain?

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Posted 6/2/2017 2:15 AM (GMT 0)
My 30 yr old son has lyme. He is having terrible back pain...Which migrates a bit into his hips and thighs. He sees a chiropractor which really doesn't give much relief for more than a day or so. He has tried Yoga. What are some things that people do to deal with the pain syndromes from this beast?

Thanks!
Posted 6/2/2017 2:33 AM (GMT 0)
Hi AK -

I'm so sorry your son is in that kind of pain. It's no way to live.

My Lyme-friendly neurologist likes to suggest that most neuropathy is from inflammation. So I don't know if what he is experiencing is neuropathy (problems with overactive nerve-endings) or myopathy (muscular) or a bone/joint issue. A little more might help people develop more specific solutions.

Has he seen any other specialists for a diagnosis? Have any tests been done?

-p
Posted 6/2/2017 2:37 AM (GMT 0)
I won't say what I've depended on to COVER my Lyme pain for the past 13 years, but I can tell you that when I am regular with my Japanese Knotweed tincture, I rarely have to depend on anything else for pain.

Except for my lower back, but you have to understand I'm almost 66 and have severe osteoporosis in my bones as well as Degenerative disc Disease, so when I aggrevate my back nothing I have helps.

Another thing that helps in your son's areas are using heat paks, (like heating pads or microwave warmed rice bags), sometimes alternating with ice packs depending on what feels good to him at the time.
Posted 6/2/2017 2:46 AM (GMT 0)
jm -

interesting about the JK. Do you think it works because of it's anti-inflammatory properties? Or some other function?

-p
Posted 6/2/2017 2:56 AM (GMT 0)
Pirouette - yes no way to live is right! From what he describes, it is not sound like neuropathy. If I had to guess, I would think that it was muscular although I am not an expert. His X-rays were all fine with good joint spacing....but that is about the only thing they have worked up.

I heard this poor guy sobbing tonight because of the pain. I wish that some of this were easy!
Posted 6/2/2017 3:45 AM (GMT 0)

Pirouette said...
jm -

interesting about the JK. Do you think it works because of it's anti-inflammatory properties? Or some other function?

-p

Yes, I believe that is the primary reason. But also the huge array of it's benefits Buhner lists from it, including helping my immune function. It's like one of those herbs that sounds too good to be true, but I trust Buhner, and I'm handling it pretty well, so I find it a very important aspect of my treatment.

If inflammation is the body's response to an invasion, and Lyme comes along and helps battle the invasion, thus lessening the pain of inflammation, kudos to it.

I know I'm over simplifying. I just know it's been a big help, but like all of my herbs, I have to stick with them with no planned finish line in sight.
Posted 6/2/2017 3:56 AM (GMT 0)
AK, I am so sorry about your son. That's heartbreaking to hear.

Lyme goes where ever there is a weak area in us, even joints that may have had some extra stress put on them, but not previously acted up. The bacteria can get into the tightest areas of tissue and cartilage.

Buhner has a page on treating Lyme arthritis on page 227 of his book Healing Lyme 2nd edition. The very first suggestion is to concentrate on an entire collagen support protocol(pgs 218-219, and then lists herbs, etc.

I'm sorry I can't copy it to you here. My eyesight and short term memory are bad.
Posted 6/2/2017 5:07 AM (GMT 0)
Bee sting therapy has helped my searing hip and back pain so much i have weened off tramadol and kratom
Posted 6/2/2017 6:24 AM (GMT 0)
Magnesium in the form of a pinch of Epsom salts throughout the day and Flax 6000mg made a huge difference in my inflammation.

Sadly I had to cut the magnesium down to 600mg a day because of adding Minocycline. I can feel the difference and I will return to higher magnesium as soon as it is safe to do so.

For other pain I use Kratom, but I deny myself pain killers when I need the pain to speak to me and dictate what is wrong where.
Posted 6/2/2017 2:47 PM (GMT 0)
You will have to have him try things until he finds what works for him. I agree with either the ice or heat as those will sometimes make a big difference for me.

I also will use a roll on 'icy hot' type of product that gets things colder than an ice pack (or so it feels).

Something that I tried one time when I was desperate was Thieves Oil - it's a blend of essential oils. I had severe heal pain that felt like a railroad spike 3 inches up into my heal. After about 3 weeks of this, I was pretty desperate for some relief, so I tried it. 3 drops on each foot, then a white cotton sock over them. I did this for 3 days (once a day) and the heal pain was gone! It only lasted for about 4 days, so I did it again, and again it took away the pain. Now my heal pain is low and each time it starts back up, I put 3 drops of Thieves oil on each foot and it never gets that bad now.

It may be something to look into is all.

An anti-inflammatory may still help. If your LLMD won't prescribe on, there are natural anti-inflammatories that he can take. Just let us know if you need to know what these are.

And keep trying things!
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