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Posted 8/3/2017 6:31 AM (GMT 0)
I have many but the most bothersome is me digging my nails under my eyes and tearing my skin off. (Basically tearing my face off) Can anyone relate because I feel like a maniac.

I've been diagnosed with Infection induced encephalopathy and have been on intravenous antibiotics for about 7 months. Has not helped.
Posted 8/3/2017 6:47 AM (GMT 0)
Alice - I'm sorry you are suffering with this.

Can you call your LLMD and tell him what you are experiencing?


Are you detoxing? Anything specific for brain/nerves?

A couple you could try:

- Jernigan's NeuroAntitox II - CNS/PNS

or:

Nutramedix Pinella - Brain/Nerve Cleanse.

You need to get those toxins out .
Posted 8/3/2017 10:09 AM (GMT 0)
Hi just want to stop by and say hang in there, I had terrible dreams from malarone but I know its not the same as you are dealing with(encephalopathy) . Mine had fierce animals(predators) in them always but very disturbing.


There is a well known female llmd in NY city, I dont now if your in the states or even if you know of her. I believe she treats Lyme patients that have this manifestation.

Here is an article also I feel its ok to put this on here since it his llmd publishes many things publically on facebook, the web etc.


http://danielcameronmd.com/patients-should-be-warned-of-lyme-disease-complications-including-lyme-encephalopathy/



I wish you the best of healing and I am so sorry that you have to face this but remember there is hope and there just has to be something out there that may help.

Feel free to always reach out for support here, you are not alone we understand.

Take care, Jo
Posted 8/3/2017 4:16 PM (GMT 0)
I have/have had this and also have encephalopahy. I oftentimes get intrusive, reptitive thoughts ranging from mildly annoying to "go sit in the car for a while and make sure your brain doesn't make you do anything stupid"

For the past 2 days ive been reciting the alphabet to myself over and over and over all day and just can't get it out of my head. Other times i have been so disconnected im having conversations with spirits about brutal things- and they talk back.

You're not alone, i feel your pain

As elementary as these sound, the things that help keep me propped up and out of that mindspace is 1) avoiding all elevation, the lower pressure you are in the more the inflammation in your brain increases. Sea level is best 2) avoiding mold and poor air quality. I have been living in my truck for several years now both because i went broke from this disease and because i can relocate to better air quality if need be. Simply sleeping in a room with a carpet and within one night im back into full blown psychosis and asking my parents who they are.

Once you manage to get the levels of brain inflammation down you wont have this symptom anymore. It's just getting there thats the hard part
Posted 8/5/2017 1:52 AM (GMT 0)
It seems whenever I take abx or herbs that pass the BBB (blood brain barrier) I get the odd set of neuro symptoms, sometimes frightening, sometimes strange, sometimes horrifying that my mind can dream these things up. It may be that (im guessing, an educated guess) that you are letting your nerves get too raw from killing bacteria that are feeding on the myelin. You need to let these tissues heal, and nerves take awhile longer than most (if my educated guess is correct.)

However you should know that you are not alone. I get intrusive, loopy, depressed thoughts. The details are different for everyone but the bad feelings are the same I think.

NT Factor may help those nerves heal. Magnesium helps. B vitamins. Chamomile tea, Peppermint tea. A spot of Lavender oil on the sleep apnea machine (if you have one).

But NT Factor is designed for this, so I will repeat it now: NT Factor. I think it may work best when you take a break from heavy abx, but it's good stuff anytime, anyway.

I wish I could afford an endless supply of NTFactor and all the other pricey supps, but hey this disease is a real drag sometimes.
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