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Posted 7/23/2017 2:05 AM (GMT 0)
Hello everyone!

Does anyone else have fainting or passing out from pain? This has been happening to me since February. The first couple times it happened, my husband called 911. And I was stuck in the hospital (bahaha!) for a week. They ran their hospital tests - came up with very low B12 one time but the diagnosis was fainting from pain. Which is my biggest problem - knee, shoulder, back, feet.....joint paint that gets really crazy.

Today I was in severe pain and passed out, hitting my head on the coffee table....big bruise on my forehead.

LLMD thinks the pain will get better with my Diflucan and Nystatin. Almost on day 5, Lawd that stuff is not helping.....but I know it gets worse before getting better. Will be starting 3 antibiotics after he treats the Yeast.

Anyway, just wondering if this happens to anyone else?

Thanks so much!💜
Posted 7/23/2017 7:02 AM (GMT 0)
raspberryswirlgirl - Yikes - so sorry this is happening!

No, that doesn't happen to me.

I don't know if your pain will for sure get better with the Diflucan and Nystatin - I do hope so.

But for me - the pain doesn't seem to be related to yeast - but the infections.

What antibiotics will you be starting?
Posted 7/23/2017 9:36 AM (GMT 0)
I had to do tramadol then the bvt and rocephin cut the excrusiating pain i just weeks ...have you tried kratom?
Posted 7/23/2017 9:38 AM (GMT 0)
That happened to me a few times. It's good that you have a sense of humor about it in retrospect, but it's pretty scary when it happens! I also was found to have low B12, however, since I tested positive for the MTHFR genetic mutation, my doc at Stanford insists that I ONLY taking the methylated form of B12 and folate.

Apparently, this genetic mutation is not that uncommon, however, it can cause the "regular" type of B12 to have an adverse affect...which, perhaps, explains why B12 shots never worked for me whereas the methylated has seemed to help a lot with the horrific burning pain in my feet and hands. Not as much for my back and neck and joint pain, though...

I'm new here and don't know how this all relates to Lyme, but perhaps it's something to run by your LLMD. Or, if you do the DNA testing on your own, you can upload the results into various sites to analyze the data yourself.
Posted 7/23/2017 4:05 PM (GMT 0)
Thanks everyone!

Today the bruise on my forehead looks like I lost in a bar fight! 😳

Girlie - I'm not sure what antibiotics the doctor will be putting me on. I suppose he's waiting on my Igenex tests to see what all he's dealing with. Luckily, he doesn't put all his eggs in one test basket and I finally found someone who feels comfortable with just clinically diagnosing me. I'm a walking poster child for Lyme, but we so often just get brushed off by the medical community. My LLMD did give me a list (because my memory is so bad these days) of what he wanted to test for on the Igenix test and a list of what he wanted to do, and what he wanted me to do for the first month which is just Yeast related. At the end of his notes, he wrote call him after a finish my Yeast protocol and he would start 3 antibiotics. I'll be sure to let you know what he puts me on and I'm sure I'll be filled with questions.

bluelyme - I'm not too familiar yet with all the abbreviations. What is bvt? I haven't tried kratom, but have a friend, also with Lyme, who ordered some. Seems like she said something about it not being available in TN? Could that be correct? She had her's shipped to MS which isn't very far at all. Have you tried it? How did it work for you?

Pistachi0 - do you remember your B12 number? Mine was 132, pretty darn low! What exactly is the methylated form (is that a tablet?). Please excuse my ignorance, this is all so new to me. It's funny that my NP wants me to get DNA testing, I guess I need to give that some more thought. Have you found anything that helps for your joint pain in your knees, neck and back? I hate that this happens to you too.....but it really does help to know that I'm not the only one (misery loves company? ) Actually I'm really sorry hunni that this happens to you as well. Keep me posted, my fainting friend!

Thanks again everyone! Let's keep up the good fight!❤️
Posted 7/23/2017 5:17 PM (GMT 0)
raspberryswirlgirl -

Fainting was one of my strange sx long before I even suspected Lyme & Co. I tended to take showers that were too hot or once I sat in a hot tub too long, or sat in saunas too long, or visited Pheonix in July... all related to heat. Yeast/fungus doesn't like the heat and die off can be significant - both the y/f growth and the die off can release neurotoxins like ethanol.

Lyme & Co prefers a cool environment too. So heating up the body can also cause weird symptoms.

Another thing your LLMD might check is a circulatory interference like with POTS.

I LOVE the fact that he's given you a y/f protocol first - as these associated symptoms can overlap w/ Lyme & Co quite a bit and cause a lot of confusion and difficulty with the Lyme & CO treatment. So this will help prepare you a little better for all the abx and reduce common side effects with them.

Here is more info on y/f if you're interested:

Y/FO post in the "New to Lyme?" thread:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

-p
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