Jemsek protocol

Brainzap545 said...
It's kind of like an overstimulation feeling in areas of bright light and then also having to focus on what different people are saying, and the ability to focus on their face. Something about looking directly at a person, it's like I see them-but I am not able to focus on them in the same way I used to. It's a little disorienting. Hard to explain! It feels like it has a lot to do with bright lights along with people.

I can't quite relate to depersonalization because I still have feelings and whatnot, but I do feel as though my perception is off and disorienting.

Traveler said...
For me, my brain fog is made worse when I have brain pressure, so I included that as well. The Kudzu root helps because of it lowering my brain pressure as well.

Otherwise, my brain fog can make it difficult for me to function if it gets bad. I won't drive when my brain fog is bad, as I can't seem to be able to recognize "issues" when driving under those circumstances.

It's like my head is full of cotton or something, as it takes me longer to process many things. They do process, but it just takes a bit longer - the thicker my brain fog, the longer it takes for thoughts to process.

You said you can't focus properly on people - as in listening/hearing them, or in seeing them and recognizing them? If it's mainly stuff like that, it would likely be more of a depersonalization, rather than brain fog. With that, it's a matter of being in treatment that is effective for you long enough, as well as good detoxing.

That sounds more like sensitivity to external stimuli/sensory overload. It was one of the worst "symptoms" I had that is sooo much better now after a year of treatment. I couldn't handle motion either - not only could I not drive a car, I couldn't even ride in a car.

I do have it but I haven't read it. I originally had a clinical herbalist whose herbs I was going to use in conjunction with antibiotics. Jemsek office told me I had to stop doing that because it would "muddy the waters." Maybe I could do it after the antibiotics?

Traveler said...
It's beginning to sound more like overstimulation of the nervous system, which happens with these infections.

You may wish to try anti-inflammatories to see if that helps any.

Are you open to using herbs? Do you have Buhner's Healing Lyme 2nd edition? He has some really good suggestion in his extended protocols that you may find helpful.

Dr. J'S STAFF USUALLY TEST FOR AMMONIA LEVELS. Maybe not the best idea to take the L-Ornithine L-Aspartate with out testing. In my experience: they stabilize first to minimize side effects from herx - it will still suck- but hopefully you will avoid seizures & death. Then they start with an easier protocol to clean up easily reached bacteria and see how you react. After several rounds they make it harder, etc. When you don't get terribly sick from your herx or during week off, they make protocol harder, but give you more time off to see if your body can maintain. I felt terrible on the protocol & off at 1st. Then I got to point that by end of time off I was praying for meds. The 1st day and 2nd half of last week I felt better. Almost 3 years in, I finally have good weeks and can remember how close to death I was. Hang in there. I know working with the office is frustrating, but medically they are the best. There are several reasons for pulsing.1. It grabs Borrelia & other bacteria when they change form or come out of biofilm. 2. If they kill too much bacteria too fast it could kill you. 3.It protects your intestinal flora and gives the parts of your body that have been injured by the dying bacteria(clean up of dead bacteria as well as cells killed by poison they released) to repair and get stronger.4. Overtime it will help (hopefully) your immune system to come back to the party, recognize and eliminate the bacteria or at least wall it off. Unless treatment advances radically you will always be infected, but your body will have to control it. Good luck