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Posted 7/18/2017 2:14 PM (GMT 0)
Hi All -

I've been treating with Zith (300mg daily) for almost 8 weeks and Mino (200mg daily) for about 6 weeks. My LLMD wanted me to add Tinidazole to the mix, and I had what I am assuming was a herx on VERY low doses. Anxiety spiked, headache, and it brought my menstrual cycle on a few days early. I'm terrified of trying to go back on the Tinidazole. She acknowledges that I had a herx, and she really wants me back on it, even if it's a low dose.

How do I know it's a herx and not a med reaction? From what I'm reading, this is a very toxic drug.

What other options do I have? Is this drug the only drug that will heal chronic Lyme?

Feeling discouraged today.

Thanks for any info!
Denver1
Posted 7/18/2017 2:27 PM (GMT 0)
I am not the sharpest knife in the kitchen when it comes to antibiotics. But, if it were me I would detox for a week and then start the low dose.

How is your detoxing?
Posted 7/18/2017 2:54 PM (GMT 0)
Hi PeteZa -

Here's what I'm currently doing for detox.

Dry skin brush - once a day
Burbur x 2 per day
Alpha Lipoic Acid
Water - try to drink at least 8 glasses per day - puts me in bathroom frequently
Eat a healthy diet - sugar, gluten, dairy, pork, beef free
Sleep - at least 8 hours rest per night
Epsom salt foot soaks - at least 5 nights a week

I need to order activated charcoal as a binder before I make any changes to my protocol - should probably pick it up at the natural foods store today.

Thanks!
Posted 7/18/2017 3:15 PM (GMT 0)
Hi Denver. Yes, you definitely need a binder. Make sure you take it 2 hours away from anything. I think adding Jernigan's pinella would be beneficial, too.

Tinidizole is used to bust up cysts and also targets parasites. It sounds like you did herx on it. Unfortunately, starting any new protocol will make that happen. I found this med to be very beneficial and important. I agree with PeteZa....detox and take smaller dose to start.

Patty
Posted 7/18/2017 3:18 PM (GMT 0)
Those are great detox methods.

One of the best detox things I have read for really bad herxes is Alka Seltzer Gold. It has to be Gold. From what I understand it is available only online. But, it has been a very quick relief for many on this forum. I have not done it myself.

Tinidazole is an anti-parasite and antibiotic. I don't know about alternatives. I think allergic reactions are entirely different than herx reactions.

I think someone else will need to help you on that question. Sorry it threw you for a spin.
Posted 7/18/2017 4:44 PM (GMT 0)

Denver1 said...
Hi All -

I've been treating with Zith (300mg daily) for almost 8 weeks and Mino (200mg daily) for about 6 weeks. My LLMD wanted me to add Tinidazole to the mix, and I had what I am assuming was a herx on VERY low doses. Anxiety spiked, headache, and it brought my menstrual cycle on a few days early. I'm terrified of trying to go back on the Tinidazole. She acknowledges that I had a herx, and she really wants me back on it, even if it's a low dose.

How do I know it's a herx and not a med reaction? From what I'm reading, this is a very toxic drug.

What other options do I have? Is this drug the only drug that will heal chronic Lyme?

Feeling discouraged today.

Thanks for any info!
Denver1

How often did she want you taking the Tinidazole?
It should be pulsed - just a couple days a week. So, start out with just taking it one day a week...and see how you do. And don't take it every week. Try just taking it one week every 3-4 weeks - first one day...and then two days.
It is a cyst buster. Another option is Flagyl. It is in the same class as the Tinidazole. Flagyl is the one that was tested on mice and rats and was shown to cause bladder cancer with long term use.

You could try a non antibiotic approach - GSE
Posted 7/18/2017 4:51 PM (GMT 0)
Thank you for the replies!

I knew this was a cyst buster, but I didn't know it was anti-parasitic.

Does anyone know if there's a way of naturally combating the cysts?

I seem to recall reading that there are natural parasite cleanses. Should I consider doing one of those?

Patty- I know this drug has worked for lots of folks, but I can't get my anxiety over starting another antibiotic to calm down. sad Before all this started I took thyroid meds (which now I know my Hashimoto's could have been triggered by Lyme about 5 years ago), and maybe 8 pain relievers in a year. I literally feel toxic. Wow! I sound pathetic!
Posted 7/18/2017 5:02 PM (GMT 0)
The natural cyst buster I mentioned in the previous post - GSE

Grapefruit Seed Extract.

I wouldn't do a parasite cleanse while you're still struggling with your current protocol.
Posted 7/18/2017 5:33 PM (GMT 0)
Thanks, Girlie!
Posted 7/18/2017 7:57 PM (GMT 0)
By parasitic they mean mostly blood borne ,giardia and some tend to like the gut but fl1953 is systemic as is babesia ..tinidazole had action on protozoal bugs .and is one of the few pharmaceutical agents that acts on lyme cysts and biofilm .another option may be alinia or bee venom but it hits everything . They havent proven that tinidazole is carcinigenic but its in the same class as flagyl which is .

gut bugs helminith and the like need be addressed to some say first as they can harbor bacteria inside them...
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